Hola a todos
Recientemente diagnosticado en junio de este año con sarcoidosis, tuve una vida relativamente normal hasta que esto ocurrió, mi pregunta es cuando tienes un resfriado común o incluso un resfriado de pecho, ¿es peor? ¿Cuáles son los efectos o signos a los que hay que estar atentos? ¿Algo que ayude?
Cualquier ayuda es apreciada
Colin
Where hove you got it.
Hi
Where have you get it.
Disculpas, debería haber dicho que lo tengo en los pulmones. Acabo de superar un resfriado, aún tengo la nariz tapada y hoy el pecho me duele diferente, como si pudiera estar desarrollándose allí, si eso tiene sentido.
Hi Colin,
I was diagnosed in March of this year. I am on reducing dose steroids and will continue on them until next year sometime. I have wondered about that myself. Luckily I haven't had any colds etc yet. Being on steroids reduces your immune response and it makes it easier for you to contract infections. The best thing is to avoid anyone you know that is sick and take precautions. Speak to your doctor right away if you feel unwell in any way. Maybe ask them about getting the flu vaccine. This probably isn't very helpful. Hopefully you won't get anything.
Regards,
Polly
Hola Polly
Gracias por la respuesta, solo estoy pasando un resfriado común, pero el pecho me parece que podría estar poniéndose pesado, si eso tiene sentido, así que un poco preocupado, no estoy tomando medicamentos para la condición, el doctor dice que no los necesito, al menos por ahora.
There will be lots of people here to help you through. Lungs seem to be the most common place. Luckily for me I have it in my legs.
Gracias por la respuesta. Me estoy familiarizando con esto recientemente también. No lo sabía, afectó las piernas. Espero que estés bien.
Hi Colin,
If it feels like that it would be no harm going to your doctor to get it checked out. Sarcoidosis can affect every part of you I am afraid to say. Hope you feel better soon
Polly
Gracias Polly lo hará
Hi Colin
I have it on my spleen kidneys lungs and legs.
I have been on steroids since October and have been reducing them from 35 mg and now I am on 4 mg a day so happy about that however since November i have had at least 3-4 chest/ lung infections head colds and worst of all a serious bowel infection which I was hospitalised for a week for. My eye sight has worsened and my appetite increased alot which lead to weight gain however steroids bloated my face and stomach anyway.
At the moment I'm suffering from dizziness and headaches but holding off for another week or so to see my doc.
Stay clear of anyone who is sick, but being honest with you you can't wrap yourself up.in bubble wrap, your immune system will weaken without a doubt and you will catch infections but just rest and try eat the best you can trust me it helps.
The steroids have worked so.far for the sarcoid so I am happy for that they have saved my life.
Hola Amanda
Gracias por la respuesta, espero que te sientas mejor también, es una enfermedad difícil de manejar. No me di cuenta de que el sistema inmunológico se ve afectado, pero espero poder cambiar eso. He cambiado mi dieta a muchas frutas y más verduras y he reducido otras cosas también. Tomo algunas vitaminas también.
Hey,
Before the steroids my immune was weak still, kidney infections, joint pain and colds and coughs were the.main ones so just try to look after yourself the best you can. I have more posts on her Colin, have a read the info might help you.
Are you in the UK?
Hola
No, no estoy en el Reino Unido, espero que no importe. Encontré este sitio buscando más información. Es bueno hacer preguntas a personas que tienen la condición también.
Hi,
It's an auto immune disease. Try stay away from multi vitamins, vitamin d amd calcium, they are like fuel.to the fire, sarcoidosis feeds off of these, trust me I have experience from this also my specialist here in Dublin has advised me of this.
Hola
Ah, vale, gracias por eso. No, no lo sabía. Solo estoy tomando vitamina C por el momento.
No that doesn't matter, sure I'm in Ireland I found it doing exactly the same.
Yea vit c is great also try some anti inflammatory vegetables and fruits, also ginger, liquorice and turmeric.
Ask me what you like, I can help the best I can.
Muchas gracias, eres de gran ayuda
¿Fruta y verdura antiinflamatorias? ¿Puedes aclararlo?
Ok pineapples, garlic, cauliflower, mint, cucumber, spinach, sea kelp, seaweed, like I said liquorice but from a health shop not a sweet shop.
Best thing is to juice everything that way you get it all in one hit., I make pineapple, spinach, cucumber, celery, ginger, lemon and pear. Try make it 80% veg and 20% fruits. Also add the turmeric too.
Muchas gracias, suena muy bien, espero con ansias probarlo