Thanks for your kind words Starr, I really appreciate it, I wish I were more Godly in my actions I struggle too a lot of the time. Just grateful for His mercy. Hoping you are feeling okay today, still rooting for you!
Craig
hi you really perfectly describe all the symptoms of Sjogren's syndrome especially when you talk about the dryness. it can have neuro type issues like the ones you describe. I would suggest a consultation with a rheumatologist or an oral immunologist for a review of your symptoms.
Just want to reassure Starr also that the symptoms you describe can be classic mono too and if you have a diagnosis of mono then the likelihood is that it is mono causing the symptoms and nothing else.
I know everyone is trying to be helpful when suggesting other things that could be wrong but I really don't want people worrying unnecessarily either - whilst at the same time if there are any concerns about anything it's always wise to check in with the doctor of course. I'm afraid I don't know enough about Sjogren's or anything like that to comment, but just want to reassure that the vast majority of people with mono can experience horrible, intense and wide-ranging symptoms for an extended period but then make a full recovery.
Certainly it's always wise to discuss concerns with doctor / consultant though if unsure or for reassurance.
Craig
I think any sensible approach will simply rule things out which can often be done by seeing the right sort of specialist to evaluate symptoms. I think that classic symptoms of mono, yes, but a full work up would obviously rule out anything else going on. It's not about worrying about symptoms. In fact it's the opposite of that. I was constantly disregarded and told to 'not worry' about symptoms I had going on. That was a bad way to live really with symptoms not being treated and being dismissed as all in my head or due to stress (I am the least stressed person I know). The sad fact is that doctors are constantly dismissing and overlooking symptoms based, often, on little knowledge themselves and an inability to diagnose tricky disorders. They are failing continually to refer people on when they don't have answers. That results in people suffering often needlessly. The illnesses I talk of are not a death sentence and one can lead a full and normal life with the appropriate treatment of which there are many out there. Venus Williams is a very famous sufferer of Sjogren's. The fact is, with early detection, diagnosis and treatment people have a better chance of going into remission and leading a very normal existence. That's not to say that this lady has anything like that. But if you're worried enough or feeling unwell enough to be looking for answers on here then I think a medical investigation should be forthcoming. I know, I suffered needlessly for a lot of my adult life finally getting a diagnosis close to 40. I have now been in remission for 3 years with no treatment and 5 years with treatment. Our wonderful NHS when it works is amazing. People should have access to appropriate diagnostics and treatment options if necessary. Knowledge is power. It, in the end, can only help.
how severe/often were your headaches STAR?
This is my second time getting Mono. I am 8 weeks post partum. I've been into the urgent care 2 times and I've been admitted once. I have crazy heart palpations. I get jolted awake put of a dead sleep heart rate in the 120s and stays in the 100s I can feel my pulse all over. My face is tingly and my left arm and legs are also tingly. I also feel like I'm getting internal tremors. I feel like my body cannot stop moving. I've noticed weakness in my legs when I stand and I'm dizzy. I also noticed a tremor in my left hand so of corse I'm freaking the I have parkinsons or MS. I also feel sore and I get muscle spasms too. I wake up hott all over like hott flashes and my feet are always sweaty and when I try to rest at bed time my legs are restless. All my blood tests were normal other then my liver enzymes were elevated cuz I have glycogen storage disease and they said the fast heart rate is the virus. can anyone else relate to these symtoms. I'm a little scared I feel like my anxiety it on overload it is so hard to take care of my 2 month old. they discharged me and I don't feel much better.
Hey Kimberly,
I can definitely relate to the chest pain/heart palpitations that wake you up at night. These have now mostly subsided for me. I know mono can play a very heavy role on you mentally. I found that doing some deep breathing exercises/relaxing as much as I could before bed would keep me from waking during the night.
I also currently 4 months in and have the tingling feelings and intense muscle stiffness/occasional lightheadedness when walking around. Many on this forum and in past threads have dealt with these symptoms and EBV/mono does an excellent job of masquerading as other diseases.
Best remedy is to rest (easier said than done) and you can always come back to these forums when you need words of comfort - it's what I do as well.