Niemand weiß, was los ist

So I have a lengthy history of what's wrong with me and I'm hoping someone can chime in with some help. So I am an extremely active athletic person before this health problem I was never sick never got hurt had nothing to do with hospitals, now 24. in the summer of 2015 I began experiencing things totally out of the blue. I began getting sharp pain in my stomach and I started to get a lot of canker sores. I was working one day and my neck felt tight. My neck usually got tight every now and then because I played 10 years of football and had multiple concussions (7-8). So I went to the gym that night, I was a very active lifter and did shoulders (heavy military press). When I got home my neck stung so bad I was convinced I slipped a disc. That night my feet started tingling. Next day I went to the doctors they took X-rays and didn't see much but wanted an MRI. Got an MRI was told I had a very small stenosis in my neck and degenerative disc disease but that it wasn't affecting my spinal cord. I was told to just go neck excercises and to go to chiropractor. My neck pain went down but to this day I still have a tight neck on one side that gets very sore, like a dull pain. A couple months passed with the pain and I developed muscle muscle fasciculations all around my body. One moment it would be in my calves then it would be in my triceps then in my cheek etc. got worried went to doctors and was tested for Lyme came back negative. Doctor said they were benign and to not worry about it. Then a couple more months pass and i develop eye floaters in one eye and I develop really blurry vison but it would come and go. Went to eye doctor and was given glasses for distance. I also was told I had a stigmatizm in one eye. More time passes and develop a ringing in my ears which is still to this day pretty constant. My joints began to hurt standing killed my knees and if I decided to croutch my knees would be destroyed. I again put that with years of lifting and football. My vision was affected again now with the floaters in my left eye i also have clear circles and strings in my vision, I also get this little circles that I can see flying almost in formation in circles when I look at something light such as the sky. My foot began to feel weak so I was convinced I had ms with all the symptoms I was experiencing. My doctor pretty much told me I was crazy for thinking Ms but got tests done anyways all tests including MRI and neurological visit came back negative. I went on through out the summer with most of the same symptoms some would come and go. Then this past winter I started to get worse. I started to get testicle pain random sharp pains I began to wore because well who wouldn't. I started to develop floaters in my right eye as well so now I have them in both eyes. I started to get cold spots on my feet and legs but my legs were warm. I started to get the cold spots on my hands and forearms. My hands started to feel like they shakenvey slightlty. I developed this very tight feeling in my throat like my muscle in the front of my neck were like constricted. My lymph nodes began to blow up. So again i go to the doctors and she tells me it's my slavitory glands that are enlarged under my jaw and beneath my ears. I was in the midst of getting a law enforcement job so my doctor told me it was all stress and anxiety and she believes that I have health anxiety. Even though i expressed my concerns with ms she said that the symptoms are too symmetrical and that I need to stay off the internet. She scheduled me with a neurologist to test for nerve damage for the cold feeling. I also took the western blot because my joint pain got worse and i have cracks in my shoulder and knees whenever I move them. It came back positive band IGG 41. That is it. She said it was inconclusive of Lyme and that it meant I was just exposed to it at some point as I live in Massachusetts I am very suseptible. I know that I am not crazy because I know my body I have done sports my whole life, I know my body and I know when something is wrong.

Side note. I was tested as well for my thyroid which came back low so was tested again and came back fine.

Hey,

Nach dem Lesen kann ich mich total mit deinen Symptomen identifizieren. Im Sommer 2015 traten bei mir die meisten der oben genannten Symptome auf: Augenflimmern, Taubheitsgefühle und Kribbeln, Muskelzucken, Kopfdruck und ein leichtes Schwindelgefühl. Ich zittere auch sehr, wenn ich Liegestütze oder Klimmzüge mache usw., aber das ist mir vorher noch nie passiert, und ich war immer sehr aktiv. Ich bin übrigens ein 25-jähriger Mann. Und bis heute habe ich diese Symptome immer noch. Ich habe eine Rücken-MRT und eine Kopf-MRT gemacht, alles war unauffällig. Ich war bei einem Neurologen, der sagte, dass ich mostly in Ordnung bin, dachte aber, dass ich möglicherweise stumme Migränen habe und verschrieb mir Betablocker (die nicht helfen). Ich war bei einem Augenarzt, der jede Augenprobleme ausschloss. Ich hatte eine Röntgenaufnahme des Nackens, die in Ordnung war, alle Bluttests waren in Ordnung. Ehrlich gesagt, ich habe wirklich Schwierigkeiten herauszufinden, was das ist. Es ist offensichtlich etwas. Ich gehe zur Physiotherapie wegen des steifen Nackens usw. Ich habe auch einen geschwollenen Lymphknoten unter der Haut auf der linken Seite meines Nackens, der schon seit Ewigkeiten da ist (der Hausarzt sagte mir, ich solle mir keine Sorgen machen). Das Einzige, was bei mir auffiel, war eine massive Unverträglichkeit gegenüber Milchprodukten (die ich erst in den letzten 10 Tagen von meiner Ernährung gestrichen habe). Ich bin skeptisch gegenüber Nahrungsmittelunverträglichkeits-Tests... Meine tägliche Motivation ist so niedrig. Vorher war ich ein sehr geselliger Mensch, aber jetzt habe ich keine Motivation für irgendetwas, es ist so frustrierend!

Das oben genannte hat mich natürlich ängstlicher gemacht, da ich keine Ahnung habe, was mit mir nicht stimmt. Mein nächster Schritt ist wahrscheinlich, mich auf Lyme-Borreliose testen zu lassen, da es meine einzige Option ist, da ich pretty sicher bin, dass mein Arzt es satt hat, mich zu sehen...

Wurden Sie auf Infektionen getestet, die nicht Lyme sind, wie EBV, CMV. 

Es scheint, dass Sie möglicherweise eine reaktive Arthritis durch die Infektionen bekommen haben, die möglicherweise auch Ihr Sehvermögen beeinträchtigt hat. Schmerzen in den Hoden würden ebenfalls daraus resultieren. 

 

I was not tested for ebv or cmv

Es ist häufig (85% haben es), diese Infektionen zu haben, daher werden sie nicht darauf getestet. Aber Ihre Symptome könnten davon stammen und sie können auch durch sexuellen Kontakt übertragen werden.

It would be interesting to see if you also test positive for exposure to Lyme. My doctor is not an llmd and I have heard from many people that testing positive on the western blot even partially is good enough to be diagnosed with the symptoms we present.