Thank you for your input too - it's much appreciated.
yes....very slowly.....I am very anxious too......when I went to 100 mg every other day......i started getting very bad headaches day 4 and got very dizzy...did that for 6 days....by that point I was unable to function....by the next day headaches were so much better.....and by the 3rd day I was back to normal......so worried I wont be able to come off this....thats why I need to keep telling myself to have patience...lol.....
We are all here to give each other support...and I have learned alot from talking to others....so thank you
You are most welcome. I have been contributing on various threads for nearly 8 years now. This is by far the best forum out there. I have tried many.
You will make it - it will just take time and i am only just starting my journey. I will keep posting after my doc visit to tell him i want to come off it.
Best wishes x
Here is what astounds me about dosages doctors start us on.......they really dont know where to begin.......more is not better ! I suppose high dosing alters your consciousness and then you don't feel the pain. But what is an adequate dose ? What is a therapueutic dose. Perhaps 300 mg is already to high ? You see, nobody really knows. no adquate scientific studies have been demonstrated.........we the patient can tell what is too much .
the same to you.....suppose to see the headache specialist mid October but going to call to get an earlier appt.....so I can start reducing this medicine......I find this to be the best forum too!!! Have a good day!!! Do you live in the states???
No i live in the UK. So many spinning sensations today..arrgghh but at least i know what they are now. I hope you have a good day too.
you sound like you have a worse day than me...my day was so so
I can't exactly say that my doctor's appointment went to plan. At times he can be very arrogant. He refused point blank after much arguing by me to allow me to reduce in any amount less than 300mg and said try 900mg for 2 weeks and so on. I did say that i had spoken to people on this forum and he said 'they are just people - i've had loads of people that have come off without any problems' and 'your scary episode sounds like vertigo and might not be related to taking Gabapentin' but did not offer to test to see if it was anything else. Grrrrrrr
He said that if you think you will get problems coming off Gaba then you will have problems. What a stupid thing to say - i'm not a little kid and these side effects are real.
There would be no point seeing another doctor either.
So here goes........wish me luck
Hello GP's can be arrogant, i got told off because i said my pysiotherapist had recommended i see a consultant and i had a letter to that effect!!! My answer to him when you said you had spoken to people on this forum would be..... yes they are people but they have experienced this drug!!! Also you know yoour body better than anybody else.
It could still be worth seeing another GP in the practice as different drs can have different views about the same drugs etc. I hope you get sorted soon. Best of luck.
Elizabeth.
Yes, that is a very stupid Doctor. they should be supporting you not opposing you......Dump this chump and find a GOOD Doctor. There are some out there. Some docs are very ignorant in regards to phamacology....there are many people like you and us that know our bodies and know what we are talking about.....we have the expirience.......keep up the good fight ........regards
Hi Ive been on Gabapentin for about 7 months - 600 mg once a day (take it at night) it was prescribed as off label for anxiety - mostly GAD (generalized anxiety disorder) and some insomnia. Anxiety very much improved on it...and no side effects, I thought. So my first question: can one develop side effects after lets say 5/6 months w none? Second question: Ive experienced a few instances of vertigo (one while driving - scary) and also lightheadedness - and balance issues. Ive had middle ear issues in the past - prior to GAba - but this does feel different. Im having an mri on Friday ordered by my neurologist - but since so many times dr's tend to minimize side effects..thought I would reach out and see what others have experienced.
Hi Patricia
In reply to your 1st question i would say yes. I've never suffered with middle ear problems. The doc said it might not be caused by the Gabapentin yet offered no other test or referral. I only started getting the vertigo 3 months after increasing my dose from 900mg to 1200mg daily. I had the lightheadedness from day one and have balance issues anyway but they became worse since being on Gaba.
As my severe vertigo attack happened whilst i was out shopping i was scared to go out on my own and that's no way to live.
Good luck with your MRI.
I can only go to a doctor within a certain radius of where i live. I have unfortunately experienced some others in the practise and they are no better. As for supporting me, well, that is a joke. It's more a case of 'here are some drugs now go away and manage it yourself'. This and 'i 've sen loads of people that have come off Gabapentin just fine'. That may be a fair point but they were not ME.
hi....Gabapentin is a horrible dangerous drug........Gaba can cause drowniess blurred vision and dizziness.......I will be seeing the headache specialist in 2 weeks......on 100 mg once a day.......going to wean off off the 100,,,,so nervous that I will not be able to get off this medicine....did fine weaning off from 400 to 100 then had problems....going to see if I can drop it 10 mg every three weeks........taking it for no reason now......not doing anything for me.....
Yes, one can experience side effects from Gaba. at any time during the course of treatment. Not unusual at all. In my case I've been taking Gab. for 4 years now and believed it was helping me cope with my RLS and anxiety.....however I started having adverse reactions about 2 years into it....mainly with problems in dizziness, balance, dificulty walking sometimes, stumbling around some, irritability, more anxiety and insomnia......all that ! So I was taking 600 to 1200 mg per day mostly in the evening. So the very thing we are taking it for sometimes makes it even worse ie. anxiety. This drug is classified as seizure medication but is seems to be commonly now used more for Pain, and anxiety. What are these doctors doing ? They seem to not be aware of the debilitating adverse side effects or greatly mimimize them. Go look up the adverse effects....do a search and you will see............NOT GOOD !
I'm detoxing myself now (not consulting the Doc's about it anymore as they are no real help. ) One must proceed very very slowly on down-dosing though. Rebound syndrome can be very troubling and discourageing even dangerous if too quickly. Never, never, never quit cold turkey.........can be disasterous. I've proceeded down from 600-900 mg per day to now 300 mg once per day. I' m feeling better but still do get some rebound affects ........now I've figured out to do two 150 mg about 12 hours apart since Gab. has a 1/2 life of 5 to 7 hours...........I'm making progress and determined to get of this horrible substance. Good luck to you...
YES FROM WHAT i UNDERSTAND when you come off this medicine your symptoms for what you were taking it for could be really bad...Can't wait to come off this med completely and I am only taking now 100 mg once day
I have definitely put on weight but I was chalking it up to being far less mobile since before the accident/starting Gabapentin.
Has anyone maintained approximately the same level of mobility since before and after they started taking GABA and still experienced weight gain?
Good. How are you feeling on 100 mg/ per day ? Any bad side effects ?
How much were you taking before you tapered off ? Regards, Jim B
I just started on Gaba . Doc prescribed 100 Mg TID. totally innefective, thimking seriously about just dumping in in the trash. Been on it two days