Hi there .I have been married to a my husband for 33 years and love him dearly. He had his first bout with cancer when our youngest was about 3 months old .He had a testicle removed and did radiation as a safety measure.He had it reoccur 3 years later . This time it had metastasized to his spinal chord and it paralyzed him . We had a 3-a5 and a10 year old.He. Was I the hospital for 3 months receiving 4 rounds of chemo and learning how to work with his body limitations. During that time he developed a blood clot that went from his ankle to his groin.He has since had prostate cancer,a hernia that the Doc said was the largest he had ever repaired arthroscopicly. He also developed diabetes from the affects of chemo on his liver and pancreas.He then had a heart attack with a triple bypass.He is just p*ssed about everything and who could blame him. I have been with him through thick and thin. I work full time and it has been challenging trying to raise 3 girls on social security and my income,but I think we have done it well . My biggest issue is that he is understandably negative but it is difficult for me to deal with on a daily basis. I believe that because he is angry at all of his surgeries and feels powerless he gets frustrated and sort of has a low frustration thresh hold . Has anyone else out there dealt with this.I feel like I need support but working full time and having limited resources . Don't quite know the best way to start this conversation.So here I go. Anyone else out there dealt with anything similar and would you like to share wisdom or experiences ?
Oi Msky, no Reino Unido, você pode conseguir algum suporte entrando em contato com a Macmillian, uma organização de apoio a pacientes com câncer. Este parágrafo é do site deles:
"Se você está ajudando um ente querido a passar pelo câncer, o Macmillan está aqui para você. Você pode sentir que está apenas fazendo sua parte, mas a ajuda que você fornece é vital. Entendemos como isso pode, às vezes, afetá-lo fisicamente, emocionalmente e financeiramente. Você provavelmente também precisará de suporte e estamos aqui para ajudar."
Hi Dan thanks for your reply.It was the only reply. I don't know if I should put a different heading or catagory but I am kind of sad I did not get a little more response.Its been a challenging road. Again I love my husband and am just looking for better ways to support both of us . Thank you again for your response .
Oi Msky, talvez você pudesse republicar esta discussão no fórum sobre câncer:
https://patient.info/forums/discuss/browse/cancer-3358
Descobri que ajuda se você conseguir formular precisamente o que está procurando no título da sua postagem. Por exemplo: "Preciso de um grupo de apoio para câncer" ou algo parecido.
Pessoalmente, acho que você se beneficiaria em ir a um grupo de apoio local. Apenas compartilhar sua experiência com os outros pode ajudar. Você também pode obter alguns conselhos práticos sobre como reservar um tempo para você no seu dia a dia.
Espero que você encontre o apoio de que precisa.