A family member sent me a cute little picture with the following printed on it:
Rx for chronic pain
Sunshine
Rest
Healthy diet
Stay busy
Positive thinking
Exercise
Well sure! Why haven't I tried these before??
Tonight, while I lay here with every nerve in my back on fire and aching - while I pray for just 2 hour's of uninterrupted sleep and try to find a comfortable position to lay in that won't cause my hands and feet to fall asleep and tingle...I will just try some more freaking exercise!!!
Hi Beachgirl,
sorry, but I have just read your message and have a big smile on my face. Your pain is not funny, it's just the way you ended the message which made me smile.
I'm sure people mean well when they come out with all this advice, but sometimes I get the impression that they are being a little patronising. x
De verdad siento por ti beachgirl57...nadie sabe lo que realmente es...probablemente tengan buenas intenciones, pero simplemente no saben qué hacer..nada de eso quitará lo que estás pasando...ánimo..te envío un abrazo suave desde el otro lado del mar...estoy en remisión..en este momento..ahora solo tengo brotes malos..pero hay luz al final del túnel..gracias a Dios...llevo diagnosticado 30 años...muchas condiciones autoinmunes diferentes,..🤢.yuk, debo decir que los primeros 10 años fueron los peores..espero que mejores días estén por venir para ti..que seas bendecida...cuídate..ten un lindo día..😘😘😘
Hi beachgirl,
Im sorry for your frustration, though I'm sure your family member meant well people tend not to understand illnesses. My mom had MS and after a good 20 years of living with it I caught her brother about to send her a leaflet he had picked up on "learning to live with MS". Thankfully I managed to dissuade him from sending it just in time. He meant well, but....it was rather like what your family member did, so I guess at least it's not just us fibro sufferers that get it.
hope this helps 😊
Hi beachgirl 57 I understand how you fell with pain but this made me chuckle with the end part. Thanks for cheering me up on yet another sleepless night 😊 kirsty x
I think the only people who really understand fibromyalgia, its symptoms, and how it makes us feel are the other people who have it. The family member obviously has no idea how you feel or they wouldn't have sent that. I wish everyone could be educated about it and not think our symptoms are made up or exagerated. I understand your frustration.