I am wondering how the recovery is after Mvd surgery. I am facing this and am alone with no one to be with me. Can it be done? I am to the point where I am reasy to throw in the towell. Thanks
G'day Kevin, have you spoken to your Neurologist about this to find out if there is any home assistance or convalescence place you can get or go to. Also, where are you, UK, USA or Australia?
Kevin18765.
I can say so far that I don't have shocks to my face anymore. Yes, you will need someone with you. At this time all I can say is that I wish that I had never had it, I also wish that I had a second third and fourth opinions b4 having my surgery. You can read my post again to c what I am going through.
I Can't advise you but I will say this, get a second third fourth fifth sixth opinion before you have it
Please ask your doctor how many of these kind of surgeries he has done, and also, him if he's going to be cutting a muscle in your neck and ask him why, you will need to know what the purpose of cutting the muscle in your neck.
I was in hospital from 27th of July, to August 8, and still have double vision. I have an opthamologist appointment on the 19th of September, have to wait until then to see what is going to be said about my eyes
God bless,
Us and keep us and give us peace
I will keep everyone in my prayers
I have heard MVD is a really good way to go. I wanted that but because of MS they wouldn't do it so I opted for Radiofrequency where they put a needle in my cheek and burn the heck out of the nerve. They started by not burning real hard but it kept coming back so this last one had a harder burn. I'm hoping it lasts a long time. Some MVD works great and some don't. Everyone is different. I have had to learn to accept that I have been cursed and made sure my doc and medical team will respond quickly whenever it comes back.
good luck with your procedure. Hopefully it will work well and get rid of it!
I think it's possible to do it on your own, but barely. You really need someone to get you around as you will not be able to drive for several days afterwards (10 days for me). You'll also need someone to spot you for the first couple of days around your home as you recover and want to clean yourself, etc. It's a lot of work to do by yourself.
I'm 44 and in good health, other than the TN. My MVD was about a month ago. You will definitely want someone with you for at least 3 or 4 days after you leave the hospital. Even getting up to go to the bathroom or shower can be challenge. I was only in the hospital for 2 days, but if you can stay in the hospital for 5-7 days, that would be very beneficial.
Hello Clint72
I am so pleased ur MVD went so well, and that u had no prolonged problems afterwards.
I was in perfect health, walked 12,000 steps a day, doctors told me everything was a go for this procedure and look at my problems.
I just don't believe MVD is right 4 everyone.
I don't want to make people who want 2 have this run away, but having double vision from July 27, 2016 to now is awful.
I advise people to get one two three four and five opinion before you have MVD.
Clint7, what state did u have ur MVD done, and what hospital?
God bless,
God bless you and keep you and give you peace
Kevin18765
Good luck with whatever procedures you decide to have done, come back and let us know know how it went.
Bless you,
and keep you and give you peace
I had it done in Kansas. Fortunately, my surgeon has performed over 500 MVDs. I think experience is critical for a procedure like this.
Clint71,
The side of my head where I had the surgery it feels really hard and numb do your head feel like that.
When I see my doctor again since he put me off for so long, I am going to ask him how many he has done.
Just hearing u say ur went ok makes ne feel bettet.
Did u have the pain in ur gums and the electrical shock to ur face? I also had a crawling feelling in skin ontop top
Half of my entire head is mildly numb, even half of my tongue. The surgeon said that is to be expected for 4-8 weeks, generally speaking. I had electric shock pains in my face. For the record, he said my case was the worst he's seen, and still the pain was gone from the moment I came out of surgery. The success rate is about 85%.
Clint671
I pushed wrong button and I didn't get to finish but this is what I want you to ask.
Did you have a crawling sensation under your skin on top of your head? This is what I had along with the electrical shocks to my face and the pain in my gums. The electrical shocks with like 10 times that of someone shoking you after they rub their feet on the carpet.
God bless
you and keep you and give you peace
I didn't have the crawling sensation, but I've read that's not unusual. Mine was purely electrical shock pain, at times so intense I nearly passed out.
Clint71
I don't have numbness on tongue, I do have this crawling sensation in head but in different spot, then b4 surgery. I guess it's because of the numbness in the head.
Do you have spasms in your neck on the side were surgery was done?
Also, do u get muscle spasm(cyclobenzaprine) in ur neck.on side were MVD was done.
I was told by surgeon PA that he cut a muscle in my neck.
I don't know the reason, for this but I will ask when I go back for another appointment on September 13th 2016, with jis P.A, secretary said he might be able to step in.
LOL.
I will tell u now he will do more than step in.
My hubby goes with me yet he just sits and ask no questions, I was on so many drugs for hesdaches (darco 7.6), and nausea(ondansetron 4mg) I couldn't ask what I wanted. Told hubby to ask in case I couldn't remrmber yet he just sat there.
That Darco makes me have bad dreams I don’t take it anymore. Aleve gets rid of my headaches.
God bless
You and keep you and give you peace.
Clint,
Could you please tell me the name of the surgeon in Kansas that you used? I had mvd 4 months ago but they also did partial rhizotomy and I need a second opinion because I have no sensation on one side of my face. No more TN pain but 24/7 discomfort. I need to speak to a surgeon who has done many procedures. Thank you.
Dr. John Dickerson with Abay Neuroscience
Clint71
I just remember when I first started all I had was electrical shock, only.
I believe I waited too long because after that it is when I started to get the pain in my gums.
Instead of going to doctor I went to dentist, made him pull a good teeth. I still have the teeth.
Dentist sent me to a dental surgeon who sent me to my primary care doctor primary care doctor told me to make appointment with neurologist put me back in til October of 2016 then I called another neurologist who scheduled appointments on for months from the time its first started then I finally got appointment with a neurosurgeon but that was like 3 or 4 months later after the shocking started, then I was getting pain in gums. I think had I gotten it done as soon as I was getting only shocking and Dr we're not putting their dates back on their schedule so long I would not be with us double vision right now. I'm rambling but I am talking with text.
I was not getting pain in my gums until after I made the dentist pull my teeth because I was getting the electrical shocks only.
It felt like the first shock
was going through my back teeth, and also my face.
This might have something to do with the tooth as someone else commented.
My problems didn start until colonospy/surgery/mixed meds.
Did u have a tooth removed or was one hurting u
I had MVD and my gums still hurt but only slightly.
Anyone have the Phantom teeth feeling.
Bless you
and keep you and give you peace
Saaz79347
Do you have double vision for a while or any other symptoms after your surgery
God bless
you and keep you and give you peace
Clint71
What part of Kansas is this doctor in
that did your surgery and what hospital?
Knowing the hodpital could help others
knowing a surgeon who has 500 surgeries under his belt is good for others facing this dreadful vonditiom with MVD
God bless
you and keep you and give you peace
He's in Wichita, KS. He operates at multiple hospitals. A quick Google search brings him right up.