Hi all. I've posted before asking questions and everyone here has been so helpful but now I have another question - sorry. I'm in UK and wanted to know if I can ask for copies of my FBC results from my family doctor (who is a stranger to me actually). I would like to ask for print outs for say, the last 5 years at least, so I can decide whether I need to see a haemotologist. Last family doc (GP) visit showed me on screen my results and he scribbled down 166 HGB (?) and polycythemia r.v. I can't remember other results. I'd like to know what steps to take, GP not unduly concerned. I'm a 67 year old female, Oh to add GP did say 'the expensive tests have to come from a haemotologist' I think he meant jak2 gene tests? I'm just so confused and lost. j.
Sí. Todos los registros médicos a los que tiene derecho.
Si su médico no está preocupado, entonces busque otro médico.
La policitemia no tratada puede ser mortal.
Infarto. Ictus. Trombosis. Y mucho más.
Hello jessie, I may be completely wrong but I thought tgat under the Data Protection Act you were allowed to see all the records held by your GP.
No doubt someone more knowledgeable will be able to confirm or deny that in a short while......
Todos tus registros médicos te pertenecen. Acceso completo a todo
Hi pete. Thanks for your reply. I am already fed up with this disinterest from GP. I really don't have any symptoms, just my FBC resuts and I don't want to be seen as a hypochondriac. j
Thanks angela. I was allowed to "see" the results, but wondered if I could ask for a printed copy of them. Not sure of my rights here ! j.
No tuve síntomas hasta que sufrí un gran ataque al corazón. Afortunadamente, estaba en forma y era joven.
Thanks pete. Goodness I feel somehow I'm wrong to ask for copies so I can see the results. Like I'm wasting NHS time. j.
pete that is dreadful. Did your FBC results show problems that should be investigated?
I used to trust doctors but now ??
Jessie.
Tenía altos niveles de hemoglobina durante 2 años y el médico no dijo nada. Así que pensé que estaba bien.
Hasta que tuve el infarto.
Coágulo de sangre en la arteria principal. Bloqueado al 100%. Debería haberme matado.
Sin embargo, apenas me afectó.
pete - thanks for your reply. Are you OK now? Do you have ongoing meds. or treatment? You were so fortunate could have been fatal. j
Jessie
Estuve bien. Incluso cuando tuve el infarto. Lo único que tuve fue vómitos.
Mi tratamiento es una aspirina al día y donar sangre cada 6 meses.
Tuve suerte de estar muy en forma
Absolutamente debes obtener copias de todas tus pruebas. A veces, si le pides a tu médico que lo añada en el requisito de análisis de sangre, la clínica que realiza las pruebas también te enviará una copia a ti y a tu médico. A veces puedes tener que solicitarla (y pagarla) a tu médico. He mantenido una hoja de cálculo de todos mis análisis de sangre durante años y me permite rastrear lo que está pasando, además de llamar la atención de mi médico sobre cosas que ella podría no haber notado. Mi médico no notó que tenía PV hasta que pregunté por qué mi hemocrito había estado aumentando.
Thanks for your reply andrew. I;ve only recently learnt how necessary it is to inform oneself of these things and keep one's own check. Good job you queried your hemocrit, doctors aren't infallible are they.
Hi Jessie. Yes, after you are referred to a hematologist, he will test for jak2gene mutation. Then he may prescribe medication or may do blood draws to lower the hgh red blood count. You must see a hematologist . Best wishes
Hi Jessie you must get a second opinion, my doctors were very good blood tests every 2 weeks then went to see a rheumatologist who then referred me to a haematologist all within 6/8 months. Found the jak2 mutation blood taken every few weeks for 12 mths all under control now. I have blood taken every few months now hope you get better soon.x
Not sure how it works in England, but in belfast I can see my medical records if I choose to. I think I only have to give notice in advance. Can't see it being much different where you are.
Hi Jessie regarding medical records, we got copies of my wife's but it was on a court order! I think u can see records but copies am not sure regards
Hi Jessie. I had a routine blood test and my Dr thought the Hb was high, "probably nothing to worry about" so referred me to a haematologist. She found the JAK2 gene problem was the cause of my Polycythaemia RV. I had no symptoms to speak of (apart from ones that could be menopausal too) but the haematologist made me aware of the seriousness of the condition. I have a monthly blood test and if my HCT is too high I have blood drawn off. I am on a daily aspirin and have been advised to try to drink 3L of water a day. It's hard to motivate yourself when you have no symptoms though! I don't see why you shouldn't have a blood test for the JAK2. See another doctor and ask to be referred to a haematologist. Alison