My cure for LPR!!

Digestive health
1

I was diagnosed with LPR in July 2017 having gone to my GP with a feeling of a lump in my throat.

The standard PPI's were prescribed and many of them, all with no effect. My symptoms became worse and additional symptoms developed. Pains across my chest, pains under my arms, painful lymph nodes, back pain, headaches, feeling of my throat swelling, choking, sore throat day after day after day!

Camera down my throat into my stomach, camera up my nose and then down my throat, voice therapy, bland diet for six month!!! and I mean six months, no alcohol, chocolate, fatty foods, I didn't cheat once.

Alkaline water everyday, books bought, research conducted, DGL, Mastic Gum, Slippery Elm, natural alternatives. Gaviscon Advance, probiotics, we've all been there.

Paid privately to see a specialist who was happy to take my money and tell me I was going to have this for the rest of my life so "Get used to it"

I felt SO BAD!!! depressed, looking for a miracle, prayed a lot! I really thought it was going to be the end of me. Anxious, unable to enjoy my life anymore knowing that this pain was going to be with me forever.

The alternative medicine did help ease my pain but it didn't get rid of it. At the end of everyday my throat would be so sore.

I've mentioned the probiotics and I was taking these for around 3-4 weeks before I started to notice a slight improvement. I was taking 2 x 3 billion good bacteria in tablet form about 30 minutes before my evening meal.

I continued on this dose for months until a friend came over just before Xmas and handed me an un opened bottle of Acidophilus 20 billion. It may sound silly but in all the hours of research conducted It didn't dawn on me that I could up the strength.

I started taking just one tablet before my main evening meal since Xmas.

Gradually all my symptoms have subsided, so much so I had 2 cans of a Cola yesterday and no issues at all. I had one just to test it and then another as I couldn't believe I wasn't experiencing any pain!!

I'm not saying that this will be the silver bullet for everyone but for me by upping the strength has made such a MASSIVE IMPACT. I'm still in shock that I no longer have a sore throat, any feeling of swelling or difficulty swallowing.

I wanted to share my findings as I know exactly what hell looks and feels like.

Its not a quick fix and has taken several weeks to to get to this stage but they have really helped me.

If you stumble by this post I hope that this information may assist.

Good luck and if I experience any changes I'll come back and post again.

2

I'm so pleased for you I've been on PPI medication for years and it's not helping me I get sore throat and in my chest burning 24 /7 I will try this for myself

3

Hi Gillian,

Thank you

Please do try them, as I mentioned, it may not work for everyone but like you I would try anything to rid me of this terrible condition.

It took 3-4 weeks but again today symptom free. I'm just hoping it lasts!!!

4

Hey, Ive had LPR for 4 years now and constantly have a very sore throat. Had all the tests you mentioned and been on Lansoprazole 30mg twice a day, never had any relief apart from when I cut out all carbs from my diet, I was doing it to lose a few pounds but after a week of 20 grams of carbs a day, all my symptoms where totally gone! Only thing is its not easy sticking to and I ended up with the sore throat again. Im going to try what you mentioned and cut down on sugar as much as possible!

Thank you for your post and please keep us updated xx

5

Hi Carlabear17,

Having read lots of posts here and in other forums it soon becomes apparent that there appears to be no consistent approach to tackling this terrible condition.

What is also concerning is that having visited so called "specialists" I've not been supplied with any good advice, just fobbed off with PPI's.

As stated in my original post it may not work for everyone but like you I'm willing to try anything to get rid of it.

I was interested to read that by reducing your carbs, symptoms subsided. It is so difficult to try and stick with a diet as every now and again we all deserve a treat but with this awful condition you soon start to regret it.

I strongly believe that the good bacteria in my gut was being over whelmed with the bad bacteria and by upping my dose of probiotics has addressed the balance.

Please let me know how you get on. It did take around 3-4 weeks before I noticed a difference but what a difference!!!

Best of luck!

6

did you wean off off you ppi or stopped cold turkey? i have been on them for almost three most with no relief. i have sore throat, sour taste in mouth all the time and burning throat. i think i being worse since i started ppi them when was not taking them. i am scare to stop them since i hear about the rebound acid. any advice will be appreacite. thanks!

7

Ive just st read this question you asked I'm need v to know that to I'm suffering really bad now with stinging throat chest nasty sour taist in mouth can sad anything everything seems to trigger it off I get heart burn every day horse voice coughing

8

Hello, Simon i'm glad you were able to find a solution for yourself. I've been wanting to switch to that diet for a while now, but i don't know which foods are considered bland foods. Could you please tell me some foods that you consumed while on that diet?

9

how long have you been on ppi and what is your dose? do you take it once or twice? ppi don't do anything for me. does they help you a little?

10

Hi Maria,

I experienced exactly the same on PPI's. My symptoms became a lot worse. My throat, chest, back, voice all hurt so much more. When I mentioned this with my GP I was told that it must be something else causing it. I'm not a Dr but I knew that these drugs were the cause. I reduced the dose in a controlled was over a period of time and therefore prevented the rebound. I kept to my bland diet and kept up with my Alkaline water and Probiotics and had Gaviscon Advance after every meal and before going to bed. But as stated the miracle cure for me was upping my dose of probiotic. I'm still symptom free. I hope that helps. Let me know how you get on.

11

Hi Destiny,

For me I was so determined to not aggravate my symptoms I kept with the same meals every day, and I mean every day. Sounds really dull and boring but it did help a little. Foods for me included: Potatoes, Veg, Chicken, Fish, Turkey, lightly salted popcorn, salad (no toms, peppers, onions, garlic, salad dressing) No red meats at all - no fried food at all- no choc- no alcohol- no fizzy drinks. No fruits. I made sure that my diet was massively healthy with the veg. I hope that gives you an idea. I'm aware there are several books available to purchase which can guide you through an acid free diet. Some of the forums list them also. Hope that assists. Please let me know how you get on. Good luck.

12

Can i ask what is the name of the probiotic you use? i have tried probiotics before and stopped taking them after a few days because i have side effect, loose stools and gas. not sure if these are side effects or just my body adjusting to them. also are you taking other supplements?

13

Hi Maria,

Ive been taking Acidophilus extra strength 20 billion from H&B. I take one capsule with my main meal in the evening just at the end. Best to take them with food otherwise lots of bloating and gas. I'm not taking any other supplements at the moment. No PPI's - I'm still taking G advance before I go to bed but this is something I intend to stop as I'm not having any symptoms. Let me know how you get on. Good luck

14

i am nexium now, i am planning in slowing wen off of it. did you took any supplements or probiotics when you reduced your ppi dose?

15

Can I take PPI medication at the same time as taking Acidophilus

16

Can I take PPI medication at the same time as taking Acidophilus

17

I didn't take any supplements at all. All the PPI's I took seemed to make my symptoms a lot worse. I slowly withdrew PPI's and then started supplements.

18

Hi Gillian, to be honest I don't know and wouldn't like to advise you either way. For me I stopped taking the PPI's first before trying the probiotics

19

can i ask which supplements to started? also did you had heartburn as well.

20

which supplements you started? also did you has heartburn as well. i hope to get better soon because this is causing me too much anxiety. thank you!