I have had PMR since Dec 2013. It disappeared in August 2015 and returned 2 months later. I am now on 10mg Prednisolone. I recently seen my GP re a bladder irritation which makes me pass urine three or four times a night. Have also had some burning when passing water. Have taken Potassiumj Citrate for suspected Asceptic Cystitus. However, have experienced a sweet sickly smell from my urine and it seems to exude from my body as well It is a problem connected to my bladder. My GP seems unconcerned. and recommends lots of fluids. Has nayone lese experienced this? .
I developed what i thought was BO with PMR that didn't respond to using deodorants - so I stopped using them for some time. Now I haven't used deodorants for years I have no problem at all so I think, in retrospect, it may have been the PMR. I know I've heard others comment they noticed a strange body/urine smell - but what it is I have no idea and I've never heard any of the doctors I work with mention it. The irritable bladder thing is common enough - we used to say we should have taken out shares in Tena! It does improve though!
Hi Gillian, I went to my Rheum. yesterday, I took a urine sample and he said I had an infection, I have had no burning or irritation and he gave me antibiotics. I have also noticed a sickly smell which was worse with a higher dose of prednisolone, and a sort of sour smellof perspiration.
Hmm interesante. Tengo PMR desde finales de 2013 y, como tú, dejé de tomar Pred en 2015, pero ha vuelto a recaer y actualmente estoy tomando 20 mg, después de haber bajado a 5 mg, pero tuve que reanudar una dosis más alta porque el dolor volvió. Sin embargo, he sufrido de infecciones urinarias casi constantes desde 2014, aunque siempre he sido un poco propensa a ellas. Me dieron una dosis masiva de E. coli en el hospital, desarrollándose tres días después de una sigmoidoscopia (¡los hospitales son lugares peligrosos!). El único antibiótico que puedo tomar es Cefalexina, pero la infección urinaria siempre vuelve una semana o más después de dejar el antibiótico. Es una pesadilla. Me pregunto si hay una conexión entre la PMR y la infección urinaria. Para cualquiera que lea esto y sufra como yo, puedo decir que hay varias cosas que ayudan. Beber lo más cerca posible de 2 litros al día es vital. La siguiente cosa que he encontrado que me ayuda a vivir con E. coli son los probióticos Opti-Bac para Mujeres (específicamente para esa área del cuerpo). Tomo uno por la noche y uno por la mañana. Mi especialista intentó una operación hace tres meses, una dilatación uretral, y ha ayudado mucho. Solo he tenido un episodio de infección urinaria desde la operación. En cuanto al olor, siempre hay un olor cuando hay una infección urinaria presente, pero no he notado un olor dulce relacionado con Pred.
I don't think it is as simple as just UTIs - I, too, found a urethral stretch helped a lot but I had already had one years before PMR. At the time I was told the urethra was very narrow - which tends to encourage incomplete emptying of the bladder and the result is what appears to be a UTI though it isn't a real one. Then the poor muscle function that comes with PMR probably exacerbates things.
From Dr Google:
"Sweet-smelling urine typically indicates the presence of sugar or glucose. Of course, having diabetes increases the chances of spilling glucose into the urine if blood glucose levels are too high. The kidneys will make their best effort to get rid of excess glucose once blood glucose levels climb above 180 mg/d"
También tuve ese olor terrible en mi orina. Eventualmente, desarrollé una infección de vejiga. El médico me dijo que debido a la debilidad muscular con PMR no estaba vaciando completamente mi vejiga. Ahora, tomo mi tiempo y me relajo para poder vaciar mi vejiga tanto como sea posible. No he tenido ningún problema desde entonces.
Hola, buena información para saber: Gracias
Have you been tested recently for diabetes and kidney function? Are you on any vitamins that could be causing the urine odour? Any new foods? eg when you eat asparagus the urine smells weird.
I do not have diabetes. Am not on any vitamins. I know about the asparagus odour. I cannot think of any new foods either. I think it is to do with the bladder - I try to keep hydrated. I have only suffered one bout of infection which happened after coming off the prednisolone in February.
Thanks for your help
G
I would have liked to answer you in a PM but I don't see how to do it so here goes: after menopause some of us suffer from urethral atrophy from decreased estrogen. I also had that problem helped somewhat by "stretching" but the urologist said to consult my gyn about topical estrogen to that spot. He said it was from low estrogen levels. This I did and at 74 I never have that problem with regular use of the prescribed remedy.
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Don't think my urethral problems were due to low oestrogen - it was first identified just after my second daughter was born!!!