I had my gallbladder removed just over 5 years ago. It was barely function and I had no choice but to remove it. I was doing great after the surgery, but about 6 months to a year later I started having pain exactly like I did when I had gallbladder attacks. It even radiated into my mid back and increasingly got worse with each one I had- lasting sometimes up to 30 minutes. While the pain is nowhere near as frequent as it used to be, it still happens on occasion. Around the same time I also started to have a lot of digestive issues. I would have to run to the restroom almost immediatley after I ate. It started off very minor and progressivley began to get worse to the point where I couldn't eat a meal without going to the bathroom after. I visited my gastroenterologist many times during this period and was eventually perscribed Welchol (colsevelam). It worked great for a while, but then I started to have to take more of it in order to get the same results, even though the doctor told me I was eventually supposed to ween off of it. Currently I take 2 pills a day and sometimes will have to take more before meals and STILL have diarrhea occasionally. Has anyone had any luck with finding something that fixes this issue? The surgery was laparoscopic. We've talked to other doctors about it, who all denied that it was caused by the laproscopic surgery, but FINALLY one admitted that the two things are definitley linked together. I'm at a point where I'm tired of having to deal with this issue. I'm 19 and in my first year of college- I shouldn't be worried about going out because of my issues. It's a constant thought in my head and has lead to me not being able to do things. Anything would help- I just want a normal life without having to rely on medication.
Désolé que vous ayez ces problèmes, que je pense être liés à un excès de bile excrétée dans votre intestin grêle par votre foie. J'ai les mêmes difficultés, mais je prends du cholestyramine, qui est une poudre dans un sachet, mélangée avec du jus chaque soir. Parfois, j'ai besoin d'utiliser de l'immodium, mais le cholestyramine m'aide considérablement.
Bien sûr, c'est frustrant de devoir dépendre de médicaments, mais vous n'aurez peut-être pas le choix. Bien que le médecin vous ait dit que vous deviez réduire progressivement le colsevelam, ce n'est pas très réaliste de sa part. De nombreuses personnes sur ce site devront prendre des médicaments pour la malabsorption des acides biliaires à vie.
Une tactique supplémentaire à adopter est de manger peu ou pas de graisses. Essayez le régime FODMAP, pour voir si cela aide.
Bon courage à vous!
I recently switched to a powder form of colsevelam, but it gave me bad stomach pains. What is the medicine you use like? Is it very reliable? My issues with Welchol is that I can't rely on it. I've also done the FODMAP diet and had a small decrease in the number of stomach upsets I had, but it wasn't a significant enough improvement that made me want to do it longer term
Alors, comment prenez-vous le colsevelam ? Le cholestyramine peut être un médicament similaire. Il est de couleur jaune clair et se présente sous forme de poudre dans un petit sachet. J'ai passé des années à le mélanger avec du jus d'orange et cela a vraiment perturbé mon estomac. Soit dit en face, c'est une substance désagréable.
Je mélange maintenant 4 onces de nectar de papaye avec 4 onces d'eau avec la poudre et je secoue le tout vigoureusement. Ensuite, je bois les trois quarts, j'attends 10 à 15 minutes et je bois le reste. Mais je le prends une fois par jour au coucher.
Je peux comprendre votre réticence à modifier votre régime alimentaire, mais malheureusement, le fait de ne pas le faire ne fera qu'aggraver vos problèmes à long terme. J'utilise du beurre de vache nourrie à l'herbe et de l'huile de coco pour cuisiner et j'évite les viandes grasses comme les saucisses. Impossible de manger de la pizza ou de la nourriture italienne. Ce qui m'a aidé, c'est de m'assurer de manger au moins une tasse de riz blanc ou une petite salade avec des tomates et un paquet de saumon chaque jour.
D'autres ont été aidés en utilisant un supplément de fibres, il existe plusieurs formulations sur le marché. Vous pourriez vouloir rechercher en ligne la malabsorption des acides biliaires pour voir ce que les autres ont fait pour gérer la condition.
Hello from the States -
I am so sorry you are going through this. How awful and limiting to just having normal everyday life. I had my gall bladder out 2 years ago in March, thinking it would fix everything - finding out each of us reacts differently to that GB removal. I started having serious pain and issues again in November, and have been to a regular doctor and two specialists since. Terrible digestive pain and upset the whole digestive process. Don't give up on searching for answers - especially on this site, and online- some people have no problems the rest of their lives, others like myself simply can never again eat even a semi-regular diet. I would still try again in the interim a totally LOW (I mean like next to no) fat diet as it can't hurt anything. Lynda who has already responded seems to have some good thoughts and very similar experience to yours. Part of the frustration is the waiting game, to be able to figure out WHAT is causing htis so much after surgery, like myself, and having no real answers yet- I know how that feels. Please know you're in my thoughts and prayers today-
Pulling for you to make it through this-
Jonna
Thank you, I really appreciate your thoughtfullness. I am planning on starting a food log (again) and taking it into another doctor to see if we can pinpoint a specfic thing that could potentially be causing the upset since it has started happening on strange occurances while I am on my meds. I will definitely keep your suggestions in mind.
I've gone back to the pill form of colsevelam. I will definitely research that. Thank you!
De rien ! J'espère que les choses s'amélioreront pour toi ! xx