Simvastatin problems.

Like others on here I was prescribed Simvastatin for high cholesterol.

I took it for a few months and as I already had some joint problems due to osteo arthritis and pain with same ,I noticed it was slowly getting worse.I saw my GP who told me that I was on such a low dosage 20mg that it could not possibly be Simvastatin to be the cause and it was my arthritic joints getting worse.I had sleep disturbance as well ,muscle pain in legs ,then my feet got so painful that on awaking in the morning I dreaded getting out of bed.

I saw my GP again who again told me to carry on taking as he was sure it was not the cause of the problem.

It got so bad that I just stopped taking it as I felt sure it was the cause of increased problems,that was June 2011,my routine blood test was 4 weeks later but my cholesterol level had gone to 7.2 so I had to confess I had stopped taking Simvastatin,I saw another GP in the practice who put me on Atorvastatin(Lipitor)20 mg.So far no side effects.Dec.2011.

Hello,

I am also taking simvastatin for cholesterol and I am also in a great deal of pain through arthritis. In fact it has become so painfull that even with crutches it is painfull just going from one room to another.

The reason I'm replying to your post is to ask you, 'Did it make any difference to the pain when you stopped taking simvaststin'. The reason I ask, is because my pain got worse around the time I started on these tablets. I know it's a longshot and probably just a coincidence, but I can't afford to ignore anything. In the last month or two I have almost become a cripple.

I hope you will be kind enough to answer my question.Thank you.

Hello.Sorry to hear you are having a bad time of things.I am feeling a lot better since I stopped taking the Simvastatin.But my cholesterol levels went back to 7.6 in the 4 weeks after I stopped ,this following a routine blood test at the doctors.When I had to confess I had stopped taking it and why.It took the 4 weeks before I felt better for not taking them.

Fortunately I then saw the locum GP who said I knew my own body best, by then I felt better than I had for months and he prescribe me Atorvastin.The brand name of mine is" Lipitor",I just have 20mg the same dose as I had for Simvastatin.

I have osteoarthritis in my hips ,shoulders, wrists,neck.Very stiff on waking but more mobile once I get moving.I pavement walk my dog for half an hour each day,I used to walk him in the woods but manage flat surface better and I swim for half an hour 3 times a week,not fast but constantly, I find this helps keeps my joints mobile although still very sore.

I find I can manage not to take anti inflammatories every day as I know they are not good for me in the long run,so only take them when it is too painful to move around

,I take Arthrotec which has a stomach protector .Which I find are excellent.

I hope you find this of some help to you.

Hello Norfolk Gal,

I too have been prescribed Simvastatin ( now several years ago). Little by little my hip, thighs and knee muscles started seizing up and I have been in constant pain.Walking the dog pecame an ordeal rather than a pleasure and just after Christmas the pain was so severe , even pain killers didn't help. More detailed information about side effects was very scarce then and it's only recently been possible to delve a bit further... (Does Patient UK now have TWO discussion grous / Forums??).

On the older forum I found 3 people with very well reasoned and well-reseached comments about the effects of Simvastitin. I did more research.... to cut a long story short, I decided to stop taking Simvastatin altoghether for 2 weeks ( I have an appointment with my GP then to ''review medications''wink.

Gues what?! The pains in my hips, thighs and knees are easing daily, I need less pain killers and dog-walking is almost back to being a pleasure again. I also sleep better at night.

But I did one extra thing: I changed my diet slightly to consume more food products that scientifically and historically reduces cholesterol (e.g. oily fish, avocado pears, green tea, fresh nuts, green vegs ) and have cut out bacon, processed meats, eggs, cheese, white bread and less milk. I also take extra Omega3 fish oils capsules. Re-balancing your diet DOES matter, I realized.

I feel much better for it. The new diet change SHOULD have kept my cholesteral balance on a good level. We shall see at my next blood test. But at least I can tell my GP that Simvastatin is NOT for me ( my dose is 40 mg).

If you would like me to report back after GP visit and subsequent blood result, let me know.

Hopefully, that should

Thank you for your reply. I am going to go without the Simvastatin for a week or so and see if it makes any difference to the pain.

I was hit by a car and came down, smashing the windscreen. I then went back onto the road and another vehicle ran over me. I suffered lots of broken bones including my back and both pelvises, but the right side was the worse because it was broken in several places. I was 5 months in hospital, 4 of which I couldn't move from the neck down.

I eventually got sent home but was still unable to put any weight on the right leg for another 6 weeks.

Because a broken pelvis is not put in plaster like a broken arm or leg, it didn't heal back to exactly how it was before the accident. That is part of the reason it's hurting so much, the other reason is because at some time or another, my hip joint stopped being lubricated and in time the two bone sections of the joint wore away and when my doctor got the xray results, which I asked for, showed that it has got quite a bit worse and advanced Arthritis. I was suppose to have a hip operation to replace the damaged joint but because I suffer from venous leg ulcers, it's too risky to operate in case of infection, which is suppose to be very bad if it gets in the bone. Unfortunately, in spite of daily trips to the surgery for the nurse to tend the wounds, they refuse to heal. One ulcer is 5 years old and just gets larger. I have to spend nearly all the time on my back with my legs propped up to assist the circulation, not that it does any good, but I must keep trying.

I wont be coming to this forum again because every time I try to log in I have to reset my password god knows how many times before I eventually get here to join the forum. I never have this problem on other forums..

Anyway, take care of yourself and I hope you don't suffer too much, but unfortunately it's one of the downsides of age and we must all cope in our own way the best we can. By the way I forgot to add that my accident happened in November '09.

Cheerio and best of luck to you,

Micky Sullivan

1 or 2 weeks didn`t seem enough to get the Simvastatin out of my

system.It was 4 weeks approximately.But I then had to take another form of Statin because of raised cholesterol levels.So please don`t stop taking the medication long term without seeing your doctor.

After having similar problems with muscle pain, especially my feet, I had been taking Simvastatin 40mg for two years, my GP finally told me to stop taking them. My condition has improved and is still improving. However, my GP insists that all statins are basically the same and have the same side effects and he won't try me on another.

I am awaiting the results of further blood tests and will be seeing a different GP for a second opinion. Any comments would be appreciated.

Colin

Hello Colin S,

Like you the pain in my feet was the final straw.As I have written previously ,I am now on Atorvastatin,been on it for nearly 6 months and so far so good.I was a bit apprehensive that it would give same side effects but, so far so good.The brand I have is Lipitor,but sometimes I am given a generic brand,but it is all Atorvastatin .My cholesterol level is now 4.1 I had a blood test 4 weeks ago.

Which is good ,as I was not going to take Simvastatin again because I was so sure it was the cause of the problem.But I knew I needed to reduce cholesterol levels as they were so high without it.

I think that seeing a different GP was helpful for me so I hope the same for yourself.

Good luck.

Hello Norfolk Gal and Colin S.

I have now been OFF statins since last January (especially Simvastatin). As someone pointed out earlier, ALL statins have basically the same side effects, so if you are sensitive to any of the side effects the statins bring with them, then it won't matter which specific statins you are taking - you will be hit by the side effects.

Like many other people, I am affected by (crippling) muscle and joint pains and dysfunction. I fully discussed my reservations with my GP ( about 3 weeks after stopping Simvastatin). I also told him how I had researched dietary changes and alternatives and that - initially - I wanted to go down that route. I also found in my research that, statins are not perhaps all that , that '' they are cracked up to be''. However, Big Pharma earns an awful lot of money by pushing these drugs. They also pay GPs bonuses for the prescriptions.....

As a result of the open and frank discussion, my GP (whom I trust) sent me off for a blood test, looking for multitudinous scenarios, including any sign of artheritus or rheumatoid artheritus ( there were none!). My cholesteral level were slightly higher than it should have been - but then - after all, I had only just started tweaking / changing my diet.

I started off by changing from eating red meat to eating more fish, especially oily fish (fish, green salad and raw coloured vegetables for breakfast with black rye bread, followed by a banana and / or a plain youghourt with honey). I have added cholesteral-lowering food to my diet from there. You can change your cholesterol level by the food you eat!

For me, this has meant that I can now put my socks and shoes on in the morning again, bend down to pick things off the floor again, walk to the PO Box in the village again , take the dog out for his twice daily 40 minute walks again, do gardening again and go on walks and hikes and start cycling again, stroll around our local little market town on market days for a couple of hours hunting for bargains again.

There IS something true in the saying ''You Are What You Eat''.

Changing a GP is not always the answer. Do your home work and then make sure your GP knows what you want and engage him / her in a frank and honest discussion. Make and bring (short!) notes with you to your appointment from your research and own experiences.

Another benefit of changing my diet has been, that I have also lost weight quite naturally ( for my height and build I carried about 5 kgs excess weight) I have one kg more to go.....

I will be very interested in hearing from people who have travelled a similar ''journey'' to myself and will be quite happy to share my own experiences with anyone keen (as I was) to try and take My health a little bit more into my own hands and not to be so daunted by GPs and Big Pharma....

Hope I have posted something POSITIVE!

Simvastatin and Lipitor gave me terrible muscle problems, I would wake at night and be almost crying with the pain I have familial hypocholesterol so now take ,rouvastatin and ezetemibe with no pain

Hi Pamdish,

Glad you seem to be sorted with a cholesterol lowering drug.I shall take note of the names of the ones you take .Just in case I have to change.

Fortunately so far I seem ok on the Lipitor,it has been nearly 9 months now.Diet control alone is not enough for me so I need to take something.

Good Luck.

I have the very same reaction to simvistatin - my arthritic joints get way worse and I feel like Im 85 years old.  I am seriously contemplating stopping statins altogether.  The doctor tried Atorvistatin on me but I woke up after the very first dose with my right hand and lower arm crippled with pain.  This is ridiculous to do this to ourselves.  There is a lady in my senior housing facility that is in a wheelchair and people say it's from taking a statin drug.  

As an update to the above, after a month without taking Simvastatin I was virtually pain free. I then went back on to Simvastatin but at a reduced dose of 20mg. This has worked fine for almost two years but I am now back with the hip pain which is becoming unbearable. I stopped the Simvastatin two days ago and the pain is already subsiding. My GP plans to put me on Atorvastatin 20mg and we'll see how that goes. However, I don't want to take Simvastatin, at any dose, again.

Hello Colin,

I hope it works for you I have been on Atorvastatin for almost 3 years without side effects.Like you there is no way I would risk Simvastatin again.

Regards Rita.

I also have arthritis and fibromyalgia and the simvistatin wreaked havoc and made my joints so crippled with pain, I thought I was going mad.  It's amazing how medical science is so naive or brainwashed by the pharmaceuticals . . . statins were supposed to be some kind of miracle drug and the pharmaceuticals will push to keep it that way despite the overwhelming evidence to the contrary . . . it's outrageous that the reality of a drug is so ovrshadowed by the pharmaceutical power brokers.

Needless to say Ive stopped all statins now and every day the pain is decreases.  My exercise walk feels easy and enjoyable instead of being so impossible I give up in dismay.  

The problem is statins cost 5p each, the ones I take for familial hyper cholesterolaemia are £1 each, my consultant has sent a letter to my Drs stating I am to stay on them unless HE says otherwise, as so many G.P. practises are trying to save money, they want you on cheap drugs.

Just an update, after just missing one Simvastatin 20mg I noticed a marked difference in my pain level and after four days I am pleased to say I am virtually pain free.

The plan now is for me to stay off statins until the end of the month and then try Atorvastatin 20mg and see how it goes. This will be the third statin I have tried..... time will tell

I am not surprised that your relief from pain was so sudden.  There may be further occurrences as Ive heard that the complete remission from pain can take up to a several months.  I am noticing a daily improvement that is vivid !  

lol your congratulations to Pamdish seem rather inappropriate as she was stating a complaint with statins like the rest of us are doing.  Are you sure this is the right venue for you?

Perhaps you should read her comment then mine again.