Hey all
Im struggling since 2020 with a mystery salivary gland condition that has affected my left submandibular and sublingual gland thit both got progressively hard, fibrotic, glass-like … before the removal of the glands I had the sensation that my glands were hard like metal, full of metal splints, broken glass etc. I was chewing on my left salivary glands non-stop for 6 years, they produced a crunchy sound. It became an addicton, I desperately wanted to break up the glass chards.
I have elongated styloids (Eagles syndrome) and my left styloid poked for years into my left submandibular/sublingual area, I could feel the extremely sharp tip there wreaking havoc. The styloid was removed externally in 2022, but my salivary symptoms remained.
Both my left salivary glands are removed now - the SM gland in 2025 and the SL gland 3 weeks ago. I have still all the symptoms - extreme fibrotic and hard feeling, the sensation that my salivary gland area is all atrophied or necrotic, artificial… crunchy sound and metal-hard tissues. I have the sensation that a metal cage is covering all the area under my tongue on the left. My right side is normal.
The histology for both glands showed fibrosis, mostly of “autoimmune” origine. I have Lyme disease, it has destroyed my glands and taken away my saliva, yet my right side feels normal. So I cant help but think that the mechanical damage from the styloid (now removed) plays a role on the left.
Im a human wreck, I cant swallow nor eat properly on my left side, it all feels hard. I know Im just 3 weeks post sublingual removal surgery, it is too early to expect the results. The gland side is still pressing out “glass chards and cubes” and metallic liquid.
Has anyone on this Earth had the same symptoms? Is this salivary gland fibrosis that has spread to sublingual bed? I have still all the symptoms, although my gland is out. Will the fibrosis get better with time? Thanks a million…