These supplements are a miracle for my exhaustion

Brain and nerves
1

Hi guys, I don't usually write on forums so I apologise if this is badly written or it takes me a while to reply to anything but I thought it was really important to share what I have found from trying out various different supplements and medications to help with my everyday exhaustion, sleepiness and brain fog.

Around 2 years ago my CFS had gotten to a point where I couldn't continue in my job, I couldn't go shopping, I couldn't concentrate or do much apart from rest almost all day, almost everyday - not ideal - with an overwhelming fatigue even when I stayed in bed. The doctors found nothing wrong with me of course and I was shipped off to exercise therapy! For someone who was at a point where they could just about get out of bed, feeling like they'd already just done a marathon, this was a bit of a slap in the face and left me feeling very hopeless.

But I decided to try out as many different supplements as I could find that are supposed to help with CFS in terms of energy levels and boy do they work!

I realised today just how much. I'm trying out a fasting detox where you're supposed to rid your body of toxins and only take certain ingredients, so (bad idea!) I stopped taking my supplements, and twack! That same old debilitating exhaustion hit me like a brick wall! I realised how ill I actually am, and how well these little pills work for me.

So this is what I'm taking;

N-acetyl l-carnitine (400mg + alpha lipoic acid (200mg) - this comes in one tablet and I get it from Holland and Barretts, it's fairly expensive but they have it at half price at least twice a year and I just buy a load then. I take one of these a day, in the morning with breakfast. I have tried the L-carnitine on it's own but I didn't find it anywere near as useful. This really helps with energy and especially with recovery post-exertion.

CO-enzyme Q10 (300mg) - I take one of these, every morning. I've tried cutting it out before to see if it was helping - as I do with everything- and sure enough, that good old hazy fatigue started to creep back

Capsicum fruit (250mg) - This is supposed to help with inflammation and like the other supplements, really helps with clearing away the brain fog and helping me feel like a half normal person! I take 3 a day, with breakfast.

WIth this handy mix, I have enough energy to run a little business from home! The best thing is the everyday exhaustion is gone, but I still need to take it easy and rest when I've been out and about - walking seems to be a big trigger. But even then, I'm nowhere near as bad as I used to be.

Please let me know any of your experiences with these or other supplements!

2

do u go to doctor for blood tests.?

i did see ref to the tables ( in a book t do with cfs ) as u  said but best to check ur blood .

3

Could anyone tell me if I can take these supplements with my excisting medications ? 

I am at the end of my tether with fibro & possible cfs ( drs are in the middle of deciding ???)  pain & exhaustion is my life I can't do anything go anywhere !!!

4

Hi Peter, yes I had multiple blood tests at my GPs and then was sent to a rheumatologist where I had even more tests, all of these came back as normal.

5

the tabets are above are ok as like vitimins .

best to buy a litle bottles for a try .

3 tablets above was ref i a cfs book  i got . but as stated above might help or not . so try a month . if u got £10-30 to try them.

 

6

Hi, 

I took co-enzyme Q10 for over a month, did not get any help from it. But I know it's been helpful for many people. Now taking acetyl L-carnitine plus D-ribose 10-15 g/day; I think D-ribose is the one that helped me most. Now I don't even need to take it so much and I still don't get exhausted during the day. 

I'm going to try out Capsicum, thanks for the tip. I also recommend everyone to try out low dose naltrexone (for at least 2-3 months), because it does miracles to some and it helps moderately most CFS people. 

7

Hi, are you buying the acetyl L-carnitine + D-ribose combined or seperately? I hadn't come across D-ribose before but I think I'll definately give it a go, is 10 - 15g a standard dose?

8

Also, where do you buy your low dose naltrexone from? Many thanks.

9

They are separate products. There is no standard dose really, but for CFS they recommend relatively large  doses, i.e. 10 - 15 g. Previously I used Doctor's Best pills, but you'd need to eat ridiculous numbers of those to get to 15 g/day. 

Good luck, I hope it helps! (PS: Would be interesting to know after you've tried!)

10

Thanks so much for your tips! on searching I see it seems to have helped a lot of other people with cfs too so I'm definately going to order some now. I think as it has to do with increasing energy in the muscles and my cfs is very much exhaserbated by exercise/physical exertion it hopefully will do the trick, fingers crossed!

Will try and remeber to update this in a couple weeks with how I get on!

11

Yes indeed, it worked like a medicine for me, too. After I started using it, I haven't spent a single day in bed, like I used to, practically every week. I'm in Finland. Last time I ordered 5* 340 g and only paid about 8 dollars for shipment (and 14 % tax - still ridiculously cheep when compared to prices up here). But the best before date was in Aug 2014, so it was probably more than I manage to spend by that time.

12

Hi thank you for this info. Im alone parent and I'm finding the cfs so difficult i hit a brick wall each day around 3 pm diagnosed with fibromyalgia I am on duloxatine they do help pain wise however fatigue is a battle docs say nothing they can give.i will take your advice and see if helps im desperately wanting to be a energetic mum again xxx

13

try: NAD and/or NADH supplement

14

Unfortuently the so called supplements for M.E./ C.F.S. seem to only have the placebo effect and dont really help at all.