does anyone know if they can remove stones from my pancreas
Hi , I have stones in my pancreas it seems that they can’t remove .
I was diagnosed with CP chronic pancreatitis last March and been messed about ignored well basically just left .
I waited 17 week for a urgent app with a consultant at Manchester Royal .
He informed me that the stones are in my pancreas and that he is concerned about me as i have lost 2 stone . He told me that he wanted me in the ward within next 3 week to sort out my treatment and that i would feel like a new women !
how ever, 9 week later and still in pain No hospital app ,which now I understand because of this Corono virus .
I’m goung to ask if they can remove my gallbladder so nomote stones can go walk about.
once I’m in hospital and sorted I am putting the biggest complaint in possible
I feel so let down by the Doctors I have seen or not seen
I have fought my way through thiz I’ve been told I’m at stage 3 ,but not explained, what this means! I feel totally disregarded, with no regard for me and how i feel.
Does anyone else get extreme back ache? I was diagnosed with Chronic Pancreatitis June 2016 and have been on Creon 25000 ever since. I have improved considerably since then with very little support from NHS and no useful advice, but lots of advice on diet etc online which I have been consistently following - lots of greens ,cutting out the bad stuff etc. Now of course The NHS relating to this Dept aren’t even answering the phones - I understand we are in an extreme situation with the Coronavirus and that the rest of us will be taking a back seat as far as advice and attention is concerned. However - I wondered if anyone else experiences extreme back ache. Without that I would be feeling almost A1 . I had thought previously the back pain was as a result of ongoing pain I have had on and off all my life from an accident I had at the age of 8 years. However after reading more reports from sufferers on other sites it seems that this is fairly symptomatic of CP. and that far from doing exercises for the back pain that I have thought essential, I should actually have be resting it, which is what I am doing now. About a month ago these pains shot all over the place, but now they have settled around the back waist , midriff area, sometimes going up the left side to the shoulder blade. They manifest most of the time when I work on meals in the kitchen and are reduced when I sit down again.
Any help, advice or just hearing anyone else’s experiences would be so welcome . Thank you.
There’s a sac of nerves right behind the pancreas it’ll cause horrific spasms and bring you to tears. There’s the Celiec Plexus block but if you have nerve issues I don’t recommend it. Other than that, I found eating six small meals and substituting certain foods helped me when I had my pancreas. I would eat applesauce instead of apples, frozen instead of raw veggies and oranges have a natural anti-inflammatory in them which helped me.
Not without removing a portion of the pancreas. The only stones they can remove are in ducts and even that depends on the location. I’ve had ten ERCPs to widen my ducts but the only stones I had were gallbladder which they removed back in 2003 but it caused me more issues.
well they said I have a stone at the entrance of my pancreas, so thought about
inserting a stent to bypass it, my argument is if they can do this , why can they not extract it whith micro surgery
If the stones are not embedded in the pancreas, you should be able to get them removed via ERCP. I forgot to mention on the other thread that an ERCP procedure can cause a pancreatic attack.
Thanks for your input - I’ll try that. I know I should eat more often tho I usually manage 3 reasonable meals a day.
There is no micro surgery for the pancreas. There’s an ERCP but they usually do them to place stents or widen ducts, they cannot perform a micro surgery on a pancreas. The pancreas is behind/underneath everything. When I had my surgery they cut me from my breast bone to my c-section. It’s either major surgery or ERCP, but as the other comment stated, you chance an attack. I had an attack with the first couple ones, so every time, they admitted me for a week. Stents are usually placed for adequate bile flow though, so I don’t know what your doctor is trying to do.
yes back ach is normal
can I ask why removing your gallbladder caused more issues ,as i was going to ask them to do this to stop any more stones getting into my pancreas !
I think it depends on the person and for me because I had two pancreatic ducts instead of one, my ducts kept getting clogged up more and more. I didn’t have issues until after they removed my gallbladder. Then the bowel issues that they don’t warn you about. If you do remove your gallbladder, don’t eat anything fried!! You will literally be running to the bathroom within five minutes lol.
Also heat packs help a ton. Eating for me was hard, it still is! I keep Ensure in my house when I cannot eat.
Removing the gallbladder can cause Sphincter of Oddi dysfunction, which results in terrible esophageal spasms. It often results in an intolerance to many opioids (especially Morphine) as well as causing random spasm attacks. That means that if you are in the ER trying to get pain relief, you may wind up in even more pain!! The best way to stop spasms are with sublingual nitroglycerin or Levsin.
I am allergic to Morphine, Tramadol and Fentanyl. I had to have part of my pancreas removed recently and had it done with Ketamine because I couldn’t take anything else. It was INCREDIBLY painful.
I even had an awful SOD attack last night – all because I switched coffee creamers!! It can make your life miserable.
Just make sure that there is clear evidence that your gallbladder needs to be removed.
Also, there are pancreatitic stones as well as gallstones. So, removing the gallbladder may provide zero relief.
I don’t know why doctors prescribe Morphine for pancreatic patients, one of the side effects is GI problems and I think pancreas problems. Maybe the doctors aren’t aware but it definately makes the pain worse and can even cause bladder spasms. I too am allergic to Fentanyl which contributed to my pancreas symptoms. I hated being on Ketamine in the hospital, I couldn’t talk correctly or anything. I don’t like to be out of control where I feel drugged up or loopy. Usually my pain medication makes me energized, I always get the opposite effects. I completely agree with you, don’t remove the gallbladder unless it’s necessary, I wish they kept mine in!
Yeah, Morphine is the devil. I thought for a while that I was also allergic to Dilaudid, but it seems that I was having problems with how quickly they dosed me. And I hope to never need Ketamine again. I was trying to explain how much pain I was in after surgery, but couldn’t form the words. UGH.
Regarding gallbladder scans, someone told me recently that the HIDA scan is not the best diagnostic tool for gallbladder. I don’t know if there is a preferred imaging tool?
They did an ultrasound on me for my gallbladder but I had flu like symptoms and thought I had an ear infection because the pain was radiating up my neck and to my ear. They pressed on my belly and I screamed, I didn’t even know my belly hurt lol. They told me I needed emergency surgery the next morning. I started having issues a week later and they performed exploratory surgery after that. They took out my appendix and said I had adhesions. I was never the same in/out of the hospital ever since! They never told me back then I had Pancreas Divisium and you can’t tell me you’re going to take out a gallbladder and not know there’s two pancreatic ducts instead of one. It’s too hard to find pancreas specialists nowadays. I believe nowadays they can treat a gallbladder through an ERCP and diagnose through EUS but I don’t remember since my focus was on the pancreas.
Weird, I was just reading about gallbladder pain manifesting in the shoulder and jaw. First time I had heard that.
I had left shoulder pain (bursitis from sleeping on it), and when I tried to massage it, it zinged into my ear and nearly deafened me. The body is do weird…
I wonder if they even knew what divisum was when they operated on you…
I have 5 large stones in my pancreas plus a blockage in the tube . I’ve been told not a lot they can do about that .
Specialist said he’d get me into Hospital within 2 to 3 week that was 9 week ago and now with the coronovirus I’ve no chance.
He said all they can do is sort out the pain and diet he believes my diet is causing the pain ! He also said he might be able to unblock the blockage but no promises!’
I was diagnosed last March I’ve been messed about for over 12 month .
I feel so let down ! 17 week wait in my federal to the consultant and that was urgent ! He’s told me that’s he’s concerened about me & my pancreas at last stage basically fkd ! I’m scared am I going to die ? Is there anything He can do … He actually said 3 week in hospital I’ll feel like a new women haha I bloody hope So bit god knows when I’ll be treated now
obviously this Coronovirus beds have to be prioritized and I salute the staff that are dealing with this !
I work for the nhs I’ve had half year off work on and off . I’m back in work now I’m on morphine and Orimorphe I’ve lost 2 stone & nothing No help I feel I’ve just been left !
can anyone advice me
Yes my pain radiated across my back into my shoulder blade agonizing! I was going to ask the consultant if he could remove my gallbladder then no more stones can come loose adding to the onez that have already nested their!
oh see I feel so ignorant! the truth being I’ve just been left ! I don’t know what’s going on . I know I’m at the last stage and he said it is bad ! but I really don’t understand what the hell is happening or what is going to be done! 2to 3 week in hospital to make me feel like a new women ! Yeah right ! am I going to die ? is this going to kill me ? I asked about reg cancer testing He told me that because I don’t drink that won’t be necessary ?
They found a nodule on my lung Im suppose to have reg XRay to keep a check on this … have they NO !