Hi everyone,
I’m hoping to get some advice from people living with Sjögren’s or who have been through a similar diagnostic journey.
I recently saw a rheumatologist and was diagnosed with fibromyalgia, but I’m struggling because I don’t feel like Sjögren’s was ruled out despite having a positive Anti-Ro antibody and ENA result and symptoms that seem to overlap.
My symptoms include joint and tendon pain, morning stiffness, trigger finger, gritty/burning eyes, recurrent nosebleeds and chronic constipation, amongst other things.
During my appointment, I don’t feel that my dryness symptoms were explored in much detail and I haven’t had any Sjögren’s-specific investigations such as tear testing or a lip biopsy discussed.
I’m not looking for anyone to diagnose me over the internet, but I’d really appreciate hearing from people who have Sjögren’s:
What symptoms did you have before diagnosis?
What tests led to your diagnosis?
Were you initially diagnosed with fibromyalgia or something else first?
Did anyone else have positive Anti-Ro antibodies before receiving a diagnosis?
I’m trying to understand whether it’s reasonable to ask for further discussion or testing, or whether others have had similar experiences before eventually receiving answers.
Thank you 
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Since being confirmed and diagnosed with Sjourgren Syndrome from biopsy and other tests, I have not been seen by anyone from the medical team after that and have been left to my own devices for many years. Even, since being diagnosed with Celiac Disease and Autoimmune Disease, I have not been seen by any medical team as yet for many, many years. Even with Osteoarthritis not being seen by anyone from the medical profession. It seems at times we the patients don’t matter anymore.