Cónyuges de hombres discapacitados

Hi there .I have been married to a my husband for 33 years and love him dearly. He had his first bout with cancer when our youngest was about 3 months old .He had a testicle removed and did radiation as a safety measure.He had it reoccur 3 years later . This time it had metastasized to his spinal chord and it paralyzed him . We had a 3-a5 and a10 year old.He. Was I the hospital for 3 months receiving 4 rounds of chemo and learning how to work with his body limitations. During that time he developed a blood clot that went from his ankle to his groin.He has since had prostate cancer,a hernia that the Doc said was the largest he had ever repaired arthroscopicly. He also developed diabetes from the affects of chemo on his liver and pancreas.He then had a heart attack with a triple bypass.He is just p*ssed about everything and who could blame him. I have been with him through thick and thin. I work full time and it has been challenging trying to raise 3 girls on social security and my income,but I think we have done it well . My biggest issue is that he is understandably negative but it is difficult for me to deal with on a daily basis. I believe that because he is angry at all of his surgeries and feels powerless he gets frustrated and sort of has a low frustration thresh hold . Has anyone else out there dealt with this.I feel like I need support but working full time and having limited resources . Don't quite know the best way to start this conversation.So here I go. Anyone else out there dealt with anything similar and would you like to share wisdom or experiences ?

Hola Msky, en el Reino Unido es posible que puedas obtener algo de apoyo contactando a Macmillan, una organización de apoyo contra el cáncer. Este párrafo es de su sitio web: 

"Si estás ayudando a un ser querido a superar el cáncer, Macmillan está aquí para ti. Puede que sientas que solo estás haciendo tu parte, pero la ayuda que proporcionas es vital. Entendemos cómo esto puede afectarte físicamente, emocionalmente y financieramente a veces. Es probable que tú también necesites apoyo y estamos aquí para ayudarte."

 

Hi Dan thanks for your reply.It was the only reply. I don't know if I should put a different heading or catagory but I am kind of sad I did not get a little more response.Its been a challenging road. Again I love my husband and am just looking for better ways to support both of us . Thank you again for your response .

Hola Msky, quizás podrías volver a publicar esta discusión en el foro de cáncer:

https://patient.info/forums/discuss/browse/cancer-3358

He descubierto que ayuda si puedes formular con precisión lo que buscas en el título de tu publicación. Por ejemplo: "Se necesita grupo de apoyo para el cáncer" o algo similar.

Personalmente, creo que te beneficiarías de ir a un grupo de apoyo local. Simplemente compartir tu experiencia con otros podría ayudar ya. También podrías obtener algunos consejos prácticos sobre cómo encontrar algo de tiempo para ti en tu rutina diaria.

Espero que encuentres el apoyo que necesitas.