Olá, gostaria que alguém que tenha isso postasse, pois eu tenho e estou no meu limite com isso. Não sei por que tenho, o que causou, mas estou sob consulta com um especialista no Hospital de Derby por causa disso. Tive uma consulta de acompanhamento esta semana e ela aumentou minha dose de Nortriptilina de 40g para 50g e quer me ver novamente em julho. Também sou diabético tipo 2 com outros problemas de saúde em andamento. Estou me perguntando se algum dia vou me sentir normal novamente e voltar aos dias antes de ser diagnosticado com isso? É muito difícil descrever meus sintomas, mas tenho esses todos os dias, sensação de desequilíbrio ao andar, sensação de balanço se estou sentado ou em pé, dores de cabeça frontais na testa. Embora o medicamento tenha ajudado, de maneira alguma estou 'curado'. Tentei pesquisar o máximo de informações possível sobre isso, mas não me sinto mais esclarecido. Alguém pode se identificar?
Você seguiu o que eu enviei sobre o lugar em Leicester?
Medicamentos específicos para enxaqueca, como os triptanos, podem ser mais benéficos.
Eleftherios S. Papathanasiou, PhD, FEAN
Neurofisiologista Clínico
Membro da Academia Europeia de Neurologia
Hi I have had similar problems for the last 3 years Meniers for 20 years then 2013 I started to have short sharp dizziness and like some was hitting my head like a jerk, I had the Epley manoeuvre for this which took some time before we concert it but was still left with dizziness in my head and blurry vision. I am now being treated for vestibular migraine and taking Nortriptyline which I have had to increase to 6 tablets each evening due to some symptoms coming back again I was told I could take up to eight by my neurologist, my Dr may not agree to this but we shall see. We shall see I am at the moment getting a lot of bumps on my face that turn in to a spot which I am not happy about so have got to get a Dr appointment to ask about this.the constipation if suffering, drink plenty of liquid non alcoholic of course. I read a report from a women with similar symptoms who took Nortriptyline and after a year she was better, I think she did take Magnesium and a vitamin B tablet I have not gone down this route yet. At least on the Nortriptyline I can get out and about again. . I go to see my Neurologist next July I shall have been on it for a year by then. At the moment the only other tablet I take is for BP and Statins. Hope this information is of use to you. I know it is the continual vertigo and dizziness that causes the anxiety I was a different person before this all started, even though I suffered from Meniers that would come and go, but this just seems to go on and until now nothing stops it. Do your balance exercises they do help. All the best.
What I have read is that on average most people try up to 4 different migraine medications before they find the right one to alleviate the symptoms. Some even have to take a combination of different ones. Interesting that your doctor would stay with the same one and just keep upping the dosage if you haven't experienced significant remission. How long have you been on the nortriptylene?
Hi my wife has had it for nearly two years. It came from nowhere but she was told it came from a virus. Our grandson had measles at the time so don't know if that's what caused it.
She was off work for 6 months really debilitated had some exercises and was told to live her life drive etc. The specialist said it would take time the older you are the longer it takes.
It's very frustrating for me as she won't go and see him again because she doesn't think he can do any more but after her improvement after 6 months the odd GOOD day she used to have are very few and far between. She is 71 and very active but VN has really knocked the stuffing out of her and to prove a point she's in bed at the moment as her head is whizzing where normally she would be whizzing around.
Not good news for you but maybe gives you a better perspective.
Another friend of mine on this forum sees Dr S. S. Surenthiran in London. I am in the US and googling the distance from Derby to London shows almost 3 hours.(not sure where you actually live) He is supposedly the best in the U.K. for this issue. I have also read several success stories from others being treated by him.
Dr Surenthiran qualified at Kings College Hospital Medical School, London and did most of his postgraduate training in London and in Manchester, where he was also a Lecturer at the University of Manchester. He is one of the UKs leading specialists in the treatment of balance disorders and has a national and international reputation and referral base. His work has been featured on the BBC national and local news as well as on ITV and Channel 4 and in national and local newspapers. He set up the Balance Centre at Medway Maritime Hospital which is now widely recognised as a Centre of Excellence in the management of balance problems. With regard to balance disorders, a study of 50 patients he has seen has shown that, on average, they had been unwell for 44 months before they saw him and in that time had seen at least 2 other hospital specialists (about 5 times) and their GP an average of 8 times. However, these same patients were, on average, 70% better 9 months after their first visit to him. He also diagnoses, quantifies and is able to recommend the most appropriate treatment / management for hearing loss and tinnitus. Dr Surenthiran lectures regularly at national and international conferences and courses. He organises and runs the Vestibular Rehabilitation Course (Basic and Advanced Parts) and is on the Faculty of the Leicester Balance Course. His research interests include balance disorders and tinnitus.
I am also lucky to be treated by him, it was good to read all you have written about him.
Já passei as informações para a Carina e pedi para ela verificar Leicester etc etc.
P.s. Ele também está conectado ao hospital, à faculdade em Leicester. O site da Spire Health tem todas as informações.
oi, você pode nos dizer o tipo de tratamento que teve com o dr S? Estou apenas curioso para saber se é diferente de outros tratamentos que já tive em outros lugares (que não ajudaram)
He appears to be one of the best in the U.K., if not the world, from what I read. I found it interesting that his patients average seeing him at 44 months. Quite indicative of having to chase a diagnosis/solution. The other lady that is seeing him indicated that he has a good bedside manner and is easy to talk to.
We've talked many times but, I cannot remember what all you have tried and the time that you have been struggling with this condition. Hopefully, Wobbly 1 can add what Dr. Surenthiren has been able to offer him in his treatment course.
It's always good to learn from others experiences.
I looked back on your posts and now remember that you have been suffering for several years trying to find a workable solution. There has to be one out there for us all. Just getting the right doctor and whatever medication can help goes a long way. The search poses a lot of challenges.
Sim, Terry, ainda. Indo devagar! Não é fácil, como você sabe. Para ser sincero, não há progresso real. Estou fazendo Bowen Therapy de vez em quando. Não tenho certeza se está ajudando com o problema de tontura, mas ajuda com a dor, a tensão e a rigidez que acompanham essa condição. Um pouco diferente da fisioterapia, concentra-se mais no sistema nervoso. E você, como tem passado?
About the same as I've been for the past 18 months. It wax and wanes around 90 percent recovered from onset. Barometric issues are a killer for me. Had a couple of months with nausea added in.
I highly recommend a book by a neurologist at Johns Hopkins here in the US. You may want to take a look at it, "Heal Your Headache - The1-2-3 Program". It really opened my eyes to Vestibular Migranes and the symptoms. I think that is one of the things that Dr. Surenthiren sees in the treatment of his patients. It amazed me at the symptoms that they cause. Dr David Bucholtz wrote the book. As I mentioned, he is a neurologist and specializes in headaches.
You should take a look.
Bem, 90% disso é bom! Sim, os barométricos são um inferno. Tivemos um tempo de geada muito forte, temperaturas baixas. Acho que a culpa é dos extremos, o mesmo no verão. Vou definitivamente olhar esse livro, parece interessante, mesmo que eu não tenha enxaquecas, uma pessoa com quem estou em contato no Canadá tem.
Continue, Terry!!
You'll be surprised when you read rhe symptoms. A headache is not necessarily a component.
Eu tive minha dose de Nortriptilina aumentada para 50mg e achei que estava realmente ajudando, mas depois de alguns dias meus sintomas voltaram e hoje me sinto particularmente mal com isso, ou seja, desequilibrado, dor de cabeça frontal, sensação de vertigem. Estou realmente no meu limite com isso e não sei mais o que fazer :-(