Pain Treatments

Bones, joints and muscles
1

Hi,

I wanted to do a post of all the thingsI have come accross which has been used for people with fibro, i thought it would be good to get it all in one place and give anyone else some ideas for things to research or talk to thier Dr's about.  This is things I have come across over the internet across the board so potentially some medications i mention may or may not be available to your residing country specifically for Fibro. 

Perhaps anyone who has tried anything listed below could give thier personal experience with it.

Non prescription things:

1) Actipatch (I have tried this, not miraculous but I think it may have helped slightly, weather has been good so hard to know for sure, they are doing a trial version for £2.95 which lasts 7 days)

2) Ultralieve (Ultrasound device, never tried, quite expensive, not sure if it would help)

3) Pain master patch (Not tried, good Amazon reviews)

4) Gluten Free diet

5) Paleo Diet

6) Magnesium 

7) 5HTP

8) TMS recovery (if you goole search it you will find a free audio thing on Wikipedia)

9) John Sarno book "The Mind Body Prescription"

10) Accupuncture

11) Reflexology

12) Massage

13) Meditation

14) Yoga - were physically possible

15) Graded exercise

16) Bio Freeze

17) Deep heat

18) TENS Unit

Perscription Things:

1) Amitriptyline/Elavil - Old school antidepressant used in low doses to treat pain (Tricyclic)

2) Nortriptyline/Pamelorl - Old school antidepressant used in low doses to treat pain  (Tricyclic)

3) Gabapentin/Neurontin - Anticonvulsant medication

4) Pregablin/Lyrica - Anticonvulsant medication

5) Wellbutrin/Bupropion - Anti D (NDRI) (Have read it doesnt affect weight or sex drive like others do)

6) Cymbalta/Duloxetine - Anti D (SNRI)

7) Carbamazepine/Tegretol (Anticonvulsant) 

8) Lidocaine Patches 5% (Versatis) - HAD NOT HEARD OF THESE UNTIL I BOUGHT AN AMERICAN BOOK BUT THEY ARE AVAILABLE IN UK FROM PAIN CLINIC, YOU CAN CHOP THEM UP AND USE THEM IN VARIOUS PLACES, THEY ARE PRESCRIBED FOR POSTHERPETIC NEURALGIA BUT USED OFF LABEl FOR OTHER PAIN. MY GP WOULDNT GIVE ME ANY AS PAIN CLINIC HAS TO PRESCIBE FIRST

10) Trigger point injections

11) Co Codomal - Codeine and paracetamol (Varying strenghts)

12) Morphine - Opiate

13) Tramadol - Opiate

14) Diazepam - Benzo (Wont get long term)

15) Carisoprodol/Soma - Muscle Relaxant

16) Cyclobenzaprine/Flexeril - Muscle Relaxant

17) Robaxin/Methocarbamol - Muscle Relaxant

18) Lorazepam - Benzo (Wont get long term)

19) Low Dose Naltrexone (Please do your own research on this and speak with Dr as this is not FDA approved for anything but help with opiate addiction, Ive read limited reviews and the study was very small, they also claim to treat various ailments so that always makes me suspicious. I have an information sheet that was sent to me from them, they told me to take to my GP, I will be happy to share via PM should anyone want to see it)

20) Milnacipran/Savella - Anti D (SNRI)

21) Topomax/Topirimate - Anticonvulsant

22) There is a drug which is medical cannabis but i cant find the name of it.

There is probably many more and im hoping people can add to this list. 

Best wishes

2

colidaul gold 

ionic minerals 

magnesuim flakes for soaking in and spray 

q10 

b12

chillow mats 

hypnoses cds

 

3

Gluten-free diet has worked for me - no more heavy digestive disorders and my acne (I'm 35 and had it forever, nothing has worked) has cleared up. Codeine+paracetamol helps with the pain a bit but upsets my stomach so I prefer occasional Tramadol. For neurological symptoms I started tianeptine a few days ago - waiting for it to start working.

4

Valerian Root tablets for sleep (Non prescription)

5

The cannabis drug is Sativex.

6

Pregabalin/Lyrica helps me a lot

 

7

Hi Charlotte

Wow you have been ever so busy gathering all this information.

I have tried the following treatments which did not help very much over my years of pains which is now over 20 yrs with only being diagnosed Fibro Aug 2014.

Reflexolgy for me was painful and I used to come out of my sessions in tears.

Acupuncture for me had no effect even with electric currents being passed through the needles.

Yoga I found quite relaxing with their breathing techniques wasn't able to do all the moves but did enjoy it. Found it was time for ME.  Used to feel so relaxed after each session but when I got home the relax ME was not so relaxed with having kids demands.  I still do practice the breathing techniques whenever I can but doing the poses I have given up due to pains.  I am willing to return to the poses once my pains reduce.

Massage - was very sceptical about this one but I gave it a try this year only had 4 sessions with hot oils head to toe massage (Ayruvedic Treatment) but this was too painful but have put on hold.  Also at the same time I taking herbal remedies from the same Ayruvedic place and it's early to place a comment.  It takes a while for these to get in to ones system.  I will keep you all informed with my progress.  At this early stage I can say the constant pains I was getting in my neck, sholders and back with just a touch of a hand has reduced but the pains in my hands have increased where I feel a lot of weakness in both my hands.

Prescription meds didn't help me at all, only gave me weight gain and low moods.

I may also try Colaidal Gold suggested by Tiswas a few weeks ago.

Thanks for taking the time out to put this all out to us. wink x

8

Hi,

Thanks everyone for adding to the list of what's helped them.

To be honest massage makes me feel worse after and I didn't find much relief with acupuncture etc but a lot of people get relief from them so I wanted to add anything that seems to of helped some people, the only thing I didn't purposely include was osteopathy as I'm sure that added and really made my problems worse permanently and im now of the mind it's dangerous but I probably should have added it as others do find relief from it.

I'm sorry to hear no meds have helped you at all. Have you tried the lidocaine patches? I'm really holding out a lot of hope for those which I will be asking for in sept wheni have pain clinic. From what I've read they don't have many side effects and certainly not cognitive problems, it really made me mad id never heard of them accept from the American book considering they seem (from reviews) to be effective with minimal side effects, mad that not 1 rheumy, gp, pain clinic Dr etc had ever suggested them.

X

9

Hi Charlotte

I have used biofreeze with some success. My chiropractor  uses it after a session and I have a tube always in my handbag.  I am about to embark on hypnotherapy so will let you know if it helps.  I have got to the stage where I will try anything legal. Of course I am trying one at a time to make sure what works and what doesn't.

10

i found polar frost better and cooler .

hypnotherpy does help but takes a good few weeks 

11

Thank you Charlotte, well done you...such a helpful thing you have done here for us all..thanks heaps..have a lovely day..God bless you...:-) xx

12

Iphone/Ipad Apps

1) Pain Relief Hypnosis - Free Guided Meditation (By surf City Apps LLC), there is in app purchases for a bit more functionality but you get the mediation part free

2) Web MD Pain Coach - Completely Free (Tracks pain and offer tips to help for various conditions)

 

13

That Colloidal Gold is just  awsome ....:-) xx

14

That Web MD pain coach sounds fab..:-) xxxx

15

Hi Christine,

Please can you tell me what the colloidal gold is and how it helps?

I've heard of colloidal silver but not gold and can't find much info on it online, only snippets. Is it safe?

I took magnesium citrate before as its hailed as the fibro top supplement and it made me very ill quite quickly, side effects also stopped days after stopping it but I was a real mess on it, I had many more neurological symptoms as well as low mood.

thanks

X

16

I take 15 mils per day..you can also take 50 mils if you want to boost dose...

trace elements.....ingredients...purified water and pure gold-99.99%, no preservatives...it's done wonders for me.....a real lift...it makes me feel alive and that's saying something..I also take magnesium and Vit d3 double the recommended dosages of both...I bought 500 mil plastic bottle, made in New Zealand....purchased over the internet..-reputable Australian site...it's really worth giving it a try..it did take a couple of weeks to kick in...worth a google ..hope it helps..:-) xxx. I'm nearly finished my second large bottle..definitely buying more ...xx

17

Thanks Christine, been trying to look into it all morning, doesnt seem to be a huge amount of info I can find that isnt a company selling it. They did used to give Rhematoid Arthritis patients gold salts in place of a DMARD's back in the day.

xx

18

all you can do is to try it ,for your self 

and see the people iv reccomended it to have had good resultts and it defo improves your memory ,takes a least one large bottle  to get into your system before you see results .

19

Hits Charlotte, I've just emailed you where I get mine from...:-) xx be blessed..

20

hi just joined,so bear with me,brain not good at the moment,had fibro for nearly 10 years,just started getting worse in legs,feet etc.colloidal gold,need something better than what gp is giving.really fed-up with pain and tiredness. can you tell me where to find it.