It's all so silly - doesn't make any difference to the number of hours of daylight! By the time it gets to xmas here it is dark both ends of the day anyway. Though they had a winter in Scotland where they didn't change the clocks and I would go to work in the dark and watch the sunrise from the lab at nearly 10am and then it was dark before we went home - horrible. But further south it isn't so unpleasant.
Sí, es una tontería. Me encanta el horario de verano.
The further north the less helpful it is. It's quite nice, each changeover, for about three or four weeks, and then it makes no difference, you're back to getting up in the dark and all that happened was the evenings got even shorter....
Hola MariGrace. Gracias por tu respuesta. Es inusual estar con tanta prednisona durante tanto tiempo. ¿Estás libre de dolor ahora? ¿Cuándo te diagnosticaron PMR?
¿Crees que el MTX está haciendo alguna diferencia? Sí, me gustaría escuchar las historias de otras personas. Sí, los efectos secundarios de la prednisona son frustrantes. Tengo diabetes, cataratas y aumento de peso. No es agradable. Mantén la cabeza en alto.
Exactly. Though if they stopped doing it - what would the moaners do every spring and autumn! They'd not have an excuse...
Me diagnosticaron PMR en julio de 2016. Mi reumatólogo comenzó con 20 mg de Pred durante 2 semanas, luego bajó a 10 mg y continuó reduciendo hasta octubre de 2016, cuando llegué a 4 1/2 mg y los síntomas reaparecieron. Me subió a 8 mg y eventualmente llegué a 5 mg en mayo de 2017. En ese momento, añadió 15 mg de MTX y ácido fólico. En septiembre de 2017, noté que los síntomas comenzaban a reaparecer junto con falta de aire. Asumo que el MTX no está haciendo ningún bien y también está causando falta de aire. Comentarios, por favor.
You would be better starting a new thread - unless people are following this thread they won't see it.
I don't understand why he has added mtx at this stage? PMR lasts 2 years and more (usually more). Whatever you do, you won't get the patient off pred much sooner so it is ridiculous to put a patient on 5mg after 9 months onto mtx. In fact - someone has mentioned on a forum recently that their rheumy took them OFF mtx at 5mg because there it doesn't help. Most doctors are happy once their patients are at 8mg or less - that is a physiological dose and at that point you need the pred until your adrenal function returns.
mtx can cause breathlessness - and I doubt it is helping much. You won't know unless you stop taking it and sometimes people are surprised - but what dose of pred are you on now?
5 mg
Then if I were you I would say thanks but no thanks with regard to mtx. It is unlikely to benefit you at all and carried its own risks of side effects. At 5mg after a mere 9 months - why rock the boat?
However - i you have symptoms it could well be because you are on slightly too low a dose. You are never reducing relentlessly to zero, you are looking for the lowest dose that manages the symptoms to stick at until the autoimmune cause of the PMR symptoms has burned out and gone into remission which, as I say, is unlikely to be less than 2 years and more likely to be longer.