I'm in the same spot. I've had 4 Utis since February I've gone Twice to the emergency room because the pain was so unbearable I thought there something horrible going on inside and the only thing they found was a Uti. I'm on Bactrim now but I don't think it's helping because I started getting pain again. The one thing my gynecologist said was it could be that my estrogen is low. But she want to try the Bactrim first. And I am at the premenopausal stage so I guess we will see. It's so frustrating because not only do I have pain but it makes me horrible to.
I'm sorry to hear that 
. Coincidently I'm having a uti at this moment. It's been a year since I had uti and it sucks. As I speak it's 4am in the morning and I'm waiting to see a doctor. This happened after having sex and not taking cleaning precautions Have you sought a urogynecologist or pt? It will help you
I have all the same symptoms, persistently for weeks. I’m so upset, been on 3 antibiotics and I get up all night because I have to pee which ends in a burning horrible pain, and have been to er for it. I guess they are referring me to a urologist and doing an ultrasound. I’m so frustrated and feel I’ll from the antibiotics. Same as yours except now I’m on Doxycycline. I’m so worried. I am thinking though it can be also related to estrogen loss because I’m 52 going though menopause. How are you feeling now?
I’m replying to your last post this month Jen. You’re back at the Dr with a uti? How are you feeling now? I’m wondering if I might be experiencing what you were diagnosed with finally the dysfunction down there. I was wondering what the exercises were that you were doing. I’m going to see urologist in a couple weeks so I’ll have to mention it to him thank you for all the information
Hi Jen, If you have antibiotic resistance you can do phages/phage therapy in a clinic in America. They can get the right ones to target the bacteria. I can't remember what the clinic was called but it'll be on an online search. I have the same problem so I'm looking at doing them in a hospital over here in Australia.
The doctors and urologist probably haven't mentioned it to you because it's alternative medicine but it can save lives.
Also apple cider vinegar contains malic acid that targets ecoli. If you drink a tablespoon a day or even a few times a day it should help. <3
Hi Mari, I'm sorry that you're going through that. It's horrible, I know. :'(
You could try phage therapy. There's also a test that you could look into getting that shows lower levels of bacteria called the quantitative polymerase chain reaction (qPCR) test. If you can't access it perhaps you could ask a pathology or phage clinic from somewhere to send the kit and instructions for a local pathology to do the test prior to phages. If you can't access it you should probably still do the phages as you need to avoid sepsis. xoxo
Hey Audrey, sorry for the late reply I didn't get the notification. I've gone back to 98% better now . It's been about 2-3 weeks that I've gotten better, I don't have burn or frequent urination anymore. It's almost as if I never had this to begin with. I've gone through this painful journey and realized that your body WILL go back to how it was no matter what you're going through right now. So be patient and stay calm bc pelvic floor dysfunction gets triggered by stress. I stopped taking my gabapentin too and did more stretches. I found one thing that helped me the most which was really WEird. I sleep with my legs WIDE apart and the next morning I don't have anymore burn (weird huh?). In physical therapy I learned to do a butterfly stretch with my legs (you can look it up online) and doing the baby yoga pose helps too.
Has anyone tried the pills called UTVital? I am in the same situation and I am so desperate I am wanting to try these...
Hey Jen
I myself am from the NYC area and I think its time for me to get myself into the city. I have been battling a uti for a month now. 3 different medications sulfa macrobid and keflex, can't do the cipro, and nothing worked. I'm really nervous that this won't get fixed. I am taking D mannose which I feel is the reason my culture is coming back negative. Of I don't take it I'm in alot of pain, my pain is not when I urinate, my pain is on my side and back. I thought it was a stone bit they ruled that out. I want to get the scan from radiologist and hopefully have a urologist see it, mayne they are missing something. I have been living on Advil and it's something I have to stop because my stomach can't handle that.
What else can be causing these uti?
Caterina, if you do not have pain during urination and the cultures are coming back negative, what makes you think you have a UTI? How did the doctor know which antibiotics to prescribe if there was no bacteria identified in the culture?
I think if we look at all the threads in this forum, we can see that chronic uti's are common. So many similar situations. I think the answer for some might be to stay on a prophalytic antibiotic for a while. That is what I did, and it did wipe out the e-coli which hasn't returned in 4+ months. Sadly though, a new bacteria developed but thankfully I am asymptomatic with it, so not having to take antibiotics.
I have had more UTI's and been on more antibiotics longer than anyone I've read on this forum. It's been physically and mentally debilitating. I feel for all of you.
I have come to the conclusion that the protocol is the same everywhere. People see their family doctor, get prescribed an antibiotic a few times that doesn't work, get sent to a Urologist that does an ultrasound and/or cysto, and they all show no problem. Thus, back to square one.
I do want to reiterate something Jen wrote early on. That is, if the urine is very diluted, the culture will come back negative or with less bacteria. I have seen this happen when testing myself with a dipstick. One void, the urine will show positive, and the next it wouldn't.
I tried to check out that phage therapy. I can't find a resource here in the USA.
Hey Catarina, I understand how you feel-it's frustrating . It sounds like the doctors you've been to don't quite know what's going on which is why I highly recommend you see my urogyn specialist. If you're coming to NYC , schedule for an appointment with Dr. Tanaka Dune at Presbertarian Hospital near 70st. Her appointments may be a long time but I HIGHLY recommend her because she deals with these specific problems you're talking about.
The only thing that helped me was d-mannose. I also took a little raw garlic with some salsa 3 times a day for 2 days. This cured my bladder infection. I had blood in urine, stomach and lower back pain, low grade fever and chills. I went from not being able to walk to everything back to normal except for some burning in my urethra. I never had any antibiotics. I still take d-mannose and will continue it for a month. If anyone wants to try this you have to act fast. You dont want the infection to reach your kidneys. There are specific symptims to watch for kidney infections
Hello Marilee,
My name is Devorah.. I am also going through this. I have been on 4 different antibiotics as well as being on a low dose bactrum 3 times a week. I have been taking the low dose for about 8 months now and I've had this UTI for a month now.
I have had chronic UTI's since I was 16 years old. I am now 27.
Will I always be in pain for the rest of my life??? What ended up working for you? email me at
Moderator comment: I have removed the email address as we do not publish these in the forums. If users wish to exchange contact details please use the Private Message service.
Hey there, Have the same thing... smelly pee, burning, back pain, and pelvic pain.. My urine came back as ecoli positive and resistant to augmentin.. what have you found out?
what if i dont like garlic? what are the signs its gotten to your kidneys?
does it come in a pill form because i gag at the smell of ACV
my Dr employs a DO i her office.. what do i need to ask when I go to see her... i have ecoli in UTI and it is apparently antibiotic resistant..
Hello all i need help my 15yrs.old daughter needs help. Last year May 2016 she was diagnosed with a uti her pediatrician give her a antibiotic for 7days but it didnt go away may,june,and july he treated her for uti but it didnt go away so in june ang july he sent her urine off for culture each culture would show no bacteria growth he referred her to urology since aug of 2016 he did test but said he wasnt sure what was wrong may 2017 she went to the hospital she and there the ER dr. Said she had esbl ecoli and she has had it since aug 2016 since then shes been in the hospital 4times, seen 4 urologist ,
2peditrician, gyn ,49 doses of antibotics and still have bladder spasms, burning, hurting and incontince and all the doctors say the same they have never seen anything like this and they are still trying to figure out whats wrong i need help for her any suggestions
Hi Frankie, I'm sorry to hear that. I wrote this post originally to share what I was going through and how many doctors refused to treat me/denied my illness. I went to a lot of specialists and gyn like your daughter and have gotten the same response from them- given a lot of antibiotic cocktails which only made things worst- my immune system was down, the antibiotics made my urethra burn and damage my bladder. What you described sounds like your daughter has myofasical pain of her pelvic muscles due to a UTI. I know it's weird how it came to this but my doctor who diagnosed me (finally), told me that after UTI some people react sensitively to an infection and start to mimic symptoms of UTI even after the ecoli/infection is gone (negative culture). This is called the guarding effect. Some people are more predisposed to this than others after suffering a really bad UTI. But anyways, im 21 and know how crippling this is- especially if your daughter has school. You should take her to a uro-gynecologist because they might know what myofasical muscle pain after UTi means- she might have minor pelvic floor dysfunction like me due to a year of myofasical pain. The incontinence , frequent urination and burning are all symptoms of pelvic floor dysfunction. If treated early, her problems may go away in half a year-year depending on physical therapy and management. I don't suggest continuing with the antibiotics or pain killers...my pelvic floor dysfunction cured normally with physical therapy and relaxation at home with stretches .