For the past three years plus I have felt unwell with being really tired, pain and spasms in my left eye and pain and weakness in my legs and arms but more in my left side. I also experienced occasional shakes.I was seen by specialist and told I had fibromyalgia and was given pain relief and vitamin D as that was low but can't take the other meds to help as got crohns.
Things have not improved but slowly got worse especially over The past few months my symptoms have increased and become hard to cope with, I get horrible cramps in my legs, pins and needles and hot tingly feelings that affect different parts of my body but seem to be more in my fingers and feet.
The dead leg episodes are happening everyday now and sometimes my arm which keeps waking me up in the night aswell.
My legs shake when using them more my left one which makes me feel very unsteady. My left arm and hand shake when in a certain position and every now and then get twitches and jolts especially in my left arm.
My Stiffness is causing a lot of problems with doing little things like brushing my teeth, picking up things doing my hair etc causing me to get very frustrated.
My pain is now more in my legs and back but have had in the past pain and spasms in my chest like being squashed, I was sent for X-ray which showed my lungs were not deflating fully but doctor said it's nothing to worry about.
My balance has also got a lot worse as I keep stumbling and have fallen a few times.
My tiredness is the worst and I don't know how to explain it as it gets worse as the day goes on and I have to go to sleep....Never felt tiredness like it.
Had to go hospital as My back in pieces and can't control my poo as can't feel it....hospital referred me to specialist again!
Had a nasty turn didn't know what was happening as My left side was a lot weakar than usual, I was very scared as couldn't speak properly as my speech was slurred and slow and my head felt weird I felt very confused. Prior to this I had headaches and had four falls in two days as my balance was worse than usual but put it down to my fibro....again got to wait for consultation.
Took eight days to be able to speak better but here we go again two weeks later and speech not right again...started with head and eye pain again and felt extremely tired. My words came out slow and stumbled with me pausing to get out my words. my eye kept spasm and my left leg had a mind of its own and kept shaking. My back and legs really hurt and my feet were really cold with pins and needles again.
Want to rip my left arm off due to the weird feeling and hand keeps curling in.
Having a bit better day with my speech only pausing a few times to get out my words but seems to be happening everyday now...with tingling, cold feet, spasms, left eye pain and blurry, jolting arm and shaky legs not to mention the tiredness and head feeling full of cotton wool. Trying to stay positive and adjust and hopefully get some help from specialist.
Does anyone have any advice please?