I suggest a discussion where we limit ourselves to as brief as possible statement of "I did this and the result was...." the reader can then look up other discussions a sort of brief index or summary.
It might be good if the forum administrator can pin it to the top of the lists.
I will start with my next post.
Ropinrole - Brand name Repreve
This worked for me for about 3 months. The relief was fantastic and I was awake all day and could focus on my work in a way I had not been able to for years. Then it suddenly made me dizzy and nauseus to the extent I couldn't walk down the hall without a hand on each wall. I had to stop it completely.
Cheers
Graham
FODMAP diet Not a perfect cure all the time but the result has been clouded by a couple of other conditions that might either produce similar symptoms or trigger the RLS. These are sciatica, arthritus and hamstring pain caused by something unknown.
This has made a vast improvement in my life. I have had no side effects. I would recommend anyone tries it. I have heard of someone who dose of medication as well as the FODMAP diet and last I heard had a complete cure. It was designed for irritable bowel syndrome (ibs) patients and I have no idea why it works with my RLS. I don't have ibs. It works for ibs in about 70% of cases so there might be RLS people for whom it doesn't work.
Cheers
Graham
Tried Diazepam...no effect.
Zimovane...no effect
Gabapentin...no effect
Ropinerole...whole year's freedom from RLS till augmentation set in. Episodes then stronger 'twitches', lasting longer.Awaiting new referral, to neurologist.
Thanks Chris
Magnesium I tried magnesium diglycinate three tablets equivalent to 150mg elemental magnesium. Took them in the morning. Other people have reported in this forum that this completely fixed their symptoms
I had a bad reaction - really annoying. RLS until 5am for the following two nights. The bad effect wasn't permanent so since it works for some its probably worth trying.
I stopped Mg completely for a week or so and I have now gone back to one tablet in the morning which (I think) helps with cramps.
Hi Graham. You know what has worked from me...iron bis-glycinate and 1/2 teaspoon of cream of tartar, which is pure potassium. Magnesium and taurine were not magic bullets - meaning instant relief for one full night.
I keep reading about people who have good luck with 1/2 to 1 teaspoon of mustard in some water. Yuck. Going to try it next time I have an attack.
"what doesn't kill you only makes you stranger"
Try it with me!!!!
Are you just suggesting this for a laugh? You know I'll try anything. I am in a good spot at the moment. The last two nights I had just a hint of RLS before I went to bed so I walked for no more than 20 minutes and it went away all night. A whole nights sleep! However if the RLS comes on again I'll try the mustard. I think its allowable on my diet but its sure going to be a interesting taste thrill. I'm not silly enough to think Im cured because of two nights sleep so I can still be a guinea pig for the MUSTARD soup treatment.
I kid you not. It's supposed to work quick - 20 minutes. I love mustard, just not in water. I'll bet dollars to donuts that it's the tumeric in the mustard that stimulates a pop of dopmaine. If I don't get an RLS attack soon I may have to induce with benadryl. I feel like a kid with a new toy.
Been on the low-FODMAP schedule for ten days now. NO RLS --which could be co-incidence of course. ( the bane of intermittent disorders is this lack of certainty) Still, it's been bliss.
As for IBS, the major reason I'm living without a bread roll on the low-FODMAP, I had an almost symptom-free day yesterday, and a good noght's sleep. Wow!
Have decided to employ a registered dietitian and see her Thursday. Finding one is like searching for some rare,near-extinct creature! I'll post re.what she says about the diet ,IBS and the RLS.
Sympathies to you all, brave souls. What a shame that life is so grim for some of us.
Even greater news,
I look forward to hear about your dietician.
Hopefully it can only be better news.
When I first had restless legs I found cannabis to be very effective, not only bringing almost instant relief, but also helping me to sleep as well, but like most other remedies it seemed to lose its effectiveness after a few years. I understand Parkinsons sufferers also find it helps.
Neurontin 300, 2x a day; Ultram 2x a day; Requip1mg - 1 in am, 1 at noon, 2 at 5pm, and 2 at bedtime s the magic combination that works for me, yet sometimes I have the "walking blues" if I don't take the 5pm on time. Drives me nuts. I was on Carbidopa-Levodopa a few years, but my neurologist replaced that with the Requip. I've had RLS since I can remember, but rarely, until about age 40, then it became worse and more frequent as years passed. My mom had it too, even on her deathbed. I know that's not encouraging. I definitely will try the mustard/magnesium/taurine tips; and will look up the FODMAP diet several mentioned. It just seems as though there should be a breakthrough by now!
Thanks for this information. Its good to share such knowledge.
Of course I recomend the FODMAP diet so if you give it a try I wish you luck..Unfortunately it is hereditry. Both my parents had it and my sister and I have it. Now my children are developing it and they are just in their 20s. So we all hope that someone comes up with something bewtter than a tough diet. I am amazed at the complexity of the drug regime you have developed. It must have been a major effort in experimenting.
I bought Vitamin D drops and sprinkle it on my food in the morning. I also put Magnesium drops in my water and it has helped me tremendously.
Hi Srahjayne
Im not familiar with magnesium drops. Can you describe them a bit more specifically please? Perhaps just the active ingredients?
I have tried Mg powder and tablets which seemed to produce RLS but a l;iquid form might work better.
Hello Graham, sure I just did an amazon search and I found them.
Emis Moderator comment: I have removed the link as users can find the information by searching Google/Amazon for magnesium drops.
Something else my soon-to-be mother-in-law told me is to drink tonic water. It has some type of mineral in it that soothes the nerves. It sounds crazy, but it works.
I have recently been taking Shuessler Tissue Salts No.8 Magnesium Phosphate.This is in addition to Ropinarole and they have given me significant relief from the RLS twitching and cramps, particularly in the evening, I do not have RLS problems during the daytime.
I have had RLS since I was 22 and it became very severe, went to the dr and my potassium was low so I started taking potassium vitamins and it didn't go away, so I added magnesium after researching and it completely stopped, it was great. But Jan and Feb I had a vein burnt out of each left from Chronic venous insufficiency, and I have raynauds phenomenon so my legs started again but much much worst and tried Mirapex, ropinarole, sinemet, and neurotin and all made me severely sick, projectile vomiting. Any other medicine I can try?