I have had an Underactive thyroid for 7 years and always taken 100 mg of thyroxine. I have gone
through phases of feeling good and feeling really bad although blood tests have always come back with being within the correct level. I have recently had to go to GP with fatigue and joint pain. The GP rang yesterday to advise I am deficient in vitamin d and I need supplements. Has anyone else
been diagnosed with this ??? If so did the vitamin d make any difference and how long did it take to feel better?
I take a vitamin D supplement and have done for several years. I am hypothyroid but it came about because my calcium levels were high and so my stomach was not able to absorb the calcium and instead it was leaching from my bones. I actually didn't feel extra tired but I think you should have the vitamin D so as not to get osteoporosis which in the long run can lead to brittle bones and breakages.Maggie W
Thanks Maggie , I have read also that vitamin d deficiency stops thyroxine being so effective so I am going
to take the Vitamin D. I have had really bad skin for the past two years so also hoping that will improve.
I also take 100 mg of synthroid as I had my thyroid removed. I also have been taking Vitamin D as I do every winter (here in Canada) and I do feel better and am going to continue all year. Apparently Vit. D is a mood elevator (and who doesn't need a little of that!!). It also protects against breast, ovarian and colon cancers and cardio vascular disease. Lots of Vit. D found in fish oils, which is also a good supplement to take for women. I take that also every day. Good Luck!
PS I freeze my fish oil capsules, so they don't repeat on me after taking.
Thanks for the info feeling very encouraged and looking forward to starting the course. Fingers crossed...
Hi, I have also been taking vit D this last month but although UK recomended daily allowance is 25mcg daily. All of my research has suggested alot more was wondering what you both thought. I've not noticed any difference but maybe to early yet. I'm always on the look out for anything to help me feel well 7 years and im still suffering with many under active symtoms.
I am glad that the consensus is that women in particular should take Vitamin D. I live in Scotland where the nights are long in Winter and sunshine weak during the day. I take 25mcgms all year round but my endocrinologist has not been vey helpful as to whether that is enough or not. It is further complicated by the fact I have raised parathyroid levels which may indicate I have nodules on my parathyroid gland/s. I am having a scan in a couple of weeks to see ic that is the case.I find the contact with others very supportive. I am in my 70s and had to struggle very hard to get taken seriously about my hypothyroid symptoms.In the end I take 100mcgms thyroxine and 10 mcgms T3 which is the converted form of thyroxine really equivalent to under 150mcgms thyroxine but I function much better on this and have done for 8 years.All the best Maggie W
I am collecting my prescription today so not sure what dose I am going to be on yet or for how long.
Hi Maggie my GP will not refer me to an endocrinologist thinks i'm a winge and its all in my head so when i said i wanted to try T3 she said no there is nothing to suggest that T3 works. I think that i'm over medicated but bloods they say are normal im also on 100mcg Thyroxine daily. All the very best maggie and I also feel the site are very supportive I live in Newcastle by the way
Hi Julie what was ur prescription dose of bit d for if u don't mind sharing x
Yes I had a GP once like that and I think the only thing to do is change to another one if at all possible. My Endocrinologist himself said that it was difficult to prove that having some T3 substitute for some of the T4 was definitely beneficial, but said he had come to the conclusion that it was for a few people like myself. I can honestly say that I have had no thoroughly rotten headache days since I started the regime 9 years ago and also he himself said that he thought that GPs were failing their patients if when there was a problem with patients still feeling unwell but seeming to have okay blood results. I suggest you buy his book on Amazon, it only costs about £5 is written by Dr Toft ;and is in the Family doctor series and he is now retired from consulting at the Royal Infirmary Edinburgh but works privately at the Spires Private hospital in Edinburgh. He felt that too many GPs think that they understand hypothyroid symptoms etc but in fact do nothing but go by blood results.
Yes I had a GP once like that and I think the only thing to do is change to another one if at all possible. My Endocrinologist himself said that it was difficult to prove that having some T3 substitute for some of the T4 was definitely beneficial, but said he had come to the conclusion that it was for a few people like myself. I can honestly say that I have had no thoroughly rotten headache days since I started the regime 9 years ago and also he himself said that he thought that GPs were failing their patients if when there was a problem with patients still feeling unwell but seeming to have okay blood results. I suggest you buy his book on Amazon, it only costs about £5 is written by Dr Toft ;and is in the Family doctor series and he is now retired from consulting at the Royal Infirmary Edinburgh but works privately at the Spires Private hospital in Edinburgh. He felt that too many GPs think that they understand hypothyroid symptoms etc but in fact do nothing but go by blood results.
This is double dutch to me but she prescribed 3 tablets once a week for 5 weeks the dose is vitamin
D3 500 mcg. I then have to have more bloods done . My blood test reading for VIT D was 7 so it was really
low. I have been out in the garden for last few days and already feeling better for having a bit of sunshine.
Your Vitamin D levels are really seriously low and I would certainly think that the extra Vitamin D would be a terrific boost. Siitting in the sunshine is certainly mood inhancing for any one but I think that it will take more than a few days of absorbing it to correct your levels. I really hope that the Vitamin D pills will help at least they will also guard you against Osteoporosis which is what happens if we don't get enough of it.
Ive used all of the doctors in the practice lol All the same stupid nhs conclusion bloods are normal so you must be depressed. I'm certainly not that but i will be if they dont sort me out. Let us know how you get on with those vitamin D's Julie.
Hi Julie,
I was diagnosed with an underactive thyroid last April. Ever since being hypothyroid my vitamin D and iron levels went really low. I noticed prior to diagnosis my joints were aching really badly amongst other symptoms so had my vitamins levels checked and it turned out I was really low. I've been taking vitamin D supplements prescribed by the GP for a little over a month now, one to be taken once a week and have noticed my joints don't hurt as much as before.
Hope this helps and hope you feel better soon :-) x
I am due to take my third high dose vit d3 tomorrow I am not feeling any different if anything some days I am worse. i always feel like I am dragging my feet as I just ache so much especially my knees. I have got 3 more doses to take then I need to have more bloods done but I think that is to check my kidneys.
Hi Julie thanks for the update maybe your levels have a way to go yet. Keep us posted on what your blood results are.
Hi Julie. I was diagnosed with hypothyoid about 8 months ago and take Levothyroxine 50 mg. Last blood test about 3 months ago showed I had severe Vitimin D deficiency. My numer was 11. I was put on 50,000 IU of vitamin D (once a week for 12 weeks.). This is only by prescription dose. I finish my 12th week tomorrow and then Doctor wants me to take 2000 IU daily. I will be having another blood test next week to see where my number is at now. I don't feel any different. But its good to take vitimin D daily. I just needed a bigger boost (dose) in the beginning to get my number up.
Hi Julie I have been on thyroxine, 125mg for over 20 years. A couple of years ago following a fall which resulted in wrist fracture I was found to be low on vitamin
D. I have taken a D3 supplement since then. At my last blood test it was found to be at the higher end of normal so have been told to take a capsule every other day. I have not found during the last 2 years that it had made any difference to
the way I feel. Unfortunately I have other health problems and am on various
medication so it is hard to know whats causing any symptoms. Very confusing at
times. My last TSH test was .93 I think. Do you know the results of your blood tests. Many people are either not diagnosed or under treated especially if your
tests come back in the normal range. What is normal for one is not for another.
My Gp said that even on the right dose you don't always lose all your original
symptoms. Not entirely sure I agree with that. Hope you get some help. Let us know how you get on.