Minha experiência com UFE

Saúde da mulher
1

I had UFE in February 2016. I had put it off after reading all the horrible stories of pain and infection but I couldn't delay any longer as I was missing work every month as I couldn't leave the house for 2 days.

I had tried Esmya and Zolodex but they had made little difference to the size of my fibroid. My only other options I was told were a hysterectomy or an open myectomy. My largest fibroid was about 9cm (7 fibroids altogether). I'm 45 and don't have any children.

The procedure was very straightforward, I remember it but the drugs made me very sleepy so I'm a bit hazy. I did keep getting asked about how my pain was but I never got above a 3. Afterwards on the ward and overnight I was expecting to be in a lot of pain but I wasn't. I didn't have a morphine pump which I used a few times but felt like I didn't really need to.

When I was discharged I was prescribed tablets but I ended up only taking a few paracetamol. I was actually worried that no pain meant it hasn't worked! I just felt a bit tired that's all. I did have a lump in my groin near the incision that had to be checked out but other than that I was fine. I had the procedure on Tuesday and took two weeks off work but could probably have gone back sooner.

It has made a difference to my periods in that I can now leave the house during then but they are still heavy and I have been anemic again recently. I've had 2 MRI scans and on the first my largest fibroid had reduced from 9cm to 6cm (after 7months) and then to 5cm (after a year). The other fibroids has reduced by a similar amount and one couldn't be seen on the scan anymore.

I'm waiting now to talk to the radiologist though as it's technically a success I doubt if that will really help and I will need to consider my next options. I wish I hadn't put it off as long as I did though. I just wanted to say that not everyone experiences lots of pain after UFE.

2

Bom ler isso, Iz, pois agora, se você está considerando cirurgia, pode ser capaz de considerar a cirurgia por videolaparoscopia, ou uma incisão menor se aberta. Também não tenho certeza sobre isso, mas se você está tirando fibromas tecnicamente mortos, não acho que eles sejam tão vasculares (embora alguns ainda possam ter fontes de sangue alternativas às artérias bloqueadas). Portanto, acho que seria melhor em termos de cirurgia para perda de sangue? Eu ficaria realmente interessada em saber o que seu radiologista, ginecologista e cirurgião dizem. Sou alguém que adiou por razões semelhantes e, quando fui para cada um, mesmo que o procedimento estivesse agendado, eles me escreveram e disseram que não podiam fazer (após viajar 800 milhas de ida e volta para ver um especialista IR) ele não tinha olhado para minha ressonância magnética, (mesmo que eu tenha certeza de que as imagens estavam lá) agendou uma data de UFE para mim e depois disso olhou para as imagens e disse que achava que o fibroma estava morto ou morrendo. Após outra ressonância magnética local e tomografia computadorizada este ano, meu fibroma tem um suprimento sanguíneo muito vivo! Fiquei extremamente confusa!

 

3

I'd never thought of that about the blood supply being less so making surgery less likely to be a lot of blood loss but it makes sense. I was lucky as my local hospital did the UFE, I would not have liked to make an 800 mile round trip! Did you get an MRI where they inject dye so they can see the blood supply better? I hope you get some answers soon

4

Oi Iz, sim eu fiz. Ele pode estar lendo entre as linhas que minhas estatísticas podem não ter sido consideradas um sucesso para o UFE e afetou sua avaliação para seu trabalho particular. Tudo pareceu muito desinteressado e me deixou totalmente no escuro,