My pancreatic elastase result showing a 164mcg which is abnormal. Is it true that it's not always a diagnose of pancreatic insufficiency even if it's abdominal?
Im sorry I'm only just diagnozed so i dont know whats next now mymy CT scan gone to specialist had a liver scan that doc diagnosed me off just waiting for specialist now ? Bit scared bit denial ?
It has to be low for a reason and I may have to redo the fecal fat test to eat 100g of fat before I collect stools.
I'm sorry I don't have exact answers for you, From the little I know of this test it could mean several things. When do you get to speak with your doc for more answers? I Know it's a tough time.
Hoe bad is it ive been diagnozed chronic pancreatitis im bit scared dont know whats gona happen to me im quite fit n healthyhealthy something is blocking mymy digestive duck which inin turn as caused this , i dont drink alcohol !
Im waiting for the specialist to send for me ,ive had CT scan he said once he had the results he would send for me , however imim having a endoscopy next week so he might be waiting for that ... i dont know if this has anything to do with the condition but i am so tired all the time x
I have a appointment on April 10th. That's when I'll talk to the doctor.
Let me know on your ct scan results soon.
It's really awful for anyone waiting on results. From my experience, the lack of energy is definitely from my chronic pancreatitis. No energy, no appetite. I'm sure the doctor is waiting on everything to get back to him before he sees you.
Yes then hopefully I'll get to understand more in depth what im up against , i dont feel in to much pain I've been off work to have the test but hoping to go back to work next week !
Will you please keep us informed? And please write whenever you feel like it. It's a hard thing to go through, and hard for others to understand.
So they already gave you a diagnosis of Chronic Pancreatitis? Have you had acute episodes?
Is 164mcg mild or moderate? Mild is when it's real close to 200mcg, right?
Ive been going to the doctors for 10 year with gastro problems had a endoscopy , barrets est , treated for IBS VeryVery sick painfulpainful episodes i stopped earing sausage bacon .. fat cut down , about 3 week ago i was bad again went to doc did blood tests my liver enylaze where high had a liver scan found a blockage diagnosec withwith chronic pancreatitis , i personaly think ive been having episodes of acute and misdiagnosed think ive had gallstones So seen specialist had CT scan waiting tp go back !
yes you're right, so they say. Did this whole thing start with you having acute pancreatitis? Horrible abdominal pain and nausea that sent you to the ER? Did you have gallstones or gall bladder issues? Have you had elevated lipase and/or amalyse levels? Do or did you drink a lot of alcohol? Don't even worry about being judged. I would't do that. I'm just trying to get a history. I spent years in and out of hospitals. One thing I can tell you is that there are many GI doctors, but I was surprised to find out over the years, how many don't really understand the pancreas itself. It was only after I got sent to a famous hospital (I don't know if I can say names on here) It's in Maryland.. anyway, the GI doctor who had first seen me and spent 2 years of me in and out of the hospital (hysterically begging to be put in a coma or be beheaded quickly- yeah that much pain from pancreatitis) He referred me to a pancreas specialist. At this hospital they have a pancreas team. I had a horridly painful procedure called a sphincterotomy. They also put stents in my ducts to widen them. They took good care of me though. On a pain pump and brought my daily trips to the ER to an end. Over the years I have lost energy and was barely 100 lbs to start, but can't eat anything without being full after a bite. I can't work and it's just a crappy ordeal, but compared to before, at least I don't live in a hospital (or ask to be killed in the ER!!) I don't know if any of this depressing story sounds familiar, but hope it gave you some info. Are you in the states?
yuk! I am so sorry. I completely understand, and it sounds like you have had a lot of acute attacks. I don't know how you did it! Read my reply to Marcus. I meant to write the whole story to you too,
It is kinda strange when I had severe abdominal pain with gas in my abdomen without a diagnosis back in December of 2017 then I had lost weight in early 2018 with gastroespohagal reflux disease. Then I started get bloating and floating stools regardless of what I eat. Like a salad, noodles etc and still bloated with floating stools.
Also my gallbladder is normal with no gallstones and did ct scan and abdominal ultrasound which came back normal.
Also my gallbladder is normal with no gallstones and did ct scan and abdominal ultrasound which came back normal.
Is that still going on? Are they greasy and like yellow colored? With the bloating, do you feel very gassy? Did they diagnosis you ever with anything besides reflux? Did you have blood work done during any of your painful bouts of abdominal pain? Did you go to the hospital when you had the bad pains? If you did, they would have for sure checked your blood. Did they ever say you had acute pancreatitis? I'm just wondering how the doctors went from reflux to doing pancreas testing? I know it's hard to explain everything on here. I don't want you to be inundated with questions. You don't have to say exactly where you live, I'm just wondering if you are in the states.