I was recently diagnosed and it was pretty bad. I thought that I had a yeast infection but it turned out to be this. Prescribed a strong steroid cream and been using for a week now. So far, it only makes my vulva inflamed and still have itching and pain with urination.
I dont like the idea of having to take steroids long term and I am looking for a more natural treatment ! Help !
Emuaid MAXX on Amazon and then Emuaid regular formula. It took 10 days for all my lesions to heal, all pain and itch to go away. Changed my diet ( no sugar, little carbs, no soy, low oxalate), balanced out my supplements and lowered my stress.
I now moisturize with coconut oil or Medline soothe and cool Aloe with Vit A, D, E.
Only have a tingle if I eat sugar or too much bread. I hv to give up Gluten next!
Good luck to you!
Thanks Karen! I mentioned my hesitation at taking steroids long term and she is still persisting that I at least finish my RX to get it under control and then lowered the dose , like twice a week .. forever.. lol.
Forever is a long time! 🙄 I hv a lot of reactions / allergies to things, so if I can treat it naturally with diet, supplements and creams like Emuaid, that’s my path. I did fill the clob script and I hv it if I need it, but teying to hold off! I also bought the 100% Food- quality Borax on Amazon and may tey the Borax and water paste on the cotton ball to see if it helps clitoris hooding. It still responds to stimulation, but not as sensitive as it was....
I was only diagnosed a few weeks ago but I was given intragel that helps numb the area as well as clob steroid cream I’ve also bought OB YES which I find really soothing
Hope that helps
Hi Karen, did you need to apply the Emuaid to the outer areas of the labia majora…(.onto the hair )and groin areas aswell or just on the vulva and inner labia minora etc ? My LS diagnosed area was just at the entrance to vagina, just a bit of redness,no itching/patches anywhere that I can see but recently, I’m experiencing a kind of soreness on the hair section of labia lip, radiating to the groin area on same side and a tingly sensation so unsure if spreading spreading! Feels a bit sore/irritation kind of feeling like when you’ve got a bit of sunburn to your skin. I use clobetasol ( dermovate) for the vulva area but I’m concerned if I apply more of it to the mentioned area aswell, .that I’ll be using way too much of it as the one finger tip dose , wouldn’t be enough for it all . Any suggestions would be helpful. !
Hi Becca, I was diagnosed in November 2019 but had symptoms since February 2019. Crazy thing is I had never heard of such a thing so I just thought it was something that I was doing that caused me discomfort. It wasn’t until I saw my skin change to a bright raw looking color that I said “this can’t be normal” Maybe I didn’t give the steroid cream enough time to work, I do not know but it did absolutely nothing for me. My GYN made me feel like there is nothing else and I just have to live like this. My symptoms now are so bad that I feel like I have lost control of the situation. In the past 3 weeks I have experienced open sores that do not heal, pain, swelling, itching that keeps me up all night, dryness, peeling skin and depression. I keep seeing ads for Emuaid but haven’t tried it. Not because of the price but because I was skeptical. I use Vitamin E, Aquaphor and even neosporin for the cuts. I heard baking soda helps but in my case since I have open cuts, I am afraid it will burn. If anyone has any advice for me, I would greatly appreciate it.
Hello! 
I used baking soda a lot before I knew what this hell isI also have the fissuring above my clitoris my gosh it is painfulI bought clobeta sone online but I havent gone to the dr yet its obvious what it is the clo does work
I went into remission for almost 2 years i sure wish i knew what caused that but baking soda provides a lot of relief we installed a bidet and that is helpful but I just used a tsp in the shower and washed with it I just bought some terrasil, it should be here tomorrow will check back with my results
Hi I too have this problem try a good urinary tract probiotic, oregano oil capsules 1000mg, hot water washes in shower and apply organic castor oil or organic apricot kernel oil. Also multi gyn gel works but not on open sore… at times. This system will work … It won’t cure you but it will provide a lot of relief. Silver water too … Hope this helps
Thank you! I have to say that when this happens I tend to get really anxious and try so many different things because I become desperate. It is hard to tell which ones work. I will tell you this though, today as I write this to you, all those symptoms that I thought were never going to end last week have totally disappeared. I am in shock and although I am excited, I am annoyed because I wish it just wouldn’t happen at all. I tried boric life vaginal suppositories (ordered on amazon) and today will be my 6th day using it so I do not know if it was that, or just coincidence but I figured I come on here and share it with you all since we are all desperately trying to figure out what works for our bodies. I was really scared last week. My symptoms were really bad and painful. I wish we knew for sure what causes this so we can fix it.
First off, I love the user name lol
Second, thank you for the advice and sharing what works for you. I will keep what everyone is saying in my notes so that I can try them .
I tried boric life vaginal suppositories (ordered on amazon) and today will be my 6th day using it so I do not know if it was that, or just coincidence but I feel back to normal ! Last week, I didn’t think that was going to happen for me. I was in so much pain and I felt really depressed. I just wanted to share what I used in hopes that it can help someone else.
All I did was apply regular emu oil bought at the drugstore that I would rub
inside and out the vagina. Every time after urinating I would reapply. Nothing
else than emu oil, only then I started to feel comfort. I had read online about
purple emu cream but had no time to buy online. I can reassure you I was
finally sensing ease. I kept reapplying and I never had the burning and aching
pain any longer. The most popular benefits about emu is it’s anti -inflammatory
effects. I hope it does help someone as much as it did help me. I bought emu Dundee
oil 100 percent pure. If ever it saved you write me a message on fb Nelly Hunt
from Chandler, Quebec
I’ve been struggling with this for nearly 2 years. At first it started out with patches on my breasts and when I saw the skin specialist he said that was easy to treat but if it got in the vaginal area it would be harder to treat. Low and behold patches on breast went away but then I got it in the vaginal area. I started out thinking I could do this and started with an over the counter cortisone cream. It helped for awhile but then I talked to my dr more and he sent me to a diff specialist. I got a steroid cream from her and at the beginning it helped more. But now? Applying any cream becomes irritating at night when it’s at it’s worst. I can’t seem to have any added moisture down there. I not only have it around the hairline but also around the anal area. I use vaseline occasionally but it is seriously getting worse. I’m not able to keep going to the specialist as I’m not always able to get time off work.
Recently I’ve started having pain my groin area and it gets quite painful to walk. With Covid on, dr’s are doing mostly phone appointments and if necessary will take a patient in. My fear is that the LS is somehow to blame.
If I were you I would stop all steroids they only thin the skin and make you more prone to the problem. Steroids are only good for short term usage,. I would look at my diet cut out most high sugars as in cakes, chocolate etc.. Whole fruit is fine, but not straight fruit juices. Wash the area with warm water and an organic oil such as caster oil, pat dry all effected areas, in areas like under your breast/groin fold a dry gauge into the area. In your vaginal area generously apply the organic caster oil and continue to reapply it throughout the day. Use a hot water bottle to take some of the sting out. Wear loose cotton underwear, drink lots of water, take oil of oregano, a good Urinary tract probiotic and in between apply multi gyn or vagisil. Hope this works for you.
Hi Everyone, I’m new to the forum.I have been having symptoms in my mouth since December 2019 and eventually was referred to see a Consultant at the hospital who diagnosed Oral Lichen Planus, though still awaiting a biopsy due to COVID-19 for definitive diagnosis. However, over the last couple of months I have started to experience intense redness around my Vulva area and some itching. Although this may be Lichen Planus, I do suspect its Lichen Sclerosis as these two conditions are common. What I wanted to ask was, have any of you had lightened patches of skin (pale whiteish)? As I have noticed a small patch on the outside near the perineum area and on one side inside of my labia.
Hi @anne87765, I appreciate you are trying to help but we must be careful in advising others to stop using the medication prescribed by the doctor. I share your concerns about skin thinning etc however my own doctor has informed me that the medical evidence does not show this for patients of LS unless they are using it correctly. Whether that is the case or not, I’m just advising caution telling another LS sufferer to stop using the medication prescribed to her…
Totally new to this site and have never used any sort of forum before so apologies if I’m not using correctly but I am almost in tears reading messages on here. Sat irritated and itchy at 2am and found myself scrolling. I feel so guilty as i know I’m not terminally ill but I have been struggling so much with my LS. I was diagnosed around 6 months ago and sent off with steroid cream to use every night and I can honestly say It hasnt helped and i cant catch a break! I’m only 27 and away to get married. this is taking over my life! I feel like I’m becoming depressed as well over it. I felt like I was the only one in the world who had it and then I found all of you! I dont have tears in my skin or cuts I’ve only had 1 flare up that resulted in cuts and blisters and scabbing and none since. However I am just constantly itching and in pain, when I go to the toilet I cant help but itch and rub which probably makes it worse but the urge is too over powering. My gyn called me weeks ago and wants me in for a biopsy but I’m really reluctant to have this done! Has anyone had it? Any recommendations for treatments people have found effective will be so appreciated!
Hello! I was diagnosed with LS when I was 23. I’m 27 now, and wanted to share my success with laser therapy. When I first started experiencing symptoms at 24, I did a lot of research and tried the usual methods of borax, essential oil/castor oil blends, and the prescribed steroid treatments. Nothing was working to reduce my itching and pain. After about a year, I came across information about laser therapy. Specifically, the Mona Lisa Touch treatment. This machine was originally designed for post menopausal women to reinvigorate the vulva and vaginal opening to increase collagen, natural lubrication, and overall improve sex for older women. I am lucky enough to have a clinic 30 minutes from me that had the Mona Lisa Touch laser available, and they had been using it for LS patients. The Dr I saw prescribed me with 6 treatments, one every 6 weeks. I had the scarred areas lasered, and after only 4 treatments my pain had subsided significantly and the scarring had stopped spreading. My doctor reduced the price for LS patients. Mind you, it was still pricey at $250/treatment at the reduced rate. She did say she could recommend to my insurance to try to have them help pay for treatment, but I did not go this route as I had just turned 26 and was switching to my own insurance. Regardless, it was well worth the cost in my opinion.
It’s been over 2 years since my last treatment, and I have not used any other medications or natural remedies for my LS since my last Mona Lisa Touch treatment. I’m still virtually pain and itch free. I do experience some slight pain with intercourse, mostly due to the swelling when aroused. I have also found that a silicone based lubricant helps immensely with penetration.
I hope sharing my experience and success with laser therapy will help someone else dealing with this horrible condition.
Jackie, I first noticed a single white spot on the inside of my labia. I had no itching or pain at the time, but went to several doctors for multiple opinions. Some thought it could be vitiligo, as 23 is very young for a LS diagnosis. I eventually got a biopsy done with a tissue sample taken from my labia spot to confirm it is LS. Unfortunately a biopsy may be the only way to confirm. Best of luck to you!
I just posted a reply to OP, but wanted to reply to you individually so you could see my response (below in the thread). I’m 27 too, and I know how absolutely scary and heartbreaking a LS diagnosis is. I hope you get a biopsy done to be sure. The earlier you know, the earlier you can begin effectively treating it. I definitely recommend the Mona Lisa Touch laser therapy as treatment if you can find it in your area. Good luck!