I wondering how steroid inhalers like Folvent work for you people on this site. I'm not sure I notice any difference.
Russ
I was diagnosed with Bronchiectasis when i was 50 but pretty sure i had it a lot longer always having chest infections out of breath for years and i mean years i take nothing i just do a lot of hillwalking think exercise is the best thing do out i still get out of breath but just carry on.
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Tomo Symbicort, que es parte esteroide (corticosteroide) para reducir la inflamación y parte agonista beta para abrir las vías respiratorias y mejorar la respiración.
En parte estoy de acuerdo con tu observación, Russell, ya que no noto una gran diferencia si olvido tomar mi dosis matutina o vespertina o incluso ambas (esto último no es común, pero a menudo olvido la dosis vespertina si estoy fuera o incluso en casa en el portátil o viendo la televisión. Llego a las 11 p.m. más o menos y me doy cuenta de que la olvidé).
Por esa razón, cuando mi pecho se siente particularmente bien, a menudo reduzco la dosis matutina o vespertina o ambas de dos inhalaciones a una. También he experimentado con dejarlo por completo, pero después de unos tres días me doy cuenta de que mi pecho siente que lo necesita de nuevo. Esa cosa es malditamente cara (soy un británico no residente ahora) pero no quiero perjudicar mi sensación de bienestar. Algunos pulmones en Tailandia me han dicho que podría/(debería?) dejarlo - ni siquiera está realmente diseñado para los sufridores de Bronquitis (creo que es más bien un pilar del asma). Pero creo que conozco mi cuerpo mejor que nadie. Le digo a mi pulmón del Reino Unido en Papworth mis dosis cada seis meses cuando voy a un chequeo y nunca me han dicho que lo deje; más bien me dicen que mi función pulmonar sigue siendo bastante buena.
Error tipográfico en mi publicación - agonista beta, ¡no agonista!
Hiya,
I Ditto what Steave has said I take Symbicort also,so I really don't know the one you are using,feel I could stop it all together at times as I do for days and must say I don't feel any different off or on it,it's the AZ that has made such a big difference for me
I'm on Symbicort too. I was diagnosed with BX in December 2016. I've not noticed it making any difference to my breathing. It feels just the same before and after using it.
Perhaps there was a typo and you're actually using Flovent? It's a steroid asthma med, so be sure to gargle fiercely with water & then spit out the water afterwards.
Are you from New Orleans? I lived there a few times, mostly Garden District & Irish Channel.
Steve, thanks. I had taken Asthmanex for years and was paying $180 for a three months supply with my insurance but for some reason, and I think it's becasue Trump is president and now Big Pharmo thinks the chains are off, so now the Asthmanex is $600 for a thre month supply.
But back to the point. I don't notice somuch difference being off for several days. As you said it's an asthma drug and my asthma has been controlled very well for years. I have to think about this more and get more information.
Thanks
Russ
Charlie, yeah Symbicort. Its for asthma and not for BRX as Steve mentioned above. I agree, what has changed my symptoms dramatically is AZ.
Interesting isn't. Im going to talk to my doctor about it. Good to hear from you.
Russ
Peter I agree. Exercise is the cure for just about anything. So you do not take a steroid inhaler for asthma? So the exercise has help with all of your symptoms?
Russ
Hi Russell I take nothing just walk i havent been given anything for it seem weird when you guys are all taking something. I do feel tightness in my chest and breathless a lot. I spit as much as i can to clear the chest but if i get an infection i spit a lot green vile maybe have to see my doctor about getting some medication.
Regards Peter
I also wonder how much actually goes down your throat. I rinse out my mouth afterwards as recommended and can usually feel a very small powdery deposit there.
A spacer helps some with getting more out of each dose.
Yes I do also. Asthmanex used to get down fairly well, but Flovent seems to produce larger bits of the medication that get stuck in my mouth to be washed away with a rinse.
Russ
I check on that. Thanks Altarg.
I take Advair rather than Symbacort. I do have asthma as well as BX but I've had good luck with it using it twice a day
Charlie, Iv been thinking of going to Mayo Clinic, voted the best in US for Plumonary Disease. I have not seen a doctor yet, but recieved a comment from one of the patients at Mayo. Whay follows is an excert:
I started seeing my doctor there in 2013 whereupon he said NEVER take
azithromycin again! His reason was because it is considered one of the more
potent drugs they use to combat our MAC, and he didn't want me to build up a
tolerance for it. He said I may need that BIG GUN some day. In 2013,
I was put on a prophylactic of alternating month of Cipromycin and
Doxycycline, both on a 10 day course. (no salt treatments) Then I got a
positive test for MAC colonies and Pheudomonas bug of some sort in 2016. I was
then taken off of the doxy and it got replaced with tobramycin (28 day
course) and stayed on cipro(10 day course) on the alternating month. Plus
added the salt nebulizing treatment. All coughing ceased in August 2016 and I
feel like a normal healthy person despite having very little lung function left.
Now, I battle with fatigue. Hope this helped.
Have you heard of this way of using antibiotics? Do like the idea of not using AZ forever and creating super AZ Bugs.
Russ
Hiya Russ,
Makes sense I will show this to my Doctor and ask the same questions but you said that was told to you in 2013 to get off but you are back on it again as I thought from past Replies?
Going to Mayo is a good start,it will be good to find out what they say keep us all poasted and Thanks for the update.
Best,
Charlie
Charlie, sorry about the slow delay. Im glad you are going to ask your doctor. Im going to send the message to my ID doctor who is prscribing the AZ
Best
Russ