I suffered for years with tremors that increase to a total body tremor and felt unwell and fatigued... The tremors became very severe by the age of 40 and found it hard to function. It's worth looking into this - my consultant decided to look at my vitamin d levels and the result was they were so very low. After treatment with vitamin d3 high dose for over a year, my tremors have gone! The thing is that without vitamin d3 at correct levels, you are not absorbing calcium and the body will shut down without those two working together! I know my story will not help everyone, it may help those that have had lots of tests but still no answer. In any case, it is still worth getting it checked out.
First I am greeting to you I feel your medical condition but remember tremor has also other factors that can promote to occur again so check completely your health state other factors can progress or induce such as liver problem , thyroid problem
wish you to return your health and be fit .
That's good news Jane although it also shows how these things can be missed, I presume you didn't wait al those years to see your GP/specialist ?
blood tests for thyroid and vit D were the first tests I had from GP before being referred to and diagnosed by a Neurologist, after many medical investigations incl MRI brain scans etc my tremors were found to be just one part of a condition called dystonia. Incurable but treatable, In your case though it does sound like you've found a cure which is brilliant,
all the best for the future
Yes it took years of seeing different specialists until one clever consultant decided to check! It's good that your gp and specialists were on the ball and I hope that with treatment that your symptoms are kept at bay.
Actually What I think also may the condition relevant side effects of the drugs previously taken .
Abdiqani, mine was due to severe bowel disease which in turn led to malabsorption of many things including vitamin d3! Not drugs!
Sometimes chronic inflammatory bowel disease worse the condition and bring this condition although if it is lasted long period become incurable , so take exam of if there is inflammatory
Also it is important to check medical problems such as colitis or Crohn’s disease which can worst the condition
Abdiqani, my post was indeed meant to be something that may prove helpful to others in a similar situation that I found myself in, it was not a search for answers for myself as I know now what is wrong.
Thanks for your post. I have suffered for a while now with tremors and put it down to my PTSD and the medicines I am taking for that. I will definitely get checked for my vitamin B levels. Thanks
Hi Jane were your tremors apparent whist resting I am vote deficient but my tremors are when I relax I would appreciate your input
Hi Cecilia, my tremors were severe at rest and intensified when I tried to do something. All other conditions were ruled out and it appears my vitamin d levels being very low was a chronic condition. I've been taking vitamin d long term and my tremors have gone. I hope it works for you although it took me a long time to get to where the levels should be. Be patient - excuse the pun! Wishing you all the best
Hi Jane so happy to hear your comments about vote deficiency it seemed odd are very vague about how serious this is. My doctor put me on high dose for eight weeks then nothing so when he sent me back for blood test four weeks later I had drop twenty points against now he has me on2000ius per day and I do not really feel any better still muscle spasms and weakness any thoughts on other vitamins would be appreciated thank you once again regards Cecilia
Dear,
thank you very much for sharing your practical experience and it is filling me with hope. from last one year I am feeling severe fatigue and from last one month even I am not able to walk experiencing disbalance problem.
My MRIs, ultrsounds, blood tests all are normal except vitamin D3 (3.5) and B12 (100). Please advice based on your experience. in hope of your response.
That is very interesting to hear. I have been diagnosed with ET early May. I was also told that I am low on vitamin D. I was not informed that the 2 are connected. I also have low white blood count. Other than that I am very healthy physically. I am trying to not feel sorry for myself with the constant shaking. Easier said than done. I am not liking the primidone too much so I am weaning off of it and hope to be off of it completely next week. I have to remember to take my vitamin D
Oh my god,
after years I found this...
tomorrow I will do the vitamin D test...
I expect very low levels.
I hope you are my savior!
I'm very excited, I'll go back and tell what happened
Dear Jane you started this post on patient and have not posted for s while now I assume yoú are recovered I posted my thanks to you but as I think I was the last to post I am receiving emails from patient which of course it is good to know your post I till inspiring people I hope you are still fin regards cecilia
Hello Cecelia, so lovely to read your kind message, thank you. How are you now? My severe to mild tremors have completely gone now... vitamin D really is essential to function normally and something I strongly believe in having gone through the mill with deficiency... it does take time to get the levels back to normal and it’s well worth the wait 
. Jane x
Hello Backdoorkain, I hope you get your results soon. They have to send them to a special lab and can take a few weeks to get the results. Fingers crossed for you! Jane
Hello Jane lovely to hear from you As I told you my tremors were vitd deficiency but the came back which made me go back to doctor who sent me to specialist. He sent me to surgeon who examined me and said my rotator cuff in shoulder was torn did a scan I had the operation which has left me with a tremor doctor said quite common after surgery will settle down so here's hoping it does come and go depending how much I use my arm which is quite a lot because it is my right arm so I know it will take time to heal physio is helping will post on progress keep well regards cecilia