Have any of you had certain muscles randomly tremble since getting mono? It's not constant or everyday, and it usually only lasts for a few seconds when it does, but I've had it happen in my thumb, my feet, and once in my thigh. I'm on month 7 (almost 8), and am still very fatigued and with joint pain (and occasional stiffness). Doctor won't do anymore blood tests since they were clear last time apart from EBV and slightly low vitamin D.
hi sorry about your pesky symptoms
yes-i have had that-full body/all over its horrible but it happens a little now and was more prominent in the early stages. I cannot even begin to tell you all of the terrifying things ive felt/still feeling?-! I'm on your timeline-was hit overnight***^ 8/14/18
wow -a complete nightmare!- started with; throbbing burning tight muscles fever nausea dry cough headache fingers curled first week (i thought i had parkinsons) radiating weakness/pain/spasms/jolts/tingling/dizzy/anxiety/shakiness/muscles feel strange/after use-stiff still/rash on arm/ endless short breathe no appetite -early on more muscle twitching pain after barely moving dry mouth brain fog upper spine pain neck pain back pain joint pain knee pain tingling depressed fatigue so bad it makes you feel ill sleep issues im probably missing some*
now: still tired/fatigued pain still legs low back upper back jello legs stiff legs throbbing all over slightly weakness shakiness sore back no back issues prior spine hurts joints hurt again nausea at times headache muscles feeling "wonky" still ugh TIRED OVER NOTHING^^* everything still feels off i just still feel sick-
i hope you are resting and eating well/hydrating.... good luck with all and healing prayers to you!
what other symptoms have u had throughout?......
thanks StarrA
Hi Ciela,
Just want to offer some encouragement based on my own experience with this dreadful virus that after 7 and 8 months I was still feeling not at all great, fatigued and with that awful low grade running fever and I just was struggling to see any kind of major breakthrough in terms of recovery. I also had a terrible spell with joint and muscle pain and weird kind of bruising around the 9 month mark too which really got me so down and I just felt I had nothing left was so weary and discouraged at that time and just didn't know when or if I was going to get better.
But God turned things around for me after that Ciela which I was and am eternally grateful for. I believe that joint pain and bruising phase was significant in that it was almost like the last push of this virus before my body started to get it under control. Thanks to God only I started to see a real change after about 10 months, and even though it took me a little while to get back to full health and strength, life became so much easier and the burden started to lift significantly and was able to enter a period of recovery and healing again thanks to God only.
Tremors is something that I definitely think can be a common symptom with this virus, have learned that from reading lots of people's stories on here. Your body and nervous system takes a real knock for six with this virus and these kind of symptoms certainly can occur. I want to reassure you that this can be normal and is something that for the vast majority of people passes as their body starts to feel better. Of course it's always wise to check in with the doctor if any concerns and hoping they can give good advice and put your mind at ease.
In terms of vitamins and herbs, I think anything targeted at helping and soothing the nervous system can be good to try for tremors and things like that - a B complex vitamin would be the no.1 thing I would recommend for sure, but also herbs like cayenne pepper and chamomile I've found so helpful in soothing my body too and definitely would recommend. But of course always wise to check for any interactions with other conditions / medications before starting any supplements, I'm no expert in these things just going on my own research online, etc, and what's helped me.
Hang in there Ciela - don't give up - this terrible virus DOES pass and you will get better, it just takes time unfortunately and very much hoping and praying that you are moving out of the intense phase and into a phase of healing and recovery very soon - thinking about you and you WILL get better, I truly believe that given my own recovery experience and timescale and reading the recovery stories and timescales of lots of others who were still struggling at 7-8 months and went on to make a full recovery with God's mercy!
Craig
Hi StarrA,
I had a lot of the symptoms you do (and currently still have weakness too alongside what I already named).
Weakness, muscle jolts sometimes, anxiety, shakiness, shortness of breathe, no appetite, muscle twitching, dryness everywhere (nose included), brain fog, severe knee pain, depression, sleep issues due to increased anxiety, extreme fatigue (so bad I could barely walk), nerve pain from my low back all the way down to my toes, jelly legs, stiff joints (especially legs), throbbing muscles, popping joints (more than usual), weakness, shakiness, neck pain that turned into headaches, joint pain, nausea.
I still have brain fog and nerve pain in legs alongside the shakiness, weakness, fatigue, and joint pain and stiffness.
I hope everything turns around for you soon and that you feel much better!
Hi Craig,
Thank you so much for your prayers, reassurances, and the vitamin recommendations! I'm thinking vitamin deficiency may be what's making me crash so hard, I definitely need to look into those. I just wish the doctor would have been right in saying it would probably only last 2 months...
Thanks for your kind words Ciela. It's so hard I know, the doctor told me too it would only last 6-8 weeks. I think it's the common line they give everyone but in reality unfortunately it can take a good bit longer, but it doesn't mean to say you won't get better or get through this because you will.
I've not had a great weekend myself, last couple of weeks have been hit with some real neck pain and it's been intense and frightening and panicking me a bit, feeling a bit overwhelmed, had been doing much better lately as well and just praying for God's help for us all Ciela at this time.
Hoping for a good and settled week ahead for you and us all on the site.
Craig
my dr said 6 weeks this would be gone! wow im on month 7+\almost 8 months...... medical community knows nothing of this dreadful virus nor have they experienced it so it is impossible for them to give us any accurate information, and its a shame we're on our own.......
we all have e/o and this forum has been more useful than an 8+ yr degree/dr !!!!
we'll get there....... healing prayers to you!!!!!!!
I know Starr it's amazing how so many doctors seem to minimise the intensity and severity of this virus. They seem to dismiss the nasty nasty post-viral effects which in many cases cause these difficult months and months of suffering. And it frustrates me even more the doctors who try to write people off as having CFS if they haven't recovered within six months or a set time frame - absolutely that is not true from what I have learned and come to understand about this time. There is a real difference between post-viral and CFS - post-viral is what the vast majority of people who are unwell for many months go through - it is your body taking an extended period to recover and get back on its feet after such a horrible virus, but it DOES get better. It can take a while but truly it does get better.
I hope you are feeling okay and settled today Starr. Just want to encourage and reassure you that it can be normal unfortunately still to be feeling so unwell after 8 months - I was too but things did get better in the months after that. It's different for everyone, many folks can see a real difference towards the end of the first year. From reading countless stories I see a pattern of that period between 9 and 15 months being often one of real change and a trigger for full recover - it is different from everyone no set rulebook with this thing but truly you will get there Starr, thinking about you still and keeping you in my prayers. God is good and faithful, His timing is perfect and He will get you through this. And you will be much stronger and more resilient in the long run for having went through this horrible experience. Praying for God's healing and eternally grateful for how God brought me through this virus when I was in a terrible way with it - He is going to pull you through Starr I stand strong in my belief in that. Hang in there!
Craig
thank u Craig i lean on your encouragement and faith! you are so kind in the way that you take the time to help us all God bless you and i hope you are doing great! im on the mend but also feel stuck i seem to have symptoms that have come and gone symptoms that are still here/consistent and old+new confusing.....
hope your neck is healing/calm
have a great rest of the week!!!
thank u again for your beautifully constructed entries. much appreciated!!!!!!
StarrA
Ciela do you still have this (from your earlier post):
my eyes and nose have been dried out, and the vision in my right eye seems worse (but I might just have not noticed it before since I wasn't so hyperaware of everything then). But my biggest concern is that after I eat, I feel really shaky. My whole body will have tremors for up to 30 minutes almost immediately after eating and it really worries me.
Thanks Starr, your words really help and encourage me too and I'm very grateful. I just know how badly and deeply I was affected physically, mentally, emotionally and spiritually by this virus, and how much others helped and encouraged me during that period - I wouldn't have got through it without amazing family and friends who helped me and encouraged me when I was upset and moaning every day about how I was feeling. Grateful for God and for everyone's patience with me during that and this time also.
My neck has been feeling more settled this week and so grateful to God for that. Just trying to take things one day at a time and keep faith in God with things. I am inspired by your faith Starr, it's much easier to thank and praise and trust God when things are going well than it in the hardest of periods, but I see such great faith in you - hold tightly to that it will see you through!
Also want you to know that I was very much the same when going through glandular fever - there was so many phases / different symptoms at different times. Whilst the fatigue and low grade fever persisted throughout and were the worst symptoms for me, I also had different aches and pains and strange symptoms which often came and went over a period of weeks and then it might be something else the next month. It was so frustrating and hard to cope with and this can be very normal for the virus in my experience. And want you to know that all these things do pass over and your body does find stability and good health again with time - often it's just time with this thing Starr, it's so hard to be patient, but with time you will get stronger and this time will pass over. God is the great healer and I still had a strong belief that even if it can't be seen yet, the manifestations of your healing that Jesus has paid for will be seen soon - so don't give up or be discouraged, you WILL get that breakthrough. Just take it day at a time though and coping with and keeping going through each day's challenges with this thing is enough for any day when dealing with this, and God will look after the bigger picture.
Hang in there and still keeping you in my thoughts and prayers! Even though you might be feeling weary now fear not because God's strength is going to give you the victory over this thing I truly believe!! Thinking of you and hoping for a good day today.
Craig
Hi Clove,
I just want to reassure that tremors does seem to be something that can happen and be a symptom during mono or any bad virus. It must be such a horrible and frightening thing, I do hope that you are okay and I want to reassure you that in the vast majority of cases this is just one of the seemingly endless list of symptoms with this thing which can be so hard to deal with but will pass over and go away with time.
Taking vitamins and herbs can help with tremors and the nervous system generally, a B complex vitamin per day can be really good for this, as can a good multi-vitamin per day and higher doses of Vitamin C (1000mg-3000mg per day). Also I have found that herbs such as chamomile, cayenne pepper and fever few can be really soothing for the nervous system and settle your body down. But of course I'm no expert, just going on personal experience and things that have helped me from my own research mainly, it's always wise to check for any interactions with other conditions / medication before taking any vitamins / herbs, or checking in with a doctor/ herbalist for advice.
It's a really good and supportive forum here for people going through mono and dealing with all the physical, mental and emotional pains of this thing. Message any time Clove and hope that you are doing okay and not feeling too bad at the moment.
Craig
Hi Clove,
I don't feel shaky after eating much now unless I'm really stressed that day or I've been overworking myself, but I still have the dryness in my eyes and nose (which I think is what caused my worsened vision because my contacts dry out and blur).
Hi Ciela, can I ask you a few questions:
1 - Do you or did you have a sweet tooth during this time (examples lots coffee / tea with sugar), lots desserts, ect ..
2 - Does eating sweets cause more tremors?
3 - Do you tremble more after exercising or hot baths / jacuzzi?
4 - Did any of your blood tests include Glucose Fasting and / or A1C test (last 3 months average of your blood sugar)? if so, were they normal?
5- Any Diabetes in your family history?
Hi Clove,
While my family has a history of diabetes, I was checked for it twice and had normal blood sugar and all labs were clear except for showing EBV. I tremble after exercise, but only because I live a highly sedentary lifestyle and my muscles aren't used to strain.
Thanks for reply, reason why I am asking:
I developed pulsating / tremors all over my body, about 5 weeks ago; had a few bouts previously, but this was the worst.
Doctor that I went to see the first time (2 years ago), had blood tests done, but not sugar levels. It started to go away after 5 days, and thought nothing of it (too much coffee I figured).
Two months ago, had 2 more bouts (3 days each), and it subsided. The last one was again pulsating tremors for the 1st week. I quit coffee, but the problem continued as tremors.
I started to realize that the tremors became worse after eating (like you); especially sugar.
-
Eyes dry / vision worse (like you).
-
Sinus dry (like you), to the point that one nostril was bleeding in the morning when I woke up; had to pinch my nose to clot.
-
My lips dry (kinda like you with mouth).
It was that second week that I went for blood tests for another doctor, in which sugar was included for thyroid testing; tests showed my fasting glucose as prediabetes (A1C was "at risk").
Needless to say, I cut all sugar and lost a lot of weight (like you), but tremors persisted. Two weeks later, my blood glucose tests are normal again (with tremors).
Google search finds some people with the shakes after eating (mostly Diabetic forums), but no one with all the same symptoms combined, such as yourself.
Ciela did you have your glucose test while you were having the tremors? Most doctors would not suspect sugar as a possible culprit, and have it checked during the blood test.
As of today, I have been trying beta blocker propranolol with limited success, and will try another med to see if any progress.
So that's why all the questions Ciela; checking similarities.
I may attempt a prolonged / strict diet (no sugars), to see if this problem (sugar / nerves) needs weeks to resolve itself, instead of days.
My diet plan:
Breakfast: Raw Almonds Lunch: Egg / Cheese Omelet Dinner: Caesar Salad
Lots water with maybe fresh Ginger Root tea.
I have noticed that any eating (+exercises) before 5PM , makes sleeps better; less tremors.
BTW Ciela, coat your nostrils 2-3 times daily with any Virgin Cold Pressed Coconut Oil (+lips). It will keep it hydrated.
thank u i need to pay you for being my mono/ebv therapist -:) you are of great wisdom and comfort this is very trying for me i am anxious to heal as i have things in my life that are on hold because of this and pending and when i heal i can only figure things out- thats tough the symptoms are scary but scarier is not knowing when ill live my full life again i feel like time is standing still and not much changes ive had symptoms come & go yet persistant ones from the start even through now when does it all fade in back of my mind still feeling like is it something more? makes you so uncertain of yourself the future your life this is not good that people have to endure this.....this is no joke!
im glad youre finding yourself well and calmer Craig i pray 24/7 I need God to continue to heal me as i have a great life to get back to! time is annoying
take care God bless you
Hi Clove / Ciela,
This virus is so frustrating, I do hope that the tremors and all these horrible symptoms can settle down for you soon. That diet sounds like it could be very helpful indeed Clove, and any other herbs / foods which target soothing and helping the nervous system such as a B complex vitamin or foods high in B vitamins, cayenne pepper, chamomile, peppermint and feverfew.
Hang in there guys, with this virus it can be normal to go through phases of strange things like this from what I have read and learned through experience, in the vast majority of cases things settle with time as your body starts to recover, just so frustrating the longevity and intensity of this awful virus. Always wise checking in with the doc though if concerned and having blood tests monitor regularly too if possible, which hopefully can offer reassurance and put your mind at rest too.
Hoping for a good weekend for you both. Still believing God is going to get you through this and back to full health again with a little more time Clove and Ciela.
Craig
Hey Starr,
It's only because I went through the same struggles and deep lows with this thing that it's important to me to let you know that there is recovery and there is good and full health after this thing Starr - truly there is, even though I know at times doesn't feel like it when going through it.
The uncertainty and unknown of it all is so frightening Starr and when you don't see or feel a change over a period of time it really is so hard to keep hanging in there and thinking and feeling positively, even when so badly you want to be able to. My confidence really took a terrible knock with this thing Starr and it took a little time to rebuild, but it does rebuild as you start to feel better and yours will too. Rest assured God hears all your prayers, it's so hard when we don't understand why or don't seem to see the answers manifesting the way we had hoped - but God does want you well Starr and is working for your recovery, He won't let you down, it might not be in the way that you expected or hoped even, but trust HIm Starr He loves you and is going to get you through this and back to full health, I still truly believe that.
It's always wise to keep checking in with the doc and asking them to monitor blood tests and things Starr, hoping doing that can put your mind at rest about thinking there is something else going on. Because this virus is so intense and long-lasting, it often tricks you into thinking something else is going on when in the vast majority of cases it is the mono and nothing else, and it's just taking that frustratingly extended time to heal and recover from.
My experience Starr was that the second year, whilst still fragile and in recovery, was SO much better than the first one, anything in that first year can often feel like a nightmare and it can for some be into that second year before a real breakthrough and progress is seen - hopefully that won't be the case for it to be as long as that but just want to reassure you that recovery does come and everyone just recovers at different rates with this thing. God willing you won't have to go through anything as intense or horrible as this last year or so again Starr - things will get better! Don't give up or lose hope - God is a good God and a God of hope. He will restore to you joy, peace and health, remind yourself of His truths about healing daily, that's Jesus has already paid the price - it is done. And even if you can't see the manifestations right now, that doesn't mean to say that you won't get that breakthrough and full healing from the Lord - you will Starr I believe that 100% for and with you at this time so hang in there!
Hoping for a settled and better weekend - just one day at a time still - keeping you in my prayers and agreeing with all your healing prayers to the Lord Jesus.
Craig
thank u Craig you are a true man of GOD thank u for all of your input you are very helpful!