I've had RLS as long as I remember but I can't cope with it any more. Any time I sit down it comes on bad and no hope of falling asleep. I have been trying to sleep for 3 hours now but I cannot keep still and the jerking and stretching doesn't stop for a second. Desperate for relief..
Hello Blewbird
I use pramipexole it's used for Parkinson's, but it works for RLS
your doctor will decide whether to start you on a small dose, but a quick release one or maybe the larger dose but slow release.
Good luck
Ropinirole tablets or rotigotine patches are the most usual solution when the problem gets as bad as yours. We'll have to trust your doctor knows which is best for you.
Muchos medicamentos se usan para tratar el síndrome de las piernas inquietas... pero varían de uno a otro... debes consultar a un médico de trastornos neurológicos y hacer todos los análisis para detectar si tu RLS es primaria o secundaria, luego el médico te dará el medicamento adecuado... y te mejorarás... no te rindas... tu sueño mejorará...
Hi there had rls for 10yrs now tried everything but this seems to
Work to my relief tried to calm my anxiety by telling myself to relax
and calm down and it works mind over matter sort of thing,so I
tried it on my rls situation it worked I just simply said to myself
When the legs would start up " calm legs" over and over as you
relax your mind it also relaxes the signals to your legs.
You'll feel yourself relaxing you and your mind thus not sending
any anxious stress messages from your brain to all over your body
including your rls please give this a serious try it works...
I am fairly new to the RLS community but I have already found that a consistent bed time routine is essential. I have had RLS for years but have only resorted to medication a few months ago. Up until then cold showers on my legs or keeping my legs elevated for 30mins would stop m twitches.
Suggest you join a meditation class and pester your GP to make sure you get an effective medication.
Good luck
Nic
Su médico de cabecera es poco probable que sea un experto y, con suerte, puede derivarlo a un especialista. Ellos deberían poder comprobar cualquier deficiencia, por ejemplo, de hierro o magnesio, lo cual sería una solución fácil. Usted necesitará convertirse en su propio experto (¡eso es lo que me dijo el especialista!). Lea el libro RLS de Buchfuhrer, Hening, etc., y utilice estos foros. Si algunas noches son peores que otras, busque qué son sus desencadenantes: estrés, comida, horarios de sueño, medicación. ¿Está tomando alguna medicación para algo más? A menudo es una fuente de RLS. Intente reducir los desencadenantes. El médico de cabecera podrá recetar agonistas de la dopamina, analgésicos, etc., y usted encontrará alivio. ¡Mucha suerte!
I've suffered rls for 26 years. Been on meds 16 years..clonazepam 0.5 mg 2 at night. This works for me. Occasionally I'll wake in the night with the symptoms and need either more clonazepam or one co codamol which are prescription strength for a back problem. I sometimes think rls and lower back pain are related. Maybe I'll start a new question on the subject. Hope you find some relief ..don't give up.
Definitivamente siento tu frustración y comparto el consejo de pedir una derivación a un especialista o neurólogo. Estiramientos suaves me ayudan (ponerse frente a una pared con los pies planos, las manos en la pared y inclinarse hacia adelante/poner un pie hacia atrás a la vez, para estirar los gemelos). Omitir el azúcar o los edulcorantes también me ayuda, y receta para los brotes. Todos son diferentes y puede que requiera prueba y error, pero hay alivio ahí fuera. ¡Mucha suerte! ;
As beagle says it is important to check both your blood iron and ferritin levels. My RLS became so much worse over several months until tests showed very low levels of ferritin. It was easily treated with a course of Ferrous Fumarate (210mg). It didn't cure my RLS of course, but it is more manageable now.
I can comprehend what your saying. The RLS is driving me absolutely crazy. My doctor prescribed Sifrol which works a treat. Even told him that they are gold. However when I can’t get into the doctors to get another script for a few days and my tablets have run out OMG does the RLS give me hurry curry and sleep is almost non existent. I get up and walk around for a little bit but to no avail. I get so angry when this happens because I just want to go to sleep but the RLS doesn’t allow it. It’s mostly in my left leg yet I get bad cramps in my right leg. Also have it in my arms but it’s nowhere near as bad as the RLS yet. I have been anaemic for as long as I can remember so going to try to build it up by taking iron tablets. Hopefully it helps.
(0.5 mg of pramipexole with 25 mg topiramate) three times a day saved my life. I have 24 hour a day version. If you can tolerate the topiramate it is very good solution.
I feel your pain 10 fold. I have tried Ropinerole, Gabapentin, and Neupro. I also take a sleep aid (which honestly only makes me more sleepy than I already am) and as a result adds to my misery. I have tried leg massages, bay leaf tea, cold showers, and an over the counter rls leg cream. My bed time is in a room that is always cold, with the ceiling fan on, dark, and at the approximate same time. I wish I could suggest something to you that will help. I am hoping someone out there can relate to my experiences and suggest something new I can try.
Good luck.
Maybe these are suggestions I can make to my Dr. I am not familiar with either of those drugs. My rls is also around the clock. Is yours isolated to just your legs? I feel mine EVERYWHERE.
Mine is mostly in my legs, at least that is where it starts. The pramipexole is called Mirapex and is primarily a Parkinson drug I believe. The Topiramate is also called Topamax and is commonly used for migraines at 100 mg per day. I first used it to control an adverse drug reaction to Ambien. At 150 to 200 mg per day I noticed it wiped out my RLS, but it also wiped me out.
Nobody seems to be sure how Topiramate works and there can be interesting side effects. When you use the Topiramate you have to be careful to increase the dose gradually over time. Don’t get stuck on the precise times, use what feels right to you. You might not have to go with the Mirapex , you might be able to get the topiramate to work with the drug you are presently taking. Everybody’s RLS appears to be different from everybody’s else so the solutions will likely be different.
hi bluebird i empathise with you as ive also had it years..probably 53 in fact…unfortunately not a lot is known about rls in NEW Zealand by Doctors..i was finally diagnosed by a sleep clinic doctor about 20 years ago..he started me on sinamet,but 6 months down the track it wasnt having much of an affect and something much stronger was prescribed..it was banned ten years ago here ,so ropinerole was next..my mum and sister both have this hideous affliction…as we know this is something that can stem from many differant things..one theory is an old injury site…for me i had a motorbike crash when about 20 and the handle bars left me with a long groove in my left thigh…i feel a lot of rls stems from that groove..i think the nerves in that area were badly damaged…ANYHOW one of my semi life savers has been the use of a fairly robust hand held massage unit…initially massaging the tail bone area was great..but after trialing many areas i found using it on the pubic bone area has given me the best relief…the firmer the better…just one caution..make sure you remember to turn it off ..as you are going into a sleepy faze…its been a fantastic help in giving me a few hours sleep..
I’ve had RLS for about 5 years and it comes and goes. It seems to be worse when I eat too much sugar and drink alcohol. I prefer not to take prescription medications so I did a lot of research on this and it seems that RLS may be an underlying symptom of an overall autoimmune disorder. So, I first cut out all added sugar since sugar is one of the worse offenders for triggering autoimmune disorders. I also cut out alcohol because alcohol is a neurotoxin and RLS is fundamentally a neurological disorder of the muscles. I started taking Magnesium supplements because muscle control depends on having sufficient amounts of Magnesium to function properly and not cramp, which is how my RLS presents. But, I was still having problems - random flares at night right after I would go to bed. So, clearly I needed to do more. I learned that autoimmune disorders are exacerbated by Iron deficiencies. I didn’t have a blood test but I know that I have been borderline anemic all my life so I am assuming I am probably Iron deficient. I found a good source of Iron - Floradix - available in health food food store or online. I also learned that Vitamin D helps boost the immune system and helps control autoimmune disorders. Most people are Vit D deficient, I assume I am too. So I started taking Vitamin D3 (I’ve since learned that if you take Vit D3 you should also pair it with K2 to help absorption). Since I starting the Iron, Magnesium and Vit D I haven’t had any flare ups. It seems like all of this - diet and supplements is finally working. I’m hoping at some point I can get to the root cause of the RLS - whatever my autoimmune disorder is because it’s affecting me in other ways but until then I keep this regimen. Do your own research and good luck!