Hello I'm trying to be diagnosed, my doctor is that loss, extreme muscle fatigue for 2 1/2 months and now I started twitching. Of course I am freaking out I could be ALS, I feel always exhausted as if a truck as one over me, I soon as I come home from work I have to take a nap, but Dr. mention CFS but he's very worried about the twitching , Any of you have CFS with twitching of the muscles? Thank you for your response I'm freaking out!
Hi, sorry to hear this. I have not had twitching at all and do have severe cfs. Everyone is different. You need to get this checked by a specialist. Perhaps neurologist?
Take care
Gized
hi , lm, sure ive read of some with cfs having twitching muscles, as with fibromyalgia more so l think, as with being exhausted and napping daytime. Did you read up on fibro myalgia, its a possability,
I've had CFS to variable degrees for 30 years, and I've had twitching in my arms and legs whenever they get tired. I never got the doctor to take it seriously but I did have all the usual tests in the early days. Since then, i've just learned to live with it.
Yes, I have twitiching of the muscles with ME/CFS. I know that it's very easy to freak out and go to worst-cast scenarious, like ALS. But I can tell you one thing. I've freaked out over this, and I've seen other people posting freak out over the same issue. And yet in all the time I've been on this forum, not one case has turned out to be ALS or MS.
Thank you Jackie🙂
Do you have them everyday?
Hi .. I've had me/cfs for nearly 10 years I've had twitching from the start and still have it . My husband goes nuts .. I wake him up sometimes with twitching. Pretty much my whole body . I also get muscle spasms. I find the more active I am the worse the twitching x
Thanks Lorraine, any muscle fatigue (legs and arms?) and hands tremors?
Hi Lidia,
Yes to twitching, yes to hand tremors but, My friend also with CFS/Me has them worse than me. They went down the path of getting them checked out and no positive results. I guess we all worry about it being something worse at one time or another. get the tests that will alleviate the worry as much as possible. with CFs/ME the run over by a truck is one of my constant feelings.
If it is CFS/ME though, they usually need you to have had symptoms for 6 monts I think.
Hope that helps
Beverley
Thank you Beverley!!
No. Not every day.
Hi India sorry for slow reply I'm really struggling at the min . This heat don't help . Yeah I get muscle fatigue and tremor in my hands is quite bad . My legs are also very weak and Wobblie . I think if you learn how. To pace yourself it might not be as bad . I unfortunately didn't listen to that advice at the start and think that's how I have gotten so severe . I thought I was pacing working 2/3 days is a row then resting for a day then doing it all over again . I was working 2 jobs and looking after house and kids . I now am unemployed I was always very independent so it was hard to give into . Some days I shake that bad I wonder if it is Parkinson's instead of me/cfs . Please listen to advice in pacing . I think it's really important . X
There's a recent thread on here by some called TheLastLaugh with similar concerns to you. Perhaps you could find that and share.
I was cleared by neurologist, I felt the pain was coming from deep in between muscles, now I wonder if it could actually be bones??? Can you feel pain in bones?
Hi lidia,
What did the neurologist say? Wondering if they gave you any pointers as to what it could be?
B
I had an infection 3 months ago, she thinks it could have started some kind of weird body reaction, I don't know I honestly never heard of such a thing...
Ah, ok. Look up post viral fatigue, you may see some similarity. symptoms like cfs/me that appear after virus. It's how a lot of people get cfs/me. But, saying that, people also seem to just get better after post viral fatigue sometimes.
B
Thanks Beverley!
No worries
I also have all the symptoms, weakness in my hands, legs and arms. I don't know if it is classified as fatigue or weakness actually. But my arms kinda have that burning sensation like I'm working out. My legs don't usually have this feeling but I do feel pain when standing up and sitting down and also have pain around my knees after standing to long. I have muscle twitches on my face (almost always nose) but most of the twitches are in my legs but these are where they occur most. I have them mostly everywhere. I also have pack pain when leaning over I don't know if this would fit into the symptoms of CFS. I haven't went into much detail with my hand weakness but it is way worse upon waking. I'm really scared this could be something serious and have an appointment schedule with my family doctor. I'm only 18😞😞