It is three months since I last posted. I am still waiting for date for thr and as before am still suffering anxiety and depression. I just don,t seem to be getting anywhere. My main problem is the meds I have been prescribed really don't seem to be helping a & d or pain. My sleep is very iffy. I am seeing a counsellor on Friday for the first time and am hoping she may give me some tips to cope. I am anxious waiting for my appt. anxious about op and also frustrated because how do you get out and exercise when your hip is so painful. My consultant told me that my hip wasn't on the extreme end of requiring the op but as I was in pain he was happy to go ahead. I dread to think what pain some people go through. Also I have got Parkinson's Disease so wanted the op sooner rather than later in case my PD worsens. Thank you for listening.
Hi hun i know exactly how you feel. Im 19 and currently house bound and unable to work,(surgeons advice and jobcentre) i spend nearly all day in the house on my own till my family comes back from work and school so it does get very lonely. I was put on the thr list at the beginning of November and iv only just gotten the appointment for my pre op. It usually is aroun month that you hear something. i also sleep very badly put have recently been put on tablets to help with that, my pain meds dont really do much either and i find it difficult to even sit up straight for more than 20 mins without ending up in constent back and hip pain.
Everyone on this site is here for you. I hope things get better for you quickly x
Hi Sue
As a relatively new person to this forum, I am grateful you have decided to share your thoughts. I really feel for you - it must be very hard, with the waiting and not knowing, and that is without the PD factor!!
In order to endure your current journey, your are being tested to the max. Please try and stay strong, safe and brave.
There are alot of very kind people on this forum who will listen, hear and support you as much as possible. Please do keep us posted.
Man hugs
Michael x
Hi Sarah, I do feel for you I am not as bad as you because I can sit in relative comfort but then my stupid negative thoughts take over so I try and make myself do something. Thank you for your reply
Thank you Michael for your reply you have done the right thing joining this site. it is very helpful.
Dont ever feel like you shouldnt feel bad for yourself because someone else has it worse, theres someone out there who probably has it worse than me but that doesnt mean that there isnt day where i scream and cry because i cant even hoover or walk up the stairs without needing to lie down. Each and every one of us has something awful happening to us and i bet all of us try to push ourselves when we know we cant. Your amazing and of course your going to be upset and scared because thats normal. I really do understand exactly what you're going through. Ill always be here to talk if you need it.
Tks
So sorry you are feeling so anxious about the operation. I did as well beforehand, and understand completely that feeling.
Seeing a counsellor is an excellent idea, and it will support you in the coming weeks, it is a good idea.
In terms of actual pain Sue, it really isn't bad at all. I promise you. Obviously it varies from patient to patient, but I was surprised just how little pain I was in, and once you have taken your first step there is nothing to stop you from going out and walking (I had a christmas party at my house at 3 weeks) I went to the opera house a few days later, it is all fine. It is a major operation and the first days are not easy, but after that it is completely fine. I think you may be pleasantly surprised. My honest thoughts were that why on earth did I fret and worry for so many years, and truly wish I had had my operation sooner. And more than that I shan't making the same mistake again with my left one. I will definitely be there like a shot.
Waiting will serve nothing more than prolonging the pain and anxiety, and you end up at the same outcome, so waiting is pointless if the result it is the same. Better to have the operation when your muscles are still strong, your recovery will be much better.
We are all here to support you, 247, so just post away whenever you are feeling stressed and worried and we will tell you our honest accounts, and feelings and support you in any way we can. After all, it is a big thing for anyone to go through.
Sorry Rose I wasn't very clear it isn't the pain after the op that I am worried about (I will add that to the list later) it is the pain now. Thanks for your positive reply.
Morphine patches are very good, what are you taking now?
Oh Sue - I can feel your pain from here. I am so sorry for your troubles and I sincerely hope that the counsellor will help ease your pain and worries. A good friend has Parkinson's, so I understand very well why you want to move forward with your hip. I am glad that the surgeon understands this and agreed to help.
I have been so lucky moving through the queue that I feel somewhat guilty btu my osteo is quite advanced so I think they want to get me done before I fall again (the last one broke my ankle, both bones in my arm and four in my hand). And it is a pretty crazy winter here in Ottawa (Canada) this year with lots of ice and rain making things quite slippery, so I am being very careful (with many warnings in my head from friends and family, not to mention my surgeon).
I really hope you get your date soon and that they start managing your pain, sleep and worry better.
With warm regards from a Canadian 'hippie'.
Meptazinole and Paracetamol. I was on cocodamol but they hardly had any effect. My GP is wary of giving me too much in the way of painkillers due to my Parkinson's.