Hi hope someone can help end of November 13 was admitted to hospital for suspected appendicitis with pain in my right side was due for ultrasound but they sent me home cos I was feeling better but pain still in right side then I took my self to a n e as pain still hadn't gone this was start of dec next day sent me for ultrasound discovered a 4 cm hemorrhagic cyst on right ovary still a wait n see approach been spotting on of with brown discharge n red thought it might be my period but only had one a week before suffering with terrible uti at the minute and have a constant ache in my right side and then get sudden attacks of sharp pain like a stabbing pain I'm tired of waiting and been in pain due for ultrasound in few weeks any advice or why they making me suffer much appreciated
Hello Kay8644,
My journey with this started at the end of October. I had back pain. (Lower right). Upon visiting the clinic at my work (I work in a remote location with a clinic but limited diagnostic resources.) They did a urine test which came back looking suspicious for a uti. Upon physical exam (which was quite painful) they felt with the urine test and the pain (specifically location) I needed to go for further diagnostics to rule out kidney stones (or infection in the kidneys) or appendix. By further diagnostics they sent me to the hospital two hours away from my work site with hopes I would get an ultrasound or CT Scan. I had another urine test, blood test and physical exam. They said, "Nothing concerning about the urine or blood test" and based on the physical exam wrote me a prescription for pain medication and a muscle relaxant, calling it a pinched nerve.
Upon return to work our protocol is to follow up with the clinic when they send you to the hospital. I explained the outcome, they did another urine test and physical exam. The urine test was worse and the pain was still bad. They said they disagreed with the hospital 100% and based on the urine culture, they said they wanted to put me on antibiotics. I agreed with the clinic and took the antibiotics they gave me but had an allergic reaction.
When they switched out my antibiotics they made it clear that if the infection was in my kidneys (as they suspected) the antibiotics they gave me wouldn't help I would have to go home and follow up with my doctor because they didn't have another medication that I was able to take. The antibiotics didn't resolve the pain.
I visited my family doctor and with the exam she 100% agreed with the clinic at my work and that it was likely kidney stones or appendix. She was going to send me for an urgent CT. When she looked at the urine test though she determined that it likely wasn't appendix and revised my orders to an ultrasound to look for kidney stones or ovarian cyst.
I had my first ultrasound November 12th. They diagnosed a right ovarian cyst about 2 CM with a slight bleed. I had a repeat ultrasound on Dec 30th. They want you to go through a couple of cycles before they take a new snapshot, to determine if the cycle changed anything. Sometimes for those not going through menopause, the cysts can resolve.
I visit the doctor today. If the cyst has not resolved then I will be asking to be referred to a specialist and looking to have the thing out!!! I have had menstrual like bleeding: November 18 - 4 days, December 3 - 4 days, Dec 22 - 2 1/2 days and started again on the evening of January 5th. While much of the back pain had been resolved, I am woken up in the night with it about every hour and this time with the bleeding the pain is back during the day in my back. The pelvic pain is also quite prominent to the point where I needed to sleep with a hot water bottle.
I am not sure what the ultrasound results will say or even how my doctor really feels about it all but based on what I have read so far and the feedback I've gotten on this site, if the cyst isn't gone, I will be making them get rid of it.
I know this doesn't ease your worrying. But I hope it lets you know that you are in NO WAY alone!!! I will post after I see my doctor.
Shanda
Hi kay81644
Thought i would share my experience with you, l as by reading the forums before my op it really helped. Had pain on and off for a year, irregular bleeding, but most annoying wanting to wee all the time, this became the main reason along with my Auntie being diagnosed with Ovarian Cancer (stage 3) that i visited my doctor, i also had developed high blood pressure ( not sure how much this is linked to cyst). Was sent for a scan on kidneys in October 2013, found a cyst 5cm, referred for a internal scan 2 weeks later, they found 6 marble size fibroids, 5cm cyst (fluid filled) and a 7.5cm tumour. was a little bit shocked..... Was referred to Gynaecology, which i saw on the 28th November 2013 , consultant explained that the pain was related to the pressure and not the cyst, the fibroids were not a concern at the moment, but because of my family history he wanted to remove the cyst and tumour (which he did think may be a dermoid cyst?) along with ovary and tube on the left side. Only waited 3 weeks, which was good because i was by this time in a lot of pain. Had surgery on the 20th December 2013, this was done by key hole and a 4 cm cut along bikini line, the cyst was stuck to the tumour which was growing off my fallopian tube not my ovary, this meant they could leave the ovary and only remove the tube. Had no pain on tummy, used some pain killers, could of left that evening but my blood pressure was not right so stayed over night. on returning home took pain killers for a couple of days. Had no pain on going to the toilet. The only real problem i have suffered from is pain in my shoulders and neck from the trapped gas, this can be really painful and can catch your breath, so be prepared. Peppermint tea helped, hot bath, heat patches and a massage, im nearly three weeks post op and still have pain in shoulders,guess it will go eventually, just awaiting lab results, should hear this week, good luck to everyone will keep you up dated re: progress, dont give up, keep pestering yor doctors, i am feeling alot better, starting to feel normal again, lots of energy, first period last week since op, no pain and much lighter- only 4 days instead of 8 !!!
Thanks ladys I hope everyone gets answers soon and recover well im worried sick its driving me bonkers I dont understand why they dont remove it im 31 have been blessed with 3 gorgues children been sterilised and have marina coil fitted will update when I find anything out thanks very much ladys.
hi Kay, your experience sounds identical to mine. I was in minor pain from Feb 2013 then in June 2013 it got serious had a Ultrasound which confirmed 4.5 x 3.5 cm cyst plus a couple of smaller ones and I was put on watch and wait - it was the longest 4 months of my life but towards the end of Sept I started to feel a little better, I was in terrible pain as the cyst was pressing on nerves and some days I could barely walk. GP kept saying 'its only small and shouldnt cause much pain' In October 2013 I went for another Ultrasound which showed the cyst had popped - there was quite a bit of fluid on my ovary but that would be absorbed back into the body. and since then I havent had any more pain. So they do disappear in time, just horrid waiting for that time to pass. Good luck. 
x
Ladies please don't give up if you feel it is affecting your life dramatically insist with you doctor and specialists that something be done.... i was in terrible pain about 5 years ago, i am convinced that i had a cyst burst then, it was put down to ovulation pain. After i think the cyst had burst i had no more pain until beginning of this year. Cysts can regrow and cause many problems that can take over your life, i was passing urine all the time and had painful breast, i did endless pregnancy tests (all negative) i am 42 and have a brilliant grown up family so pregnancy would of been a big shock !!!! i insisted to my specialist that i would rather have my ovary and tube removed to stop all the problems, they look horrified at you because it is a little drastic, but when your in that much pain you resort to pretty much anything.... thank god i didnt have to 'watch & Wait' i was operated on very quickly, but please dont give up, i feel so much better, even after just 3 weeks, at the moment i have my old self back, good luck ladies x Emma
So just to update everyone. My cyst is completely gone now. My doctor says that is the best scenario! I am now going for some blood work to check hormone levels and thyroid because of the between cycle bleeding. Early menopause perhaps.
I will still continue watching this board and offering support wherever I can!
Shanda
Hi shanda really pleased it has gone good result xxx
Little upadate have an aappointment for a ultrasound on 30th of jan while away yet not happy im positive I can feel a lump in my right side of abdomen im stressing big time yesterday I had intercourse with my partner aferwards the pain was unbearable but didnt get advise from doctor but I have aches in top of my thighs and hip area wish they would get me in sooner
Hi Kay, please try and stop stressing - it can make you worse (easier said than done I know) but I too could feel a lump in my abdo - one time I was squeezing and pressing it so hard that I ended up having a huge bruise across my abdo. A cyst can feel more painful on intercourse as it can get 'knocked' I was convinced I had ovarian cancer, I had even come to terms with it and looked into what treatments I can expect!!! your symptoms sound exactly like mine and mine has gone on its own now - but looking back the pain was some days unbearable but with having 2 small children I just had to get on with it. The 30th Jan will soon be here and fingers crossed it will be a positive result and you can put negative thoughts out of your mind. Good Luck xx
Hiya , I think I might have an ovarian cyst too, have been having on off pain for a couple of years in my pelvis right side, hip. Also my upper right side, hurst when I go for a wee, especially last little bit, I've had the marina coil for 5 yrs, which I've heard are prone to bringing on cysts, my doctor sent me for an abdominal scan which diagnosed gallstones, but they didn't scan my pelvis. I worry so much about ovarian cancer : ( I'm forever Googling my symptoms , just don't want to go for all those tests & worry again , any reassurance would be appreciated : ) x x
I think you should ask the doctors for another scan Please dont worry I know it hard to but im trying to stay positive xxxx
Update of for my scan tommorow hopefully it has gone but I arent holding my breath still having pains I have had 3 periods since December wish shouldnt be normal and they are just brown discharge sorry for sounding yukky
Hi kay81644
Sorry you are having such a miserable time of it. I have been through a similar experience twice now. I had an ovarian cyst about 2 yrs ago. I was very anxious - but it turned out to be a simple cyst - I had 4 scans and it went away after about 5-6 months. Then last year I had pelvic pain again and a scan showed a 5 cm cyst in my right ovary again. This time I was less worried and 3 scans later (last one Nov 2013) the cyst had gone away. Relief!
i wanted my gynaecologist to do something to get rid of the cyst but she explained this was not necessary. i found the waiting for the next scan very worrying. I did a lot of reading about ovarian cysts and "watchful waitin". it seems this is the normal approach and seems to be the right one - unless the cyst looks worrying when they scan you - if it appears solid or more complicated. I spent lots of time Googling my symptoms and the tests that I was having.
This internet article sums up watchful waiting well - with references as well if you want lots of detail:
http://www.enetmd.com/content/watchful-waiting-ovarian-cysts
I had a lot of pain with my second cyst and had to take strong painkillers. There is also an article about ovarian cyst pain: http://www.enetmd.com/content/ovarian-cyst-pain
I hope this is reassuring. Let us know how you get on and try not to worry, I am sure the cyst will go away. best wishes dawn
Hi kay81644,
Could you please share your results? I'm hoping you got some answers and things are looking good..please share. I've been having all the pain described, not horrible, but there almost all the time and very nagging. Now I've got some serious nausea going on and a very upset stomach after anything I eat. I'm wondering if it's related. I'm hoping to put off going to the Dr. because of insurance reasons...I need to wait another month. But if this nausea doesn't go away I may have to go sooner. I wish the best to you all!
Meg
hello, ladies.
Thank you for sharing all your stories. I find informative and encouraging. I am 43 y/o, mother of three young ones. I was having dull abdominal pain, and painful period since 09/2013. I had an Ultrsound in Nov 2013 showed 4cm complex cyst in right ovary. My GYN asked to wait and ultrasound in 02/2014 ( three months later), showed same complex cyst , same size in right ovary. Also It looks like my painful period is due to a fiboroid in uterus . So MRI last week again showed same thing. CA 125 is 40. I am premenopausal . So now I am anxiously waiting for GYN to call back for next step. I am also calling a GYN surgeon tomorrow for 2nd opoinin. Thank you all again for sharing. pray for us all.
Hi Kay
I was much in the same boat and am currently post op for cystectomy. I had stabbing pains on my right side and irregular bleeding, I in the past I had had cysts which had resolved them selves. We then went for IVF and confirmed cysts on my right side. The fertility clinic put me back on the pill and the size of the cysts reduced.
However the pain came back and this time worse so I knew they were back, with intermittant bleeding and added pressure when going to the bathroom, periods were extremely heavy and painful and very bad back pain "Referred Pain" as I was advised. I went to my doctor who referred me for and ultrasound. They confirmed a 10cm cyst on my right side.
I know in Ireland (which is where I am currently living ) that below 5cm they will use the watch and wait, anything over that they will consider surgery.
I had a laparoscopy 3 weeks ago today, and am still out of work. They have removed the cyst, ovary and falopian tube. Most of the pain is ironically in the left side where the biggest incision is but I have been advised by my consultant that its where everything has been "Pulled" through the incision, so more muscular and everything settling post op. Stomach also very swollen still and having to try and rock it in leggings!! lol.
I am glad to say that the pain in my right side has gone completely, but I have found that the pain I had following surgery was alot worse than I expected. I have also found that I am very tearful and tired alot of the time. And hoping that this will pass when everything has settled down. My doctor has today signed me off for another week to give everything time to settle down, I find that I have good and bad days where I feel ok and then start doing more and then the next day I am paying for it, so I am going to spend the next week and a half doing nothing as I am desperate to get back to work but I want to ensure that I am ok.
I know that in the past with me, cysts have gone of their own accord and I think that the reason they like to wait is because of this and also they can be controlled by the contraceptive pill. I must add that I have been off the pill for a number of years as we have been trying for a baby, so this has probably added to the size of mine.
If I had the option of waiting I would take it as surgery is very extreme, as the chances for infection etc, if the cyst gets bigger they will remove it surgically, but if the cyst is starting to get smaller, they will then unfortunately continue to watch and wait.
I was lucky in the sense I knew what the pain was when it came back and my GP listened to me and referred me for an ultra sound, as she said that I know my body better than anybody and you will know when something is not right.
I do hope that the pain resides for you and the cyst does get smaller as I wish I could of done that myself as I hadnt planned on loosing an ovary and fallopian tube along the way as we are still hoping for children, but I am 38 and chances were very slim before the surgery and now are next to nil now with out IVF but we are just not in a position financially to do another bout, so will just have to leave it in the lap of the gods!! so to speak.
I know that this does not ease youre worrying, but at least it gives you a clearer view as I have been in both positions. Wishing you a speedy recovery, and hope that everything resolves itself ;o)))
I am sitting here in unbearable pain and came across your thread. Almost a year a go I went to the Dr with awful pain. They thought I had a blockage and made me drink all this nasty stuff to "cleanse" myself and did a scan on me. No pain meds or anything. I waited five days to get my results back and it was a ruptured cyst. I had no clue what that was. Now it has been a constant in my life. I called my obgyn two days a go because I am 98% sure I have another rupture. She told her nurse to tell me she doesn't think I have a ruptured cyst. Excuse me?? I think I know well enough what it feels like. She wont see me till next Wed. My husband wants me to go to the ER because of the pain and the fact I am taking pain medication, Tylenol, and using a heating pad and nothing is working. And mine also is worse at night. I wish I had a recliner to sleep in. Praying for you ladies. I don't think people who have never had this can truly appreciate how hard this is on us. I know for me it ruins my sleep, my work, and my life. If I wasnt trying to have a child I would take every bit of it out.
Well ladies..
The last 2 years I've had surgeries to remove 10cm cysts. The last one strangled my ovary (very painful) so that had to be removed.
Went to the dr on Monday and he was convinced I was full term pregnant lol... Scan shows that another cyst has grown on my remaining ovary only this time it measures 36cm!!! What a whopper!!
Anyways I'm having a lot of pain this time, anyone recommend the most effect pain reliefs please? X
I went for ultrasound yesterday as they thought i had kidney stones.However they didnt find any but they found a 7cm cyst.Symptoms are the same as yours and 6 weeks ago was laid up for 3 days as had a job to stand up.like you i was nauseous but actually sick and dont want to eat.I have to go for another scan in 6 weeks to see if it has grown they will then decide if i needs to be drained.Hopefully it will burst in the meantime as the flare ups are becoming more frequent.Was told it was unusual for someone my age to have them i am 66.