Recurring pityriasis rosea

Hello everyone. I recently posted about a month ago saying I was experiencing my second bout of PR. Now my spots are almost completely gone! Here are the things that have helped me that you might want to try

- rubbing oil of oregano over the entire PR area before bed each night

(this made my PR spots very itchy and irritated but whatever works right?!)

- taking an acidophilus probiotic pill each night before bed (known to improve digestive system)

- using an organic no-chemical body wash I found at the health food store)

- and I recently stopped eating beef and pork (I read one of the previous postings and read that they had become vegetarian) 

Hope this helps, if you have any questions don't hesitate to ask! I believe I experienced PR for a second time because of poor eating choices and stress. I have since cut out soda, fast food, and red meat from my diet. 

Question to group...do any of you have herpes simplex virus/cold sores/fever blisters?  My son who had this does and this PR outbreak cames at a super stressful time, much like fever blisters.   Head & shoulders worked like a charm

I am so fed up, I have PR again 15 years after my first outbreak which lasted 16 weeks, this time it is worse and i have it all over me apart from my feet! Brilliant! I am three weeks in this time with the herald patch in my belly button which is really sore and I am far itchier than last time! Doc said as I thought, sit it out and wait, been on the sunbed so at least I have a healthy glow amidst the rash! I know it will go as we all do, but can't help feeling a bit sorry for myself!

I feel your pain! I'm on my 4th round of PR, just 10 months after my last round. All 4 times have been after strep throat. I've learned that the tanning bed works best, however, it's such a slow healing process. I'm currently covered from heAd to toe (from my scalp to my toes) and miserable. Even though I know it goes away with time it doesn't make it less tolerable. I'm an avid runner and have not been able to exercise for 2 weeks so far due to itching. I'm currently using coco butter lotion because other lotions burn, taking extra Vitamin C and D3 and researching autoimmune deficiencies since I feel this is what I have. This means changing my diet and excluding inflammatory foods, and eating more anti-inflammatory ones. I'm in week 3 of this dreaded rash...just 9 more weeks to go...sigh..

Ah I am also relieved to see that I am not the only person to have has PR as a teen! I first had PR at the age of 16 after a rather stressful "life change". My herald patch was on my arm and for about 4 months the whole of my body bar my head and hands were covered. Since then, I get regular mini flareups (no more than 2 or 3 "spots"wink once or twice a year. 8 years on, I have one on my neck and forearm, and for the first time, they are itching! I had to go to 4 different doctors before it was diagnosed.

Head and shoulders on your body???

Hi there, I have had pityriasis rosea for more than 6 months now, its spread over most of my body and even a tiny breakout on my face, I have now ignored the doctors over it being Viral, I am on my 5th day of application of a fungal cream called Daktacort, its got something called miconazole nitrate in it, things are going well and my shoulders are almost clear now, only thing is its £5 a tube, but its certainly done more for it than anything the doctor has given me smile

I'm 20 and first showed signs of it when I was about 17-18 and I get it recurring at least 3-4 times a year. I however don't get the herald patches anymore and it just comes out into the little spot type patches. I've been given a cortico steroid cream which seems to help but I think you are right in that stress can help to bring it out!

Oh my gosh - to hear people have it recurring or never really going away makes me feel so much better (not that I wish it on anyone, but I don't feel so alone!)

I first got it 2 years ago (age 31). I had noticed 1 rash on my stomach, but thought nothing of it until a week later when I got up to take the dog out and felt like I was going to throw up. I felt sick all day (like really really bad). Then I noticed this rash on my back. Needless to say I freaked the hell out! I had never heard of PR before and thought I had chicken pox - I was due to take a flight in 2 weeks, so obviously was unhappy at that prospect as I would have had to cancel!

So as a lot of people do, I jumped on the internet and made myself feel worse with all the other possibilities it could have been, till I came across PR. Everything then made sense from the way I had been feeling, the herald patch, the itching I had had leading up to it (didn't have it on the patches luckily) and the formation of the rash. I went to the Dr and they confirmed that's what it was.

It seemed to take AGES to go - like 6 months! It would go in one place then pop up in another. I did feel somewhat lucky that I had it in places I could easily cover, and it was never in a really outwardly visably place.

So when it went I was so relieved, but then every now and then I'll get a random small patch of it pop up. It's usually only 1-3 small rashes on one particular place at a time, but they are so recognizable as PR (to me anyway).

When you read about it and everything says that it's super rare for it to come back, it was making me feel really freaked out that I keep getting little breakouts of it, but to know there are others out there in the same situation makes me somewhat at ease!! So thank you all for sharing your stories smile

Hi Jeanie, I too am on my 3rd sore throat in 6 months and 3rd PR outbreak. How did you work it was an auto immune issue? I've had blood tests to check for auto immune disease and I've been given the all clear. Have you managed to resolve it yet or are you still dealing with recurrences a year on? 

Whoa there.  One of the WORST things you can do for pityriasis rosea is let it dry out!  Keeping it moisturized also ensures less itching.  Do not let your pityriasis rosea get too dry!  It will in fact get worse instead of better.

I first experienced PR the week leading up to my wedding in Jamaica. The doctor basically said it would go away on its own (LOL). It progressively got worse over my wedding and honeymoon. When I got back to the states it had spread up to my neck and down to my groin. It looked like I was literally covered in poison ivy. I have never felt so helpless in my entire life. I tried EVERYTHING. I am very fair skinned so I didn't really want to "tan." However, I went to another doctor to get a second opinon and she told me she doesn't reccomend tanning to anyone, but that i needed to go to the tanning bed. Well I did, and had the most miserable night of my life. I woke up the next morning, and my PR was basically gone. I went back to the tanning bed that night again and by the next day my PR was gone. 

I am a CPA and I will honestly get in once a year or every other year around the time I get busy and stressed. Every time I come down with it, I get a month membership at the tanning bed and tan a few times and it goes away every single time. 

I will only use the tanning bed to get rid of PR but I must say, tanning is invaluable when it comes to PR. 

posted in wrong thread. But I think it is 100% due to stress. I was stressed before my wedding and got it and I seem to always get it when I am stressed at work (once a year).

Hi I'm just confused how do I have this if i never caught a virus, someone please help me

Hi,

I just saw your post and wanted to see if I can be of help as you say you can not get treatment. I am currently suffering from a virus which includes sore throat and chesty cough. Yesterday I woke to a second occurrence of PT. My first was two years ago and I was sent to a dermatologist who specialises in PT. he gave me cream and tablets that got rid of it very quickly. I have an appointment with him tomorrow morning and am hoping he gives me the same medication. I can let you know what they are if you like! I can't remember their names now but am certainly not going to throw away the left overs this time.

Hope your PT hasn't returned again.

Hi,

Just wrote this to another person who posted and thought I would share with you also:

I just saw your post and wanted to see if I can be of help as you say you can not get treatment. I am currently suffering from a virus which includes sore throat and chesty cough. Yesterday I woke to a second occurrence of PT. My first was two years ago and I was sent to a dermatologist who specialises in PT. he gave me cream and tablets that got rid of it very quickly. I have an appointment with him tomorrow morning and am hoping he gives me the same medication. I can let you know what they are if you like! I can't remember their names now but am certainly not going to throw away the left overs this time.

Hope your PT hasn't returned again.

Hi,

Just wrote this to another person who posted and thought I would share with you also:

I just saw your post and wanted to see if I can be of help as you say you can not get treatment. I am currently suffering from a virus which includes sore throat and chesty cough. Yesterday I woke to a second occurrence of PT. My first was two years ago and I was sent to a dermatologist who specialises in PT. he gave me cream and tablets that got rid of it very quickly. I have an appointment with him tomorrow morning and am hoping he gives me the same medication. I can let you know what they are if you like! I can't remember their names now but am certainly not going to throw away the left overs this time.

Hope your PT hasn't returned again.

Hi Lex!

Any update on what those medications are? I have had this issue for about 2 months now. Thanks in advance!

Hey Rob!

Yes I do. I was prescribed:

Erythromycin 250g tablets.

Telfast 180g (this is an antihistamine as my doctor isn't one hundred percent that this time I have PR. He still gave me the other meds to treat it as well. I normally don't do that as I prefer no medicine unless totally necessary but I just had to get rid of this rash. It went in two days).

DiproSalic ointment.

Hope these help you!

 What do you find to be the best moisturizer?  Everything I've tried burns