Hi everyone, I have recently been diagnosed with trigeminal neuralgia. I haven't been able to wash my hair or face in days because of the pain. I started Tegretol 5 days ago. 200mg once per day in the first week and from next week I will increase the dosage to 400mg per day. I feel right now as if there is no hope of any pain relief. I appreciate Tegretol can take time to take effect, but is there hope?? When do you know that it is safe to touch or wash the problem areas? I feel so depressed right now. Thanks for listening. xx
was diagnosed Monday with TN type 2. ive had this debilitating pain for going on 3 weeks. my neurologist told me that it could last a short time or could also be chronic.. he prescribed me oxtellar xr and pain killers. i have almost went absolutely insane over this pain . pain that drops me to my knees grasping my left jaw. its undescribable.. only hope i know of is surgery.. dont want that but it has to be better than this pain.. i pray you find answers and hope.
Hi Keith71841,
Thank you for your message and I’m so sorry you are going through the same pain.
I am meeting my neurologist again this week to ask about surgical options.
I am not holding out much hope for the medication I’m on.
‘‘i pray you find answers and hope.’’ Ditto!