Hi. I had my gallbladder surgery 15 months ago and it has been the most frighten time of my life. I live day to day in pain, fear, anxiety, hopeless, down. If it wasn't for my 16 month old baby I wouldn't want to live no more I think.
It started with painful esophageal spasms ,chest / stomach burning for over a year. All this time I was constantly worried and saw lots of doctors. Finally when I thought I was getting better I start having weird abdominal pain with lots of nausea, which has been diagnosed as inflammation in the stomach area. Taking PPI at the moment. I'm so worried again because I read it can be bile gastritis which is chronic and very painful. I forgot to say I had a MRI two weeks prior before pain started and it was normal?!
Has anyone got gastritis a year or so after cholecystectomy and found out bile was the cause? If so, how is it treated and does it work? I read it's hard to treat it, and diet doesn't help either. I can't sleep I'm so nauseated and worried. It seems I am not going to be normal ever again. I only wish that this is only a nightmare I'm about to wake up from.. Thank you.
Wow, I am sorry you are feeling so badly. I just had gb surgery 1 week ago. so far, I am feeling pretty good. Did you start feeling symptoms 15 months after or right away? Just wonder if its something unrelated to ur first surgery?
Leni75, je suis vraiment désolée d’apprendre que vous traversez de si gros problèmes. Est-ce que quelqu’un vous a conseillé de suivre un régime presque totalement sans graisse ? Nous devrions maintenir un taux de graisse inférieur à 3 %. Pas de chips, de crème glacée, etc. Les médecins ne sont pas formés en nutrition. Le mien ne savait rien des problèmes qui peuvent survenir après l’ablation de la vésicule biliaire. J’ai dû apprendre par moi-même. Je ne sauterais pas aux conclusions concernant des problèmes biliaires. Nous pouvons croire que nous avons n’importe quoi en lisant trop sur Internet. Mais il y a aussi de très bonnes informations là-bas. * Cherchez « régime après chirurgie de la vésicule biliaire » sur le site de la clinique Mayo. Cela vous donne vraiment beaucoup d’informations. Même certains types de légumes peuvent nous poser des problèmes. J’ai eu ma vésicule biliaire enlevée en juin et je commence enfin à aller mieux en suivant ce régime aussi strictement que possible. Je peux vraiment dire si je fais un pas en arrière… Essayez de ne pas vous inquiéter autant.
Désolé d’apprendre votre maladie, leni75, et j’espère que vous trouverez bientôt une solution à votre douleur et à votre inconfort. Je n’ai pas encore eu ma vésicule biliaire enlevée et j’espère ne pas avoir à le faire. Bien que constamment ballonné et malade, je ne peux pas manger, je ne peux pas dormir, donc je vous comprends bien. Je vais subir une procédure la semaine prochaine pour retirer une pierre de mon canal pancréatique, donc j’espère que cela soulagera mes symptômes. Prenez soin de vous chère et regardez après vous. X
Hi OrangePoppy. I've read about bile binders like cholestyramine and welchol but When a gastro doctor suggested I took that over a year ago, he also admitted it was more for people with the bile salt diarrhea. It also very constipating.
Do you have abdominal pain ( inflammation) with the bile reflux? And how have you been diagnosed ?
I know sucralfate is the chosen drug by doctors for that problem. I still don't know exactly what I have but I always thought bile because of not having a gb anymore. This gastritis is really hurting and not getting better.
Right away. Globe sensation ( lump on throat), acidic taste in the mouth, spasms in the gullet. Also diarrhoea for 6 weeks, nausea, loss of appetite. Same things improved others keep coming back, nausea and now abdominal pain. We're all different and all people I know that had this surgery are fine. But everyone gets time to time few symptoms even years after surgery.
Thank you Maxdex35. I hope so too. Just before my surgery, I had pancreatitis ( stone stuck on my pancreas) the pain was 10/10 that's when in the hospital, in one of my many A&E visits, they told me I had to have an emergency GB surgery because pancreas was now dissolving itself.
My baby was only a month at the time, and when they said I could die I thought the surgery was going to save my life so I could live to see my daughter grow. But I'm still so sick I wonder if I was supposed to have died after all. My life has been nothing but pain since end of my pregnancy ( gb attacks started) but I m still trying to be strong and enjoy every moment with my only child.
I think it might help you that procedure you're doing. Best of luck. Hope you get better soon.
Hi Breezybev yes just after surgery I was told about eating low fat. I've lost so much weight even my family that only see once a year said how thin I was.
I agree absolutely with you. People don't know what to eat, I also try to look for a diet online and it was more helpful than doctors. I had to give up so many foods but I'm glad, we don't need fried and processed foods anyway. I started to drink coffee a year after surgery again, and that's when my stomach started to hurt more. I stopped drinking again, due to the inflammation. I think my stomach was so massacrated for so long with all the bile and acids I have now gastritis. Coffe irritated even further not to mention all the stress I feel for so long.
Im seeing a specialist next week, follow up app after MRI scan, and see what he's says about this abdominal pain and If I can do other tests to show what's causing it.
J'ai eu la vésicule biliaire enlevée en avril de l'année dernière à cause de calculs biliaires.
J'ai toujours des douleurs.
J'ai récemment été diagnostiqué avec une hernie hiatale.
Je dois faire une prise de sang la semaine prochaine et si le taux sanguin est toujours élevé, mon médecin généraliste dit que cela indique qu'un calcul est coincé dans mon canal biliaire.
En disant tout cela, je vais mieux qu'avant et tout cela est vivable.
The doctor I'm seeing next week sent me last year to do a MRI scan to look for any stones left in bile duct or other abnormalities. It came back normal. I also had tests to check any acid reflux and hernias in my esophagus. All came back normal. My surgeon last time I saw him which was May last year, told me he couldn't do anything else for me after my reflux tests came back normal. My GP was the one that referred me to another specialist which I saw in August. He sent me for a MRI scan a thing my surgeon never did. I'm seeing this other doctor again next week and I'll tell him I'm with a lot of abdominal pain even though the scan show nothing abnormal. We need to find out the real cause of this inflammation in stomach. It's really running my life and I have such a small child that is so beautiful...
Have you heard of meridian testing? Its from a natureopathic doctor. I went to one a week after my surgery, to access my health afterwards. I only showed some fungus in liver and stomach. They can find if you have bacteria, viruses, metals, fungus, or toxins in your system.. I have gone to one for 3 years off and on. A natural alternative to finding what is ailing our body when regular doctors cant. I had a virus in my uterus that caused me pain for years, and doctors couldnt find a reason for my pain. Meridian testing did, after 6 months of treating with holistic drops, I rid the virus, and the pain. Just throwing this idea at you.
No I've never heard about meridian test. Thank you for the idea. I might try that if I can find someone in this area I live that do it. I believe that many times natural approaches can help a lot too.
Do you still get the right sided pain? I have that constant now, with burning. Have you looked into SOD? (Spchintor of Oddi) I hope that you can find what's wrong and get better quickly so you can enjoy your beautiful baby.
Yes I get sometimes some weird pain on my right side that is more uncomfortable than painful. What's hurting is the upper stomach because it's now inflammed. I'm really concerned Is due to bile backing up there.
I've heard about SOD that is when the spchinter between bile duct and intestine is in spasms or too close for bile/ pancreatic juices to pass down.
Have you ever had gastritis because of the bile refluxing? and do you take anything for BR? How do you control your symptoms?
For bile reflux gastritis, Carafate could help. Bile binders might help some, especially if you have diarrhea. Some say if will help soak up some bile and make things less irratating. Do you get any reflux up your throat? or hearburn? They can do an endoscopy to check for bile reflux gastritis. Some use Slippery elm to help coat and soothe.
Je suis touchée pour toi, leni75, surtout que tu as un si jeune bébé. J’espère et je prie pour que l’opération de la vésicule biliaire résolve ton problème. Ma amie a eu sa vésicule biliaire enlevée et elle jure qu’elle est redevenue normale depuis l’opération. Je vais prier pour toi et ton adorable enfant. Que Dieu te bénisse xxx
Thank you so much. I need to keep thinking I'll be better in the future otherwise I can't go on so worried and anxious as I am for over a year now. Your words mean a lot. Hope you find a solution for you as well and feel much better soon.
Have you had an upper endoscopy? (I can't remember if you mentioned) This could help determine if you have bile gastritis. Are you on FB? There is a group for Bile Reflux that is helpful.
Hang in there. Have you had your liver and pancreas enzymes checked again to make sure all is ok there? Keep us posted on what the dr says. I would insist on that upper endoscopy. That will tell you if you have bile gastritis.