My latest attack has now been goin on for 5 weeks, as previously explained daily dizzy spells increased tinnitus and loss of hearing, been on betahistine for 5 weeks also now but don't seem to be helping, got to wait till 18 September to see consultant but spoke to her secretary last wk who said not to panic an attack can last for 6 weeks but it just doesn't seem to be getting any better, I might get the odd day when it feels it might be clearing but then bang the next day back again and all hope goes, has anyone experienced this length of attack that can reassure me that it will finally stop, thanks for your time
Welche Dosis von Betahistin nimmst du ein?? Ich habe damit letztes September angefangen, mein HNO-Arzt hat mich im März auf 32 mg x3 erhöht und es hat Wunder gewirkt, habe es auf 8 und 16 mg versucht, aber mit 32 mg hatte ich seit dem 4. April nur einen kleinen Anfall, 4 Monate symptomfrei und war im Ausland ohne Probleme, es wird besser, ich verspreche es, ich habe meinen HNO-Arzt im März gewechselt und habe jetzt einen, der großartige Unterstützung bietet, diese salzarme Diät funktioniert bei mir nicht, ich habe einfach so weitergemacht wie vorher und habe mich nie besser gefühlt, hoffe, es geht dir bald besser, ich war schon mal dort!!!
Hi Steve I'm on 16x3 a day will certainly be asking my consultant to up the dose when I go hopefully that will help
Du brauchst zu meinem Hausarzt konnte mir nur 3x16 verschreiben, du musst zu deinem HNO-Arzt gehen, meiner sagte mir, wenn du Anzeichen dafür hast, dass es wiederkommt, kannst du es weiter erhöhen, aber bei 32x3 ist der Unterschied unglaublich
Yea that's all gp can give I spoke to consultants secretary about goin on higher dose but she said wait till see consultant but that's not for another 3 weeks and that's an urgent appointment!!! Hopefully it will work aswell for me as it has for you it's good to hear positive news
Tabletten gibt es ohnehin nur in 16er-Packungen. Wenn du Probleme hast, würde ich sowieso zwei nehmen. Die Tabletten haben keine Nebenwirkungen, lass mich wissen, wie es dir geht.
Hi Steve just came out of A&E had bad drop attack this mornin, spoke to consultant secretary said I've still got to wait till 18th sept to see her even thou symptoms getting worse rather than better so came up here saw a dr who said I can't wait that long so is putting through for emergency appointment and said I should be seen next week so hopefully I will get to finally see a consultant who can help, will keep you posted on progress cheers
Have them put you on a cancellation list up call you if anything be cancels and get it sooner people cancel all the time. That's crazy
Good luck to you
Sorry to hear about your situation..i experience lightheadedness constantly everyday since last June when what I thought was a heat stroke..i was diagnosed with mineres disease 2 weeks ago evidently I've had it around 10 years..my best advice is don't push yourself I wish I had more but hopefully soon I will...since last June I had to leave a great job 5 years early that cost me dearly I lost my business of 19 years and my lake house..and I'm still looking for a doctor to treat me..so far doctors don't seem to believe I'm as bad as I say on a consistent basis an they will not accept the heat plays a major role with mineres ..but I'm still searching for help and information related to heat an mineres...good luck I'll try to have more information later..
Just a quick update saw a junior consultant on tues as an emergency appointment but wasn't much help if I'm honest, he has put me on 32x3 a day now but does that take time to kick in do you know as I was feeling better for about 3 days then bang last nite tinnitus noise went up again hearing went and few dizzy spells again today, just seems never ending it's over 6 wks now!! Will c my consultant a week tomorrow so hoping for more help although junior consultant said they are trialling a new operation that puts a tube in the inner ear and drains of the fluid before it gets there so might get more news on that next week so I'll keep u informed on that aswell
I too suffered from MD for years and tried the tubes in the ear. They didn't help me but others said they were helpful. I tried many different treatments, prescription, natural, dietary to no avail. Finally saw a neurologist and eventually had a vestibular nerve section. Kind of the last result but I have been 2 years symptom free and am enjoying life again. I was dead set against surgery until I started having drop attacks on a regular basis. The doctor gave me the names of several patients who had the same surgery and were willing to talk to me about the recovery. For some, including me it was a quick recovery. I was back to work in 6 weeks, a few however, took 6 months to fully regain complete balance functions. None of the patients I spoke to had any MD episodes following the surgery. Hang in there and find a dr. who will go the distance with you and let you try to find a non-surgical solution if possible.
Hi thanks for your input, what did your surgery involve I've not heard of that? I've started seeing a chiropractor aswell had 3 sessions in upper cervical care as fellow sufferers have had good results in this, only time will tell on that as it's a 12 week course, I would prefer not to have surgery but at this present time willing to try anything because this is so disabling it takes over your life I'm currently off work and can't enjoy normal stuff either especially having two young grandchildren
You can look up all the details but basically it's neuro surgery. Vestibular Nerve Section. Open a small area of the skull behind the ear and cut the nerve. My brain then had to relearn balance functions with one signal instead of two. It took a good 6 weeks before I could drive again and return to work but it was worth it! No more dizziness, throwing up and pressure in the head. It was a last resort, for many people they find prescription meds that work. UCLA neurosurgery dept. Dr. Martin
Ich wurde vor 6 Jahren diagnostiziert. Meine Anfälle waren so schwer, dass ich 2 Wochen nicht arbeiten konnte. Mein lokaler HNO-Arzt schickte mich zu einem Spezialisten, der eine Sac-Dekompression durchführte. Es funktionierte sehr gut, bis letztes November, als ich leichte Schwindelanfälle bemerkte. Ich erhielt 3 Steroidinjektionen. Zuerst dachte ich, es würde helfen. Ich hatte am 29.08. einen Meniere-Anfall. Ich konnte nicht aus dem Bett aufstehen, mir war übel und ich hatte absolut kein Gleichgewicht (was ich nie hatte). Ich bin ein Arbeiter und hasse es, Arbeit zu verpassen, manchmal ging ich zur Arbeit, obwohl ich zu Hause hätte bleiben sollen. Ich wurde mit 10 mg Valium und 10 mg Prednison behandelt. Der Schwindel hat etwas nachgelassen, aber ich konnte immer noch nicht geradeaus laufen, wenn ich es versuchte. Ich war heute beim Spezialisten, der mich für eine weitere Sac-Dekompression einplant. Er sagt, dass der Knochen manchmal nachwächst. Ich werde bis nach der Operation nicht arbeiten können. Um Ihre Frage zu beantworten: Ja, Anfälle können lange dauern. In einem Zeitraum von 30 Tagen war mein Anfall so schwer, dass ich 10% meines Gehörs verloren habe, von meinem Test im Juli bis zu dem am 29.08.