Im struggling to find anyone who has s-i problems. I can find a lot of US information but not a lot in the UK. I cant be the only one who is suffering with this.
My right thigh is numb and tingling, my right leg has gone shorter and I have pain in my hip & groin. Drs are convinced I've always had a shorter right leg but Im sure this is something I would of noticed before now. Im not getting any real help or tests. Ive had MRI which didnt show anything. Physio was the one that pointed me in the direction of S-I joint. After physio my leg goes the right length and I get relief for about a week.
Would like to hear from anyone else trying to live with this
Wish I had something positive to say to you but I haven't. After one year of what started with pain in the hip and groin developed into severe pain in the piriformus and lower back. Bowen Therapist who's been great diagnosed tight piriformus . MRI shows wear and tear nd 2 disc bulges. Chiropractor has twice released impacted right SI joint. Physio myofascial release helped me return to work but pain started again as job involves sitting at computer and driving. Sitting for any length of time becomes unbearable and I have to move. During the course of last year have been on different meds which only mask the symptoms and don't get to the cause. Done loads of online research from mind body connection to trigger points .Now getting acupuncture from 2nd physio for pain relief for sacroiliac joint dysfunction. Have some relief but still can't sit for long and this really impacts on day to day living. Been told theres a 6 month wait for injections at the pain clinic! Now exploring poss of private hospital
What help most? Coccyx cushion, hot baths and hot water bottle on lower back and trying to keep positive and in touch with work friends and totally believing I will get better.
I wish you all the best.
Hi, Today I was diagnosed with S I while at a pain manangement clinic for Fibromyalgia, though the dr feels my S I is connected with a back problem I have he said it is also typical of Fibromyalgia, so I am currently reading up on anything I can find about the condition.
Hi Shell
My other half has fibro and he is on a combination of tablets and just in the process of going to the pain clinic, he also has CFS and ostearthritis with his fibro.
As for me with my SI pain - I describe it like a toothache, its a constant nagging pain in one dimple at the bottom of my back which I get no relief from. Just been seen at the pain clinic and waiting to get an injection in my si-joint when I have had it I will let you know if its been worth it or not. SI pain is a funny kind of thing it also makes my back feel heavy and I walk with a limp but this is also down to my other back problems.
There isnt a lot of info about on SI pain and it seems very mis-understood.
Have you been offered the injection?
Hi Winnie105
Yes I've been offered the injection for my si, the dr said it is entirely up to me, as he knows the ones I had for my back didn't work, as for my fibro I'm on a combination of drugs, the dr wants me to try and come of 2 of them as he is thinking of putting me on ketamine
Can I ask what other injections you have had, Im due to have facet joint injections and cocyx injections along with my si injection. Having them done under sedation. Worried its going to hurt or not work.
Hi All,
I have been diagonosed with SI joint dysfunction recently after an accident at work. I l sipped on the floor and landed on my front think my hip took most of the weight!
SO fed up of the pain and agony this causes i don't know how any of you get on really as this is all quite new to me. I walk with crutches as my leg goes from underneath me, which causes me to fall on regular occasions! sometimes its so numb i cant really feel it, theres days where i cant even leave my flat as the steps outside are to steep for me to get down. Recently suffering with bladder incontinence episodes, did some research and SI can cause this as all the nerves are around the same place. Does anyone else suffer with this?
Completely feel like my whole life is on hold for 4 months i've been in the most unbearable pain, currently on butrans patches, tramadol, pregabalin 150mg, amytriptiline and diazepam. Nothing seems to work properly just want a day without pain.
Was reffered to the Muscular skeletal clinic where i saw an extended physio, she said my SI joint was misaligned and she manipulated it back, since been in even worrse pain! i know i have to go back as the doctors keep saying it will get fixed with physio. But its too painful to even do! Been reffered to a neurologist and pain management team but there is a hefty waiting list on the NHS. Feel like im running out of options and can't afford private treatment.
At 22 it just feels like i have know where to turn and no answers and i haveto deal with the pain everyday, i do have quite a high pain threshold as i had gall stones and a gall bladder removal so i know pain quite well and this is 1000 times worse!
Any help/answers anything would be hugely appreciated!
Kate
Hi
So nice to hear that people are in the same boat as me . I've had this problem for years but only have been aware of the condition 4 years ago after having my 4th child. While pregnant I suffered from SPD wasn't aware of having this problem with my other 3 children but PT thinks I did have this whole pregnant before.
Since having my daughter my pelvis and back hasn't felt good.I'm now having more pain then ever, I've had acupuncture,treatments with a chiropractic and seeing a physio who said it was S I joint dysfunction. The pain is unbearable can't walk,can't sit down I'm only pain free when sleeping.
I am seeing my GP later today but feel low as a mum of 4 I need to be mobile.
Hi
So nice to hear that people are in the same boat as me . I've had this problem for years but only have been aware of the condition 4 years ago after having my 4th child. While pregnant I suffered from SPD wasn't aware of having this problem with my other 3 children but PT thinks I did have this whole pregnant before.
Since having my daughter my pelvis and back hasn't felt good.I'm now having more pain then ever, I've had acupuncture,treatments with a chiropractic and seeing a physio who said it was S I joint dysfunction. The pain is unbearable can't walk,can't sit down I'm only pain free when sleeping.
I am seeing my GP later today but feel low as a mum of 4 I need to be mobile.
On a practical level I have just had adult services assess my house and Ive had, an extra bannister, a shower seat, a perching stool, new back & front door steps and a bed rail all done for nothing even though I own my own property - so try and get some practical help.
The numbness I get where you would have an appendix scar, my groin and my thigh. Ive tried bu-trans & fentanyl patches reacted badly to both so cant use them. Currently on no meds at all as nothing stops the pain so dont want to fill my body with tablets and I can judge my pain daily and know my limits.
I now need a walking stick and a built up shoe. I am managing to work part time but can no longer drive. Losing my independence by the day. Cant lift anything heavy and struggle to dress and care for myself.
Still waiting to have spinal injections to try and help the pain. Ive not been offered a neuroligist.
Without going into my ghory story, I got some good help with acupuncture in that spinal area....and some "INTERNAL" coccyx work from a physical therapist who specializes in this work ....for a while after a hip replacement 4 yrs I couldn't sit after a while when my body started to settle after this major surgery...yes it's major, more than I ever dreamed.
There is a site Spine Universe and they show specific exercises for the lower spinal and I do 2 important ones for this horrible issues. Do them laying on the my bed as it's tough for me to get on floor and get up NOW....
I can now sit longer, but I do get burning....I deal with OA and I'm 76 and never want a surgical knife near me again unless an emergency.
I'm in the U.S. and we have a lot of alternative healers here in So. Calif.
I understand totally what you are saying....
I'll give you an effective exercise for me anyway...visualize this.
Lying on floor or bed on back, pull one leg bended to chest and hold....then let it down....then do the other one and hold.....then bend both and bring them to chest....and hold....you are holding with your hands to get a good pull. This helps to open up the spinal canal. Do these often and HOPEFULLY they will give you some relief.
Thanks Winnie sounds like you have had a touch time.I do see an acupuncture from time to time.I'm booked in on Thursday.After crying at the doctors yesterday am having a MRI scan, I've got a SI joint belt which pressing on my pelvis is giving me some relief but not enough.
It truly is a horrible condition to have I think childbirth was easier then this.It's very hard to stay in a positive mindset, I guess it's just taking it day by day.
I also have this and have had it for over 20 years but only recently got a diagnosis I have had scans etc but mouthing showed up and then I went to the chronic pain clinic and found out that was my problem I was prescribed Lidocaine patches which I find help but it's all the other aches Ie my hips and when I lay down movement is hard and pain excruciating I am having Ian injection on Thursday by X-ray into the joint so hopefully that is going to help. I do feel for you as I know the pain that I go through I can't take anti inflammatories so have had to suffer in silence
I waited 8 months for this appointment tried the physio chiropractor privately but found that too expensive acupuncture when I was pregnant it was worse and then 5 children later obviously loads of ware and tare
Good luck with the injections, Im having mine on Friday - hopefully under sedation!!
Ive not tried the lidocaine patches, the morphine ones I tried made me really ill so been wary about asking for others.
We will catch up in a few days to swap stories on how the injections have gone. Hope there not too painful for us and we get some light at the end of this very long tunnel
Hi babe not too bad the injection went well not too bad and it was done under a local anaesthic . The lidocaine patches have no horrid effects like morphine if you can mention it to the pain clinic Where abouts are you
Evening from accross the pond.
Sorry for your pain. I have one leg shorter, back, hip and leg pain and cramps. Only mine come from having to leap out the second story window of my bedroom to excape the flames of a fire back on 12-29-2913. When I hit the ground I destored some disks etc. in my back. Was taken to a trama unit and had back surgery. Then had to learn to walk again, and this was just five weeks after my open heart surgery with four by passes and I had siggles in the summer of 2013.just for the hoot of it...lol
Its seems like the pain from one illness help prepare me for the pain of the next thing that happened to me. I tell you this not out of any pitty for me but that I have found a lot of other peoplel who have simular back, hip and leg pain and problems but from different causes We all seem to be brothers and sister in pain seaking some relief.
Blessings,
Ron
Hi April
Well my injections didnt go to well, suppose to have 8 managed 2. Pain was too much for me. The S-I Injection really hurt but bearable but the facet joint I couldnt stand. Have to go back for sedation and try again in 4 weeks - really dreading it now.
So today I have usual pain with after injection pain and other funny feelings going on
Sorry to hear that Winnie how awful I have been struggling since Thursday don't feel like it has worked not sure if it really hit the spot but I suppose it was worth a try it is earl days I had a little discomfort after but nothing to worry about. I do hope you get some comfort and they can try again