Hi all, I was looking for some advice if possible...
Currently having a bad flare of UC - been prescribed Pred foam for the first time after having pretty severe side effects from the Pred tablets twice before...
What are people's experiences of the Pred foam? Good/bad/tips/side effects/how it affects symptoms etc...
Any info greatly received,...
Cheers, Mel ☺
Hi Mel, sorry your going through the awful flare! I've found that with the foam they don't reach far enough into the colon and more than often mine just come straight out. I do prefer to use the liquid as they go all the way into part of the colon and seem to work better for me. See if you can get the Mesalazine enema instead!
Hope that helps. X
Thanks,
I know it's gross but I did wonder how far I should be putting the applicator in as I know from previous scopes my inflammation goes pretty far into my colon but I guess each time is different...I did also go to the loo about 10 mins after my first dose and did think I passed pretty mucheap moat of the foam back out...I guess I'm just going to have to wait and see maybe...I'm back at the docs next week and I do have a stash of the Pred tablets from my last course...I'd just really like to avoid them if possible...I'm taking 4g of the mesalazine tablets a day so hopefully they will do their job too...I just hate, as do we all, that there is no clear cut solution to this awful condition! Thanks for your reply though, Mel 😊
I burned and burned like my insides by my left hip was on fire and I could actually feel.. now this is going to sound gross, but my poop moving over it like I had sandpaper on my insides and had to stop taking it after 3 days as I bled even heavier. The octassa didn't work for me either.... Though I was given pred tablets (and eventually into my blood system as the inflammation wasn't going down fast enough) after being admitted to hospital and that worked with no side effects and only gained about 3 pounds after 6 months.
Thanks,
I did feel burning when I put the foam in too - I wasn't sure if this was normal or just me as I can tell by the pain I'm really inflamed around that area...I've not had any further burning but I now really do have a ridiculously sore lower back - I've had this before so perhaps it's just a coincidence...guess I'll keep going and see what happens...maybe if I do need to go on the tablets again it might be better this time round as I know what to expect more...even though that's what I thought the laSt time and it was still horrendous! Thanks for your reply though, hope you're doing better now. Thanks, Mel 😊
With the foam enema the whole long applicator should go in but it's the actual foam that doesn't reach where it should, mine have always come out. With the Mesalazine enema you use them laying down at night so you can actually feel the liquid reaching where it should....I would say if you can get an earlier apt I would try for that and in the mean time just keep trying the foam.
I'm on Mesalazine 4mg a day too and at times they do nothing but I'very also just been on them alone and they have worked great. Unfortunately I've got to the stage where I'm on infusions and Mesalazine....huff!
There are other types of steriods tablets that I've also been through but most DR don't know or they are too expensive -you could enquire about 'Clipper' and 'Budesonide' but stick with the foam and enquire about the Mesalazine enema.
Thanks Mel.. it's taken well over a year to actually get it sorted and into remission after 10 months of bleeding (from the first bout ever) - long story short, I'm azathiroprine and have just stopped the pred tablets... some scarring but I almost feel normal for what seems like forever! Though it's interesting you mentioned a sore back. I have had that too. The GP thought it's spondalitis (sp) but it seems as the flare has gone down, so have the back pains. I've also had pain also up under my ribs which seems to come and go but.. it's a paradoxical thing - you can also be constipated to the nines and yet seem to never leave the toilet!!!!! Is it possible that you could also be constipated which is causing the back pain due to the inflammation????
I really hope that the foam sorts it out for you. Fingers crossed!!!!!!!!!
Hola Mel. Lamento escuchar que estás pasando por un brote, no es bueno. Como Shal, encontré que los enemas líquidos eran más efectivos ya que van directamente alrededor del colon, mientras que la espuma solo llegaba un poco más allá. Aunque la espuma era más fácil de aplicar, no me daba el mismo alivio. La boquilla debe insertarse suavemente hasta que sientas casi como una sensación de succión, entonces sabrás que ha entrado lo suficiente. Encontré útil usar un lubricante a base de agua alrededor del punto de entrada primero para facilitar la inserción, realmente ayudó cuando estaba irritada y muy dolorida en esa zona, ya que dio un poco de deslizamiento a la inserción y no la sensación de forzar contra la piel seca y dolorida. No uses vaselina ni nada similar, ya que crea una barrera. Los enemas líquidos eran más difíciles de insertar/usar y necesitas acostarte en algún lugar quieto boca abajo durante unos 10 minutos después para que se distribuya por tu colon; esto también ayuda a "retenerlo" y resistir el impulso de ir al baño inmediatamente después. Solía tener más cólicos durante unos minutos después de administrar el enema líquido, pero después de que pasaba, era realmente bueno para aliviar el dolor y me dejaba dormir bien. No te rindas con las inserciones, lo que elijas usar; 2 o 3 intentos con paciencia y deberías lograrlo. Espero que comiences a mejorar pronto. x
Thanks looloo,
I'm going to persevere with the foam...day two today. I just hope it works and that I can avoid going back on the tablets. I'm definitely going to mention the liquid enemas to my GP when I go back next week too as it seems they may be more effective. Thanks so much for all of your advice! ☺
De nada. Avísenos cómo le va / progreso aquí. x