my dad has just passed away from pf,he was diagnosed only 2 months ago after a routine op on his knee.he was given 2 years to live and died in weeks.i had never heard of pf and am devastated.
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My dad was taken into hospital in september and was only diagnosed two weeks before his death he was only 57. I like you am devastated, I had not heard of this terrible disease until then. My thoughts are with you
I am so sorry that both of you have experienced a sudden unexpected loss like this. It is devastating when you are not expecting it.
It is important that you both look after yourselves now after such a shock.
Warmest regards
Tessa
My Dad was diagnosed in May and I think the worst thing about it is the lack of information. I'm so sorry for your loss but would appreciate any words of advice that you may have. My thoughts are with you all.