Overuse of prescribed oxy, my journey to cutting down.

Hi guys, so I've been chasing over on Melissa's thread, and have decided to start my own instead of hijacking hers.

The story so far... I was taking double my prescribed dose of oxy so 400mg a day instead of 200mg. I've fessed up to my pain doc and gp and am starting a 5 week reduction regime that's organised by my gp.

I'm really hoping I can stick to and carry on with the correct opiate dosage to manage the chronic pain I suffer without spiraling out of control on the meds allowing me to function in life.

Thanks in advance for any and all support, and if you want to share your journeys on pain meds please feel free.

Charlie.

Hi Charlie.

Sorry, saw this post after the Melissa one!!

My nightmare started approximately 7yrs ago when I went to the Dr's with problems in my lower back. After an MRI scan it showed I had degenerative discs in my lower back & i kept trapping nerves & suffering from slipped discs etc.

The Dr put me on Oxycodone to start with before moving me over to Oxycontin. She offered me morphine but the name & knowing what morphine was frightened me as it was so strong. It wasn't until I was on 800mgs of Oxycontin a few months later that I found out Oxycontin was actually 2.5 times the strength of morphine!! I didn't even know what an opiate was till this time after reading up on it as I was getting all these side effects!!!

I was at times taking 1500mgs Oxy on bad days. I know, I should be dead!!!

This drug at one point was more sort after in the states than Heroin!!!! Really it was!! Due to how popular it was, the dealers were charging $1 per milligram. Even $100 for 1 x 80mg tablet!!

After going back to my GP who put me on this, she refused to see me. Turns out the other Dr's at the practise had been having a go at her for putting me on that amount & how i was their highest patient in terms of money, being a burden on their budget for£3.5k per month.

After she refused to see me I saw one of the other Dr's there saying I wanted off the Oxycontin. He just said to cut down. Sorry but that is just like giving an alcoholic a bottle of JD & telling them not to touch it!!!!

I decided to change surgeries and managed to taper down to a prescribed 320mgs per day but, every time I tried to drop lower I just couldn't due to the worst withdrawals. I tried & tried but just couldn't do it after doing so well upto that point!!

After months of battling with & at first being turned away from the substance misuse service, im now on 105mgs of methadone per day & haven't touched any Oxycontin now for around 3months!

I am now having to battle the service as they said that I'm the only person they treat on Oxycontin or infact I am the only person they treat whose addicted to prescribed medication! Everyone else they treat are heroin addicts.

They want me off the methadone by April when I'm still craving the Oxycontin & still suffering WD's at night so I'm still not at my optimum dose yet they want me off it, that's another battle I'll have to fight I guess. It almost feels like, if they take me off it & get there way, that my only option to avoid getting really sick from WD's is to become a heroin addict to get treatment!!??!! Makes sense hey!!! Ridiculous NHS systems!!!

I know people will say that no one forced you to take it. But I trusted my Dr that never once at any time was I told how addictive this drug was & how if not careful it could & would destroy my life.

I have never in my life touched illegal drugs at all, I haven't even smoked weed just to see what it was like!! I was an Operations Manager before this on £50k per yr & i had a brand new Lexus parked on my drive. Now I have nothing. No job, no car, nothing.

I guess what I want out of all this is for anyone that is at early stages of taking Oxycontin or is thinking about taking it PLEASE DON'T!!! IT WILL DESTROY YOUR LIFE. It wasn't while I was on the 800mgs when I was really suffering but my main problems started when I was reducing and, also now I am off it. The depression kicked in around 320mgs along with the horrible Withdrawals, every single day, some say through reducing too quickly. Either way it has been hell for me & still is as I'm convinced it has done damage to me in my brain that will not change back. My memory is terrible. I forget a conversation I had 2hours ago!! I have zero motivation at all, never. I can't get exited about anything. I don't look forward to anything like I used to.

I don't live now, I just exist & it's all down to the Oxycontin.

So, please please please, think before you take this stuff, you will think you can control it but you can't, you won't! If like me & you are one of those people that have no will power or have an addictive personality this will destroy your life I promise you. And most of the time, when you try to get help, you will feel like you are being treated just like a junkie.

I could tell you loads more but if you've managed to get this far without falling asleep through boredom, I will stop waffling on now.

But seriously though, please listen to what I have tried to get across. Your life will not be the same again if you get addicted to Oxycontin. Afterall, I suppose they don't call it Hillbilly Heroin for nothing!!

Take care

Ritchie x

Wow Richie,

That's a hell of an experience you've had, I'm totally appalled at how you've been treat by the medical professionals who've put u in a sitch and then abandoned you. (Yes, I read your whole post lol).

I guess the difference between us is that I knew how strong oxy was before I started taking it. After being diagnosed with Systemic Sclerosis (Ssc) I was put on opiate pain meds, from co-codamol through morphine and finally onto oxy. So i knew what it was I was about to start taking.

I'd read about "hillbilly heroin" and in fact discussed this exact thing with my pain doc before accepting a oxy prescription. He kind of explained it like this...

Think of pain as a liquid, an opiate med is the kitchen towel that'll soak up that pain and take it away from you. If you only use the amount of opiate needed to soak up your pain, the high it can cause won't happen as it's doing its job, and no more.

If however you use more opiate than needed to soak up the pain, that'll be left floating around your system, and that's when the euphoria and high feelings occur.

So with that knowledge on board, I was quite aware and cautious of the oxy from the beginning. Like I said tho the extra dose "here and there" kind of snuck up on me. Until I realised a couple of months ago that I'd slipped into a higher than necessary dose. It took a good ten weeks for me to get the courage to fess up and deal with the issue. I think the nature of this drug is that it makes you lean towards secrecy and that is dangerous if you're slipping into too much usage!

Bearing in mind I've got a lifelong disease that's always going to cause pain, probably getting worse as I get older. I need to be able to take something that allows me to have a life without being in agony. And it's oxy that allows that to happen.

I'll always be acutely aware of how dangerous this drug can be, and is to a heck of a lot of patients. But at the same time I need to live a productive life.

I'm sending you some good karma Ritchie and really hope you manage to get through this awful point in your life. I'm sure that your emotions will return once you're free of the methadone. That drug is renowned for numbing ppl, and I've heard that antidepressants and counselling are a huge part of any recovery.

Are you seeing a gp as well as the methadone clinic staff? I think you need to, at least go talk to your gp about how crap life feels atm.

Sorry, I've rambled on... I'll let that lot sink in before I carry on lol!

There's loads more I could have put but I have a tenancy to waffle on a lot so tried to keep it to a bare minimum lol.

I feel for you & the pain you're in, like you say, you don't have a choice really do you, especially if you wanna get up in a morning!!!

It does make you lean towards secrecy you're right there. I'm not blowing my own trumpet but, I really am the most honest person you could ever meet & i mean that but, when I was taking the 1500mgs, obviously I was running out early so I had to lie about it saying I would be working away when my script was due etc etc. I hated what I was turning into!!

At times I would eat that many, I had occasions where I would have eaten the lot after 10days!!! Obviously at times, I had to suck it up & accept the withdrawals but, they really are the worst thing in the world & i remember at the time feeling really sorry for heroin addicts if this is how they felt. So I hated that bit, all the lies, even to my partner, who I would never, ever lie to, I cannot begin to tell you how much I hated myself for it Charlie!!! But I've learned to accept that if you are an addict, it is part of it , but obviously I really really hated it.

Apart from what I mentioned on the Melissa thread about side effects, my sex drive has also been zero for the last 3yrs & it's horrible. I've swore to my partner that I still fancy her as she thought I had gone off her!

I was that adamant that my testosterone level was low, I've had 3 blood tests for it at my new GP's. On the last test 3wks ago it showed up that it was quite low. I was so relieved & it also proved to my partner that I was right all along about many opiates & not just Oxycontin that it gives you this problem as a side effect!

Christ, every morning when I woke up my duvet would be like a wigwam but not anymore lol.

I don't go to a methadone clinic to pick the stuff up. I go to my local pharmacy & take it there in the back room.

The substance misuse service I go to to get my script every 2wks should provide counseling but they don't. Now I just go there to pick up my script & that's it.

The first counselor I saw, gave me her mobile number to call anytime whenever I felt down etc, I would ring her at the beginning when I first moved over to methadone from the Oxy as, I know now the 30mg dose they start everyone on was miles too low for me. I took the first dose at 8.30a.m & by 12.30 I was going into full blown withdrawals! The councelor would never return any of my calls. I even had it on one occasion where I arrived for a meeting with her, after an hour drive, and she had booked a holiday & not told me, another occasion she was off sick & no one rang to tell me, so very unprofessional. I could write a book Charlie honestly. Perhaps I should about my whole 7year & still ongoing battle through hell, lol!!

I saw a proper councelor last year through my GP but after my 8 sessions I was worse than when I started. Every day feeling very very low, suicidal etc. She said that she couldn't really treat me till I was off the Oxycontin because it was due to that, that I was there. So it was a vicious circle because at that point, I had been trying for months to get help to come off the Oxycontin but no one would help me. Door after door was slammed in my face & all because "It's only Oxycontin which is a prescribed medication, it isn't Heroin" the problem i faced was that no one (or at least I hadn't met & still haven't met anyone yet, that really knows what Oxycontin is in this country) If I lived in USA, it would be a totally different matter, as much more is known over there about it. Perhaps because it's an epidemic over there where it isn't here???

As I said, that's only a brief outline of my journey through hell but again, I've waffled on too much.

There ya go, and you think you ramble on. Lol

Ritchie x

Hi Charlie, I too have chronic pain but when I first started taking oxcocet,(containing acetaminophen) it wasnt strong enough so my dr. switched to oxycodone (too much acetaminophen is bad for your liver and kidneys) except I had kids to care for so i couldnt be buzzing and i couldnt drive, they also dont last long...so i was switched to MS CONTIN which is sustained release morphine, at first you get sleepy but you get used to it and can function properly..i have been taking it since 2002 and never boosted my dosage, maybe you need to switch to something lower dosage but long lasting and get good pain control, you wont have withdrawal.as it is an opiod, i am thinking tapering on oxy, you have a tolerance to higher doses maybe a switch to lowest dose SR MORPHINE would work.you need to stick to treating PHYSICAL PAIN and not getting high....knowing you have been abusing it and admitting it to your dr. Is a GREAT start and you are lucky to have a dr. Willing to help you and not just cut you off and dump you....Chronic Pain unless you have it, people REALLY dont understand what its like...have you thought about WHY you are abusing? If its recreational or if it is to dull emotional pain, either way maybe you could talk to a counselor?? If you need someone to relate, i dont mind at all lending support...I REALLY Wish you well in your trying to get things worked out...give yourself credit for asking for help NOW vs later, the longer you wait the deeper the hole to dig out of...Best Wishes!!

So I'm just over a week into my reduction programme back down to my prescribed dose rather than twice that much (from 400mg to 200mg) and in doing ok.

The fact that my doctor was amazing has really helped a lot, and the intro of pregabalin has made a huge difference to the pain killing effects of the oxycodone.

I think it's important here to note that the increase in dosage wasn't for any *high* that oxycodone can give but was because I'd become tolerant to the drug and it's pain killing effect was gradually reducing. I didn't increase my dose in any great amount at a time, and didn't get a high that many ppl speak of. But I'm acutely aware of the dangers of any opiate and its ability to creep into your life and take a hold. This is why I paid (in the UK it's unusual to pay for medical treatment) to skip the NHS waiting list, and saw my pain doc to discuss the issue within days rather than months. (That's a whole other topic btw, waiting times for treatment in the UK are seriously out of control)

So, my journey continues and if the last week is a marker of moving forward. I'm very hopeful that I can reduce the opiate usage, and supplement that with pregabalin to achieve the optimal pain reduction that allows normal (as much as possible) life to occur.

Thanks for the update Charlie. Thats great news, I am really very pleased for you.

All the BS that Purdue Pharma Reps came out with about Oxycontin lasting 12hrs, eventually they admitted that they were wrong!! So, they advised Dr's to up the dose, this is where all the overdoses began etc.

With me, the pain relief would only last around 1hr, so where they got this 12hr rubbish from who knows. Still, while ever the Purdue sales Reps were getting bonuses from $70 - $250k why should it matter hey ;-)

Very well done for getting this far Charlie, and like you said, you need something to help you with a quality of life, something you wouldn't have without it.

Well done!!

Take care

Ritchie x

Thanks Ritchie,

These last few days have been tough, haha as soon as you think *this is easy, I can do this* you rightly so get a reminder that it's not easy at all!

So, I've persevered on with the reductions but I think from what I've read that pregabalin is only really effective at the 300mg marker per day for serious pain. I'm tapering up quite slowly, so i should expect some pain in the process.?

I must admit though, you're right about how long oxycodone lasts once you've built a tolerance. I find it lasts around the 8hr mark for me, but I'm really hoping introducing pregabalin will cover me on the original oxycodone dose. By the way, my oxycodone is called Longtec is that the same as what you were taking Ritchie? Or is it different somehow?

I've never heard of Purdue, I'll look them up on Google now though, knowledge is power eh!

Charlie.

P.S. Thanks for sticking around Ritchie, it's been super helpful talking to you. Kinda gives me the umph to succeed, knowing the pitfalls is good.

You've been invaluable.

Hi Charlie.

I have never heard of Longtec so not sure to be honest.

Purdue Pharma are the manufacturers of all Oxycontin, it may say a different name but it will be Purdues baby.

They were fined around a total of $624.5mil for basically lieing saying Oxycontin was not addictive & it would last 12hrs. Basically they miss sold the drug making $ billions in profits. Kentucky were the last ones to file a lawsuit back in January for $1billion but, I believe Purdue have now paid kentucky up, to the tune of somewhere around $24mil. Not sure of the exact amount??

You don't have to thank me Charlie!!

I've not found anyone else that has been on the same amount of Oxy than me, especially here in the UK. I don't want to either to be honest as if I do, I know someone else will be suffering. I know it's hardly an issue here in the UK, unlike it is in the USA where it is an absolutely massive problem, or at least it was not too long ago. Purdue have made a tablet now that cannot be crushed, claiming it cannot be abused. If you cannot crush it, you cannot snort or inject it which is what a lot of people who abused it, did do. They also burnt it sucking the fumes through a straw. Why you would do that I don't know!??

Tell me Charlie. The Oxy tablets you now take. When I took them, mine had an 80 on one side & "OC" on the other & also 120 on one side & OC on the other. What do yours say on them?

You don't have to thank me Charlie. It's nice to talk to someone that knows some of what we go through!

Catch you later

Ritchie x

Hey Ritchie,

Yep 80 on one side and oc on the other, they sound identical. I do know though that Longtec are cheaper than the Napp oxycodone as that's why the doc switched me over. The 80's are I think £300 ish per 56 as opposed to nearly £500 by Napp. Same drug, different supplier.

It's all crazy how much these meds cost, it costs pennies to produce and they're making billions. Mind u, nothing else has worked to reduce my pain so I should be grateful to a certain extent. It's just a shame they're so dangerous in both addiction and overdose wise.

Right then, I'm off to keep myself busy lol I've been making sure I'm not idle and therefore thinking about my pain, as that's a dodgy place to be while I'm reducing these meds. Oh one more thing occurred to me, my doctor actually prescribed the whole 5 weeks reduction script in one go, if I was out of control it would've been like handing me the keys to the sweet shop... it was my gf who pointed it out.

I'm lucky to have her support.

Charlie.

Come to think of it mine said Napp pharmaceutical on them!

Apparently the ones that are abuse resistant have OP in place of OC on the back. You would think with all the fuss over the years in the states that you wouldn't be able to get the crushable ones over here still, as I think it's been a few years now since Purdue released the non crushable ones onto the market??

The first GP that put me on it then refused to see me, I was genuinely going on holiday for a week so, I had to go from dailys to one weeks worth, which my partner took control of while we were away. When we got back & i went to the GP surgery to start off the daily scripts again, the GP put me back on monthlys again!!! I didn't realise at the time till i dropped the script at the pharmacist & i waited for the daily 4 x 80 & 4 x 120 to be handed over.

He gave me 2 x boxes of 56 of each plus 8 of each & said, "so you're back on monthlys now then?"

It took me every ounce of willpower I had that day to not eat a load of them & to wait till my partner got home & hand all of them over . The first thing she said was, "so, how many have you had" :-)

I obviously got on the phone to the Dr also to sort it out to go back to dailys but, she didn't even think what she had done. My partner went mad, she just couldn't believe it!!

.yes, keep busy, that is a must!

TTFN

Ritchie x

Morning guys,

Thought I'd update this thread with the latest in my journey.

So, things are getting very real for me atm and the cutting down isn't going as I'd like. I'm in a shed load of pain, and I'm going to ring my doctor today to discuss slowing down reductions until I can't get a handle on my pain levels.

I'm hoping he's sympathetic, but bracing for the worst.

Anyhoo that's all for now, I'll let u know how it pans out.

Hey Charlie

I know you really want to cut down but, please dont do it and be in loads of pain for doing it. Theres nothing worse than being in loads of pain & when you are, you would give anything not to be.

If it means stopping the reducing for a while im pretty sure your doctor will understand. It just aint worth the suffering matey.

Good luck with the Dr

Ritchie xx

Hey Richie,

I've struggled on, but I'm definitely going to speak to my doctor on Monday as I'm in serious pain. It's just totally taken away the little livable life I had.

I've checked bnf and prescribing guidelines are not over 400mg per day but more in certain cases. I think I can manage on 130mg twice daily which would be well below max guidelines. I'll talk to my doctor who hopefully will agree with me.

Thanks for the reply,

Charlie.

Well, my gp prescribed me 800mg per day but i think that was way over the guidelines.

Im sure your gp will up the dose to enable you to be comfy. Even what you ask for is know where near the recommended daily dose of, is it 400mg per day??

All the best for monday. Let us know how you get on.

Good luck!!

Ritchie x

Evening @Ritchie2168

I waited until my scheduled appointment on Thursday to see the doc, I didn't want him to think I'd necked all my meds, or was trying it on. Anyhoo, he's upped my dosage to 120mg twice daily, which is ok I think.

If I'm finding that it's not lasting the 12hrs I could split it into 3x80mg doses add he's giving me 80's and 20's rather than the 120's which are particularly sketchy to source. Pharmacies have trouble getting a hold of 120's and that could be a real glitch in my programme.

So I've been on that dose for three days, today is day 3 and I'm managing my pain levels ok. I had an odd reaction to the pregabalin at first, but it's really great at disguising any opiate withdrawals (loss of evidence of this online) so I stuck with it. The lip numbness has subsided now, which I was hoping it would.

All in all I'm actually ok, and feeling positive moving forward.

Thank you to everyone who's contributed to this and offered support. You're a good bunch of ppl, and I'm especially grateful to you Ritchie smile

Charlie x

Hi Charlie.

Im really pleased for you that your Dr is helping & not thinking you're trying it on, theres nothing worse when you are actually in genuine pain.

Over the years of fighting my addiction to Oxycontin ive come to realise that a hell of a lot of Dr's just do not know anything at all about the drugs they give you, they just look in their drug book & say "try this one" which is what my old Dr did with me.

Ive just found out that the agency that i use, come April 2017 will no longer be treating people like me who become addicted to opiates through prescription medication, they will only be helping heroin addicts, (Not Good!!!!) The consultant that i see has said he wants me totally off methadone by this date, this is virtually impossible as i still believe i am not on a stable dose as of yet, so ive benn panicking somewhat.

Guess ill have to cross that bridge when i come to it hey!!

Im so pleased your Dr is listening & helping you, sounds like you've got a good un!!

Take care & keep in touch

Ritchie x

Hey charlie

So ok wow im so glad i came across this forum and its so recent

Iv been keeping my issues secret for so long and i guess i fell into the trap of im the only one making a mistake taking more dose

So okay il condense this best i can

Im 26 was always fit and healthy - did loads of sport and worked since iv been 16 - never been to hospita at all

Then 4 years ago reglar agonising pain plagued me

After months of this reoccuring and 2 stone lighter im admitted to hospital - 8 WHOLE WEEKS as an inpatient and multiple wrong diagnosis later (including chrons disease, pancreatitis, lymphoma cancer etc) i was being pumped with IV morphine to the point my tolerance was so high i was on slow release morphine - 10mg IV morphine every TWO HOURS - then to a self press morphine machine and finally what was to become my nightmare

75mcg Fentanyl Patches with 4x 400mcg instant release Fentanyl losenges per day for breakthrough (all this WHILST inpatient)

So after being told that as im not eating or drinking and slowly being reduced to nothing im on an end of life Palative Care pain relief plan to "keep me comfortable whilst im alove"

My family GP had been following my progress was worried and called a consultant friend of hers over in the Gastrology Medical Dept (i was in surgery ward)

She came to review case - and no lie 24 Hours and two blood tests and MRI later she finds i have a blood clot - that was apparent in my FIRST scan in first week in my bowel but was MISSED by surgica consultant and now travelled to my Portal Vein - liver providing blood route - whih was now infected and i was septic

Was told i had till end of week for body to gt rid of clot before it reached liver and it was end of the road

ANYWAY - im here - so it worked but the damage caused so much pain it was unbearable (part of it was dependance too im sure)

I was on fentanyl for 2 years - i try to reduce and i sweat and feel like im dying (it really is a deadly drug not even good for a high just a KO Drug) anyway 2 years ago im on a program ro reduce but so hard and all of a sudden i vomit blood - i collapse - admitted in and told due to the initial damage to the portal vein it had caused internal varices veins in my oesophageus - so i undergo an emergency OGD and they stop bleeding over 3 procedures and 18 bands later its stopped

Whilst i was in the pain doctor comes and says - lets get u off this fentanyl - i was so happy - let me point out id never abused this prescription! I stuck to the dose but it was jus so much and so hard to reduce but id never took more

So he says we have this WONDERFUL new drug - great for pain and we can reduce when required

I

And welcome to the bain of my life

OXYCODONE - modified release tabs and instant release solution

From then till now iv lied to GP iv lied to family iv took so much more than my dose - suffered many times the night before im due a script because i took it all too early

I was recently asking for help

Then i was poorly again and was already being goven 700ml of Solution (5mg/5ml dose so its 700mg oxy per scription) plus 56 5mg tabs (which iv ended up chewing)

Now it seems my GP doesnt talk to pain clinic so they unaware of all i take so now they upped me to 56x 30mg tabs!

But KEPT my instant release and given more

And doc has kept same regularity

Iv told them and its like he says well u been on more before and ur in pain just try to keep to ur dose

Like come on just being honest was so hard for me

Iv told them and now its like no one wants responsibility - but to fix it someone has to take that responsibility and ownership

And whilst they battle that out im being given all this and i try to taper but theyre right there

So il take loads and tolerance will soar

Its a horrible drug

I guess i wondering what your 5 week reduction looks like?

Im all over place with my doses

I dont know how im coping as its up and down like mad

Sorry for long message but first time iv ever posted on anything. But something about your post and from the UK made me feel i should

@uk-M-uk

Hi there, apologies that this reply is short for now but it's nearly 2 am and I'm just going to bed.

So, the 5 week reduction was really, really hard. I was given the whole 5 weeks of meds in one go, so there was loads of them in the house. The pain kicked in quite badly at first, but then when my pregabalin was upped (you taper up) it actually masks much of the withdrawal effects. Honestly, Google pregabalin, in the states I think it's called lyrica (you're in the USA right?). There's tonnes of stuff online about how ppl are calling it a wonder drug, when it's used to reduce/quit opiates.

What I will say is you need to be fully committed to cutting down, and the spiral upwards on dose after dose has to no longer be a pull to you, if that makes sense.

I'll get back to you tomorrow once I've slept, but stay strong and maybe start thinking of a plan on how you'll reduce the oxy. I did it 20mg a dose, so from 200x twice a day to 180x twice a day and so on.

Charlie x

Hey no problem same for me im off to bed - no im in the West Midlands UK

Hence why i replied - i gather your from UK?

Normally any talk of Oxycodone is from USA guys

And although i know its the same drug and same physical struggle - the way Prescriptions/Pain Management/GPs work here totally different

And i read loads of peoples "solutions" and its all like buy this drug or go to your doctor or local pain clinic and pay and ask for ....

Doesn't work that way here - so tight on the meds and the pharmacies question everything in my opinion

You seemed to be on alot more than me in terms of regular dose so id be interested to read more of your story

As you can see mine involved alot more different drugs - again fentanyl id advise Hey charlie

So ok wow im so glad i came across this forum and its so recent

Iv been keeping my issues secret for so long and i guess i fell into the trap of im the only one making a mistake taking more dose

So okay il condense this best i can

Im 26 was always fit and healthy - did loads of sport and worked since iv been 16 - never been to hospita at all

Then 4 years ago reglar agonising pain plagued me

After months of this reoccuring and 2 stone lighter im admitted to hospital - 8 WHOLE WEEKS as an inpatient and multiple wrong diagnosis later (including chrons disease, pancreatitis, lymphoma cancer etc) i was being pumped with IV morphine to the point my tolerance was so high i was on slow release morphine - 10mg IV morphine every TWO HOURS - then to a self press morphine machine and finally what was to become my nightmare

75mcg Fentanyl Patches with 4x 400mcg instant release Fentanyl losenges per day for breakthrough (all this WHILST inpatient)

So after being told that as im not eating or drinking and slowly being reduced to nothing im on an end of life Palative Care pain relief plan to "keep me comfortable whilst im alove"

My family GP had been following my progress was worried and called a consultant friend of hers over in the Gastrology Medical Dept (i was in surgery ward)

She came to review case - and no lie 24 Hours and two blood tests and MRI later she finds i have a blood clot - that was apparent in my FIRST scan in first week in my bowel but was MISSED by surgica consultant and now travelled to my Portal Vein - liver providing blood route - whih was now infected and i was septic

Was told i had till end of week for body to gt rid of clot before it reached liver and it was end of the road

ANYWAY - im here - so it worked but the damage caused so much pain it was unbearable (part of it was dependance too im sure)

I was on fentanyl for 2 years - i try to reduce and i sweat and feel like im dying (it really is a deadly drug not even good for a high just a KO Drug) anyway 2 years ago im on a program ro reduce but so hard and all of a sudden i vomit blood - i collapse - admitted in and told due to the initial damage to the portal vein it had caused internal varices veins in my oesophageus - so i undergo an emergency OGD and they stop bleeding over 3 procedures and 18 bands later its stopped

Whilst i was in the pain doctor comes and says - lets get u off this fentanyl - i was so happy - let me point out id never abused this prescription! I stuck to the dose but it was jus so much and so hard to reduce but id never took more

So he says we have this WONDERFUL new drug - great for pain and we can reduce when required

I

And welcome to the bain of my life

OXYCODONE - modified release tabs and instant release solution

From then till now iv lied to GP iv lied to family iv took so much more than my dose - suffered many times the night before im due a script because i took it all too early

I was recently asking for help

Then i was poorly again and was already being goven 700ml of Solution (5mg/5ml dose so its 700mg oxy per scription) plus 56 5mg tabs (which iv ended up chewing)

Now it seems my GP doesnt talk to pain clinic so they unaware of all i take so now they upped me to 56x 30mg tabs!

But KEPT my instant release and given more

And doc has kept same regularity

Iv told them and its like he says well u been on more before and ur in pain just try to keep to ur dose

Like come on just being honest was so hard for me

Iv told them and now its like no one wants responsibility - but to fix it someone has to take that responsibility and ownership

And whilst they battle that out im being given all this and i try to taper but theyre right there

So il take loads and tolerance will soar

Its a horrible drug

I guess i wondering what your 5 week reduction looks like?

Im all over place with my doses

I dont know how im coping as its up and down like mad

Sorry for long message but first time iv ever posted on anything. But something about your post and from the UK made me feel i should avoid like the plague!

But oxy and the withdrawal is evil

Hope to discuss this further

And just FYI iv never abused or dabbled in illegal drugs - only ever taken prescribed drugs and what i was given. Yet i did overuse then try to cope on days with low meds and even make excuses/lies to GP to get more till i had to tell them for my sanity and health

Thanks Charlie for this thread again