I had the Rezum procedure in Sept. 2019. I was previously scheduled to do the Urolift procedure but decided on the Rezum after some negative feedback about that from a Urologist who didn’t think highly of it. He thought the Rezum was a better choice.
On the day of the procedure, after taking the prescribed valium, I was asked on the way in if I would be okay if a representative from Rezum observed the procedure. Without thinking much about it, I agreed. Anxiety about the procedure and not knowing how it would actually happen was more in my mind.
I am taken in and put in a similar position as a woman in stirrups giving birth, and a younger woman (with Rezum) comes in with the male nurse and doctor. At this point I wasn’t comfortable with the idea, but didn’t voice my concerns.
With wide open crotch, and with this woman, not a medical professional, standing in the “front row” the procedure proceeded…
The blasts of steam lasted about 9seconds each and towards the end of each blast the pain level was 12 on a scale of 1-10. I nearly couldn’t take it, and I thought I had a high tolerance for pain!
I went home with a catheter and bag, and feeling a bit like the sexual abuse survivors I treated for 35 years as a LCSW. Adjustment to the catheter was painful and wearing a bag to work for several days wasn’t fun. After 5 days I took the catheter out, as directed, and soon found myself unable to urinate. I went back in and had the catheter put in again, and again went through the very painful adjustment of having it in.
I think the catheter was in for another 5 days when again I took it out. This time, although painful and difficult, I could eventually start peeing again. It took some time but eventually I started feeling more normal and experiencing decreasing BPH symptoms, ie increased flow and decreasing urgency and frequency.
After some time, and resuming sexual activity I discovered I had no ejaculation, ie I had retrograde ejaculation. I didn’t know that was a thing, but I now had it. At first I went through some feelings of being abnormal but found I could adjust to that, and unlike some men, my wife didn’t mind. At the time I was involved in an online support chat/group with many other men who had had mostly adverse reactions to the Rezum procedure and found that support very useful. I heard many stories that were worse than mine, and was able to vent my frustrations about my experience with other men who were feeling like me. Btw, my urologist seemed surprised when I told him about my online support group and the fact that so many men were having very negative experiences with Rezum.
So why do I write about this now after almost 7 years? After this procedure I soon discovered an irrational fear of going to see physicians, even my own personal doctor, who I respected. As such I found myself avoiding self-medical care, with an irrational fear of going to any physicians. I realized I had medical ptsd, but still avoided most treatment for about 5 years, when I slowly began “risking” to just go see a physician. I never went back to the urologist that performed the Rezum and as predicted I now have moderate BPH symptoms agai–, almost as bad as before the procedure. I’ve tried tamulosin, finasteride, and Cialis to treat the BPH symptoms but none of them have helped at all. I also frequently wake up with almost obsessive feelings of having been traumatized/exploited by this situation and wanting to warn others about the potentially negative experience they may be getting themselves into. When these night-terrors happen, I also relive the feelings of violation from my urologist’s insensitivity to my personal privacy. Had he asked me prior to being drugged and heading into the procedure room, I would never have consented to some non-medical woman coming if for front row seats to my wide-open crotch witnessing my medical trauma.