After 90 days of my PAE, I´m very sad and disappointed.
Problems that are arising:
#1 Burning pain during urination
#2 Reduction on urine stream (at the beginning I improved 60% and now only 30%).
#3 Difficult begin urination and some dribbling is coming again
#4 Waking up 3 times every night to pee
#5 A feeling that, slowly, I´m returning to the point where I was before PAE (same symptoms, considering that I never use medicines to fight BPH).
Unfortunately I think, I´m on the unsucessful side of the procedure, and worst case scenario: there´s nothing I can do. After spending
US$ 14.000, I need to point also too that my pós-procedure was very painful and with much blood in urine and faeces which make me worried a lot.
I'm sorry to hear that. I had similar results. Do you know if you had an enlareged median lobe?
Welcome to the failed PAE club. I am much worse off now 16 months post . I am glad it works for some, but I yhink there should be a study long term to see just how succesfull it really is long term. I know my PAE surgeons offices stopped calling to check on my progress as soon as the Doc said it had failed. Seeems like they only want to hear from the success stories.
My IR said that an enlarged median lobe "wasn´t a problem" because it could be managed during the procedure. My prostate before PAE weighed 122grs. and I was considered a "good candidate". I´m doing some tests to know actually PSA, prostate weight and other. I´m reaching the point where "and now what can I do?". BTW did you know how much time one have to wait to perform another PAE when the first didn´t work?
Hi Joe,
Do you know if you had an enlarged median lobe?
Thanks
I think you can do it relatively soon (after a year or so). I do know that they don't have nearly as much success w/ enlarged median lobes.
Why would you want to repeat PAE ? Instead, look into FLA. It is new for BPH but has been used for PC for years. Many people on this forum had good successes, and are providing good support for others in return. Hank
Hi arlington, why are you not considering FLA ? I am sure you are aware of it. Hank
So sorry to hear about your troubles. So you describe blood in your urine and blood mixed with your feces. You might have some blood clots in your bladder clogging things up. An office cysto might solve your problems. What does your doctor say?
JerryR, as soon as my doctor knows that my procedure failed he simply vanished (he always is with a client and can´t attend me). I posted some days ago that I believe in PAE as a good solution in the future (maybe 5 or 10 years) but now I think that the rate of unsucess is a little high.
hank1953, as you posted correctly there are not much information about FLA for BPH. PUBMED didn´t show any paper about this procedure used for BPH. I´m very afraid to do something after a painful experience with PAE right now. I posted about repeat PAE, but I really don´t have any input about guys that have done it. Just hoping to receive answers about someone that repeated PAE.
So sorry that it didn't work out for you. And again, welcome to the failed PAE club.
$14,000 sounds very high.
And your doctor disappearing on you is inexcusable. Anyone who calls himself a professional, in any industry, should want his clients to be happy with his services and also he should want to look into how the PAE affected you or didn't and maybe learn what he can do better next time.
Please do everyone a favor and publish his name or at least the town in which he's located.
jjjj57989, just before the procedure I signed several papers showing that I was very aware that PAE was a new approach, and had a % of insuccess, as well as that many patients had had side effects.
My IR was very clear about that, so I decided myself to do the
procedure. It was only my responsibility. Maybe I had a bad reaction to something during the procedure, I don´t know, because I read here many successful PAE cases.
As you posted correctly, I´m on the failed side of the procedure.
Yes Arlington I sure do. But the morning of the Procedure, right before the happy shot, the Doc said not to worry I was still a good candidate, even tho my prostate was relatively small at 25cc
I agree with Hank, I myself would not even consider a second PAE. I think it would be a waste of money, and still be ineffective.
And it is funny how as soon as they find out you have a problem, they are no longer available, but before that they tslk to you personally on the phone.
joe74831, unfortunately I didn´t remember who posted it, but someone in thsi forum wrote that after a failed PAE a person have done a second PAE and it was very successful.
I am sure that is possible, but as expensive as it is, that's a hard experiment to do.
Which procedure are you going to do after a failed PAE, considering that your symptoms worsened after it?
FLA is the only thing I would consider at this point. It seems to be the only thing that can actually take out the median lobe.
My roommate is is a few years older than me has already had his 3tMRI but Dr Karamanian wants him to have a biopsy of an area that he was not 100% might not be pc. So if his biopsy is all clear I am gonna let him be the test case for FLA lol.
Hi Irp1,
Sorry the PAE didn't work out. As you said, no peer reviewed studies on FLA, and while we have some good anecdotal experiences here, this should still be considered an experimental procedure until more data is available, not to mention dropping another 20K-30K after the 12K you already spent.
If it were me, I'd first try and investigate more why the PAE failed, before considering either another PAE or any other prostate reduction procedure. Was it the PAE itself that failed or was the PAE "successful" but your bladder was too flaccid (stretched) to function? I don't know what testing you had before, but cystoscopy, imaging and urodynamics seem to be in order, before moving forward.
Jim