I have had PMR since Dec 2013. It disappeared in August 2015 and returned 2 months later. I am now on 10mg Prednisolone. I recently seen my GP re a bladder irritation which makes me pass urine three or four times a night. Have also had some burning when passing water. Have taken Potassiumj Citrate for suspected Asceptic Cystitus. However, have experienced a sweet sickly smell from my urine and it seems to exude from my body as well It is a problem connected to my bladder. My GP seems unconcerned. and recommends lots of fluids. Has nayone lese experienced this? .
I developed what i thought was BO with PMR that didn't respond to using deodorants - so I stopped using them for some time. Now I haven't used deodorants for years I have no problem at all so I think, in retrospect, it may have been the PMR. I know I've heard others comment they noticed a strange body/urine smell - but what it is I have no idea and I've never heard any of the doctors I work with mention it. The irritable bladder thing is common enough - we used to say we should have taken out shares in Tena! It does improve though!
Hi Gillian, I went to my Rheum. yesterday, I took a urine sample and he said I had an infection, I have had no burning or irritation and he gave me antibiotics. I have also noticed a sickly smell which was worse with a higher dose of prednisolone, and a sort of sour smellof perspiration.
Hmm interessant. Ich habe seit Ende 2013 PMR und wie Sie bin ich 2015 schließlich von Prednisolon runtergekommen, aber es ist wieder aufgeflammt und ich nehme derzeit 20 mg ein, nachdem ich auf 5 mg runtergekommen war, musste ich aber wieder eine höhere Dosis einnehmen, da meine Schmerzen zurückkamen. Allerdings leide ich seit 2014 fast ständig an Harnwegsinfekten, obwohl ich dafür immer etwas anfällig war. Ich habe im Krankenhaus eine massive Dosis E. coli bekommen, die sich drei Tage nach einer Sigmoidoskopie entwickelt hat (Krankenhäuser sind gefährliche Orte!). Das einzige Antibiotikum, das ich nehmen kann, ist Cefalexin, aber der Harnwegsinfekt kommt immer etwa eine Woche nach Absetzen des Antibiotikums zurück. Es ist ein Albtraum. Ich frage mich, ob es eine Verbindung zwischen PMR und Harnwegsinfekten gibt? An alle, die dies lesen und ähnlich wie ich leiden, kann ich sagen, dass es mehrere Dinge gibt, die helfen. Es ist vital, möglichst 2 Liter am Tag zu trinken. Als nächstes habe ich festgestellt, dass mir Opti-Bac Probiotika für Frauen (spezifisch für diesen Körperbereich) helfen, mit E. coli zu leben. Ich nehme morgens und abends jeweils eine. Mein Spezialist hat vor drei Monaten einen Eingriff versucht - Urethraldilatation - und das hat definitiv geholfen. Ich hatte seit der Operation nur noch einen Harnwegsinfekt. In Bezug auf den Geruch gibt es immer einen Geruch, wenn ein Harnwegsinfekt vorhanden ist, aber ich habe keinen süßen Geruch im Zusammenhang mit Prednisolon bemerkt.
I don't think it is as simple as just UTIs - I, too, found a urethral stretch helped a lot but I had already had one years before PMR. At the time I was told the urethra was very narrow - which tends to encourage incomplete emptying of the bladder and the result is what appears to be a UTI though it isn't a real one. Then the poor muscle function that comes with PMR probably exacerbates things.
From Dr Google:
"Sweet-smelling urine typically indicates the presence of sugar or glucose. Of course, having diabetes increases the chances of spilling glucose into the urine if blood glucose levels are too high. The kidneys will make their best effort to get rid of excess glucose once blood glucose levels climb above 180 mg/d"
Ich hatte auch diesen schrecklichen Geruch in meinem Urin. Schließlich entwickelte ich eine Blaseninfektion. Der Arzt sagte mir, dass ich aufgrund von Muskel Schwäche mit PMR meine Blase nicht vollständig entleeren konnte. Deshalb nehme ich mir jetzt Zeit & entspanne mich, damit ich meine Blase so gut wie möglich entleeren kann. Seitdem hatte ich keine Probleme mehr.
Hallo, gute Information zu wissen: Danke
Have you been tested recently for diabetes and kidney function? Are you on any vitamins that could be causing the urine odour? Any new foods? eg when you eat asparagus the urine smells weird.
I do not have diabetes. Am not on any vitamins. I know about the asparagus odour. I cannot think of any new foods either. I think it is to do with the bladder - I try to keep hydrated. I have only suffered one bout of infection which happened after coming off the prednisolone in February.
Thanks for your help
G
I would have liked to answer you in a PM but I don't see how to do it so here goes: after menopause some of us suffer from urethral atrophy from decreased estrogen. I also had that problem helped somewhat by "stretching" but the urologist said to consult my gyn about topical estrogen to that spot. He said it was from low estrogen levels. This I did and at 74 I never have that problem with regular use of the prescribed remedy.
To send a message on this forum you click on the silver grey envelope below someone's avatar.
Don't think my urethral problems were due to low oestrogen - it was first identified just after my second daughter was born!!!