I've recently started to have burning sensations shooting through my body, it can be in several places but doesn't last for long. I wake up with numb hands, numb areas on my face including my tongue. I've also started to stutter or my words come out completely jibberish. My vision will go almost completely in my left eye and I do get a bad headache with it but it isn't throbbing or near my eyes, it's normally constant at the back side of my head. My neurologist said he thinks it's migraines without really listening to me symptoms and has ordered an MRI. So my question is does anyone else have all the other symptoms with their migraines? My symptoms last for weeks (apart from the temporary blindness, that lasts around an hour) I developed raynauds a couple of months after the burning a numbness started. Thanks in advance for any information.
Kate, it sounds like migraine, I too have it on left side in the back of my head and in neck, with blurred vision and drooping eye, the top of my head goes numb. My teeth even hurt at times. I got diagnosed with fibromyalgia today that I was told it contribute to my migraines.
Thank you for you for replying DiddyC I completely get the diagnosis of migraine for the most part. But these burning sensations go in my back, legs, stomach, bottom all over the place and I get them for weeks everyday continually and they started a few months before the vision, numbness of face and headache started so I'm not convinced they are connected but was curious to see if anyone else gets this also. My speech can be terrible somedays. I guess I just don't think it sits with the 72 hour criteria but then again I don't know a great deal about it all... Yet
Also sorry for your new diagnosis!
Kate, escucha cariño... si tu médico no está prestando atención a tus síntomas... realmente necesitas buscar otro médico. Yo tengo migrañas y me dan manchas ciegas y auras en los ojos que siempre duran solo 20 minutos... pero nunca he tenido los síntomas que tú describes. Diré que mucho de eso suena como si pudieran ser migrañas. ¿El entumecimiento? Podría ser mala circulación también... pero todos necesitamos buscar otro médico si el nuestro no presta atención a lo que sentimos. Sé con certeza que nuestras mentes y nuestros nervios pueden hacernos sentir cosas que no significan necesariamente que tengamos algo realmente grave... pero simplemente siento que demasiados médicos se están enriqueciendo con nuestras quejas y ni siquiera están prestando atención. Mucha suerte, Kate... por favor mantennos informados aquí cuando sepas algo. Adiós, cariño.
I have pretty much the same symptoms with my migraines. I have been seeing a neuro for over a year. He still has yet to give me a diagnosis. .just says I will be one of those people that has them. I had an abnormal MRI with white matter on my brain. He said that was normal, showing years of migraines and excessive smoking but I didn't have migraines for years lol. I have facial, tongue and arm numbness also during my migraines. I can actually tell when they are going to start bc they go numb before I get my migraine and I get a warm sensation all thru the bottom part of my arms. My meds have helped some thank goodness but have not cured them for sure..I doubt anything ever will. As nutty as my neuro is I believe he is the reason I'm still alive today because I was at my point of desperation when I came to him. Good luck to you and to the rest of us
I get Hemiplegic migraines. More so as im late 40's and in preparation menopause. I get new and changing symptoms monthly. Speech, numbing. Walking is affected, tingling sensations in face, tongue, hands, auras, stomach migraines, confusion and memory loss. Read up on it and have an idea if this is what you may be dealing with. Find a doctor who listens. Some migraine abortive medicines, like the Trip tan family can be worsen to systems if you do have Hemiplegic migraine.
Thank you for your reply. I think it's so scary when I get the blindness, it's happened when I was driving with my young children in the car so we had to sit at the side of the road for ages until it went off. Hopefully will get some help soon.
Thanks for replying. It's horrible isn't it. I get the 'migraines' a couple of times a month but the rest of the symptoms ar everyday for weeks then I had nothing not even a headache for weeks then it's just flared up again!
Thanks for your reply. It all sounds very similar to mine, awful isn't it. I just don't get a break some weeks with mine and the burning drives me crazy.
Me estás describiendo mis migrañas al dedillo. Tengo tanto la migraña clásica con dolor como la alérgica (sin dolor). Tengo más o menos las mismas auras para ambas. La primera vez que tuve una sin dolor pensé que estaba teniendo un derrame cerebral. Muy aterrador.
Actualmente estoy en el día 38 con un dolor de cabeza constante y he tenido 3 migrañas importantes en este tiempo. He estado tomando Frovatriptán durante los últimos 4 años y al principio funcionó, pero parece haber perdido su eficacia. La resonancia magnética es un buen comienzo.
Hazme saber cómo te va.
Sunni
Wow Sunni that's some going! Hope it eases soon. I'm glad I'm not the only one with all these messed up symptoms/issues. It is all so scary isn't it, I blacked out over Christmas also and that was scary I came around covered in sweat. I don't drink alcohol very often but I had got a bit merry the night before so I put it down to the alcohol. Just all really difficult for me to get used to because I'm never ill hardly ever even catch anyone's cold and now all of this!
Llega un punto en el que estoy probando remedios alternativos... He hecho acupuntura, ajustes quiroprácticos, hierbas... funciona por un tiempo, pero son tan caros que no siempre es fácil pagarlos. He oído hablar de este piercing que puedes hacerte en la oreja (daith) y he estado investigando mucho al respecto. Hay mucha información positiva y negativa. Pero solo cuesta unos 60 dólares, así que creo que si hay aunque sea la más mínima posibilidad de que funcione, vale la pena intentarlo. Si no funciona, siempre puedo quitármelo.
I started having those symptoms out of the blue December 2014 and I didn't really feel like it was migraines because I had several before and they were completly different but my doctor insisted and once I was referred to a neurologist they explained a little better that there are LOTS of different types of migraines and the ones I was suffering from were just a different kind than I was previously used to. An MRI is standard operating procedure. In fact my doctor had done a CT before sending me to a neurologist who did an MRI.
I don't want to be the bearer of bad news but yes, they can last weeks. I actually went from Dec 22nd to July 9th without a migraine free day but everyone is different.
What I can tell you is there may be various reasons so this is the typical procedure: you go to your doctor, get a CT, if clean you go to neurologist who gets you an MRI, if clean they will try various medications and probably have you do a headache diary, if over a period of time none of that works you will be sent to an ENT, an ENT will do a physical exam of your reflexes and various hearing tests, if those are clean you get to do a really fun ENG where they make you dizzy on purpose, if those are clean you will most likely be referred to another specialist who may want to do the same tests more in depth.
Anyways, for a lot of people a neurologist ends up helping a lot and they find the right medication for your migraines. For me personally none of the medication helped (in some cases made it worse) because it turned out to be derived from my neck which unfortunately took 10 months to discover and I'm getting physical treatment and don't need any medication.
I hope your MRI goes well and comes back clean so that you can get on to the next step. Take care!
Kate, ¿cuánto dura este ceguera temporal? Yo también lo he tenido mientras conducía..es realmente aterrador... Lo he tenido durante 50 años..y aún ahora? cuando siento que viene? me asusta a muerte..pero los míos siempre duran solo 20 minutos..
Hola Manda,
Sé por lo que estás pasando. Estoy en el día 40 con dolor de cabeza... he tenido 3 migrañas durante este tiempo... no es divertido. También he pasado por todas las pruebas y he tenido la prueba en la que te marean. No sé si tu prueba fue la misma que la mía. Mi médico de cabecera dijo que era para realinear los cristales en mi oído. La primera vez que lo hizo, pensé "¿qué demonios?". Nunca me advirtió. Simplemente tomó mi cabeza entre sus manos y me lanzó hacia un lado... Tomo usualmente Frovatriptán, pero he notado que no ha sido tan efectivo últimamente. Esperando otra cita con el neurólogo. También tengo espasmos cervicales muy fuertes que duran días. Estoy tomando metocarbol (relajante muscular) para eso.
My diagnosis came after a little more than 10 months of migraines and dizzy spells every day and it turned out to be physical and not neurological; but that's just my case. For a lot of people a neurologist can help, just not me. For that reason all the medications including the muscle relaxers either didn't work or made things worse. I'm currently undergoing a cocktail of massage therapy, chiropractic adjustments (with plenty of warning!) and physical therapy. It's slow progress but it has been progress just the same which is something I got zero of before getting properly diagnosed.
Gosh Manda I wouldn't cope for that long like you have!
I was at ENT before Christmas and had a camera up my nose due to my glands not going down for months now, had an ultrasound after and they just said my glands are reacting but show nothing nasty which is good. Never want the camera up my nose again either! The neuro did re reflex test and had me holding my arms out which he's said shows some sway or something like that and he's also said he thinks my numb hands are due to Raynaud's phenomenon. Just got to wait for the MRI now and hope that's all clear and I can get started on some medication to help get back to normal
Hi the most it has lasted is for an hour but almost have after shocks of it where it'll go funny for brief periods after the main one, drives me crazy and scares the hell out of me. I always ring my mum crying. My mum offered to pay for me go private so think we'll wait to have the MRI and then go and hopefully will have the opportunity to explain everything properly and feel like I'm being listened to better.
Hi Kate,
I have Chronic Migraine, it took nearly 6 years to get a diagnosis! I had MRI 2 nerves tests, spinal specialist, orthopedic specialist, physio and a number of blood tests before they came up with a diagnosis! That was 3 years ago
Since then not I'm on meds including topiramate and amitriptyline I not allowed caffeine or pain killers. My symptoms are similar to yours but all the time as I have a migraine going off in my head all the time and although it doesn't always cause me pain it does effect my nervous system and my cognitive function so I have the pins and needles all over the place, balance issues, focusing issues, speech problems and writing problem (always fun when I'm teaching!) Swallowing problems and sleep disturbance just to name a few! I also get daily headaches and full blown migraines at least 3 times a week. I find that getting hot increases some of my symptoms, dyhydration others and lack of sleep others! My whole life is a juggling act but it doesn't stop me I still work and I am single mum of a smelly 14 year old boy that is at the grunting stage of communication!!
I would see if you can figure out if you have any triggers to your symptoms as it's better to work with them then against them.
Good luck x