Diagnosed with VN (42% hypofunction in my right ear on the caloric exam). Three months into the arduous process, I've started VRT with some nice results.
Symtoms wax and wane and many come and go throughout the day. Brain fatigue is still very common and I realize it can take time to really improve and get better.
Some of the symptoms include:
1: Feeling funny when a car stops. This can happen even when continually stopping in traffic. This is a big one for me. So weird.
2. Unsteadiness on anything that is not a solid surface.
3. Brain fatigue after reading for too long, watching a film, or having a long conversation while tilting my head.
4. A little woozy after exercise.
5. Random dizziness / brain fatigue at moments throughout the day.
Do any of you share these symptoms?
Also, how has VRT gone for all of you?
Thanks in advance!
Yes to all of the above and I'm on month 7!
Haha, thanks again! So glad I'm not alone. This thing makes your mind go haywire! Hope you clear up soon.
Best
Andy
Yes to all of that, I am at year 4. VRT killed a bunch of time and I tried to be conscientious and got sciatica from too much effort (tried to do as Dr said).
Sciatica lasted 9 months.
I have 30 percent left ear. I have those symptoms but much worse and then some. VRT not working. Therapist has no idea why. Have had a real bad past 4 days.
Wow, that's quite a while to have VN. How are you feeling these days?
Sorry to hear about the sciatica. That's an unfortunate bonus.
Thx for asking. I am retired, rest a lot in the afternoon, imbalance and fatigue. Just look after self, gave up on Drs. At least I do not have anxiety that seems to bother so many on this topic. Just living is my VRT.
Thanks for chiming in. This can be rough. Maybe they have to modify your exercises?
Hang in there!
Glad anxiety is not an issue! Oh yeah, going about your day is definitely key to improving.
Yes I think we all suffer those symptoms plus lots of nights where we can't sleep. Due to tingling, brain zaps,feeling like we are falling,and tinnitus whether it's high pitched or like a wave sensations. Things in life we could do and now think twice about it. Trying to plan our day around how we feel and anxiety wherever we go. My advice is once all your scans etc come back clear try and do the vestibular exercises gently and build up slowly.dont over do them or you will have days were you feel awful. Try to build up the health of your body.limit tv computers, phones,keep them away from your ears. It's why fry not wi fi.... eat healthy none process foods, try taking ginkgo supplements and vitamin d ... use focus when you get weird sensations like counting to 100 and reverse. Works for me and I'm nearly 11 months into this. I can now walk or jog 20mins using the counting method when I become unsteady I say no to my body and focus on the count it does work but you need to practice this. Drink plenty of water and reduce process table salt worst thing for our bodies. Hope that helps. If conditions are bad take cinnazine travel sickness tablet that works. I use it when I travel in cars.
Hi, I was diagnosed with VN over 2 years ago and undertook VRT. I did improve though not dramatically, it has been a long haul, and I still experience some residual issues much as you describe. Also if I get a virus or am overtired for whatever reason, these symptoms escalate.
I sometimes get dizzy with the car stopping though I find this is happening less and less. I think it has to do with light patterns through trees, bumpy roads or other car lights.
If im walking in the dark then definitely have to be more careful and this happens even under artificial lighting.
All the others. On occasion but the fatigue and brain overload becoming less and less.
I truly don't expect it to ever resolve completely but I believe my brain is slowly but surely retraining itself.
good luck
christine
Hi Liz,
Vitamin D is a must for me. Plus, my levels were already low. Thanks for including the tip on ginkgo. I've seen it elsewhere and it appears to help. I'll probably get some.
Focus is also crucial. I, too, try to focus on the task at hand instead of on the dizziness, should it arise.
Thanks for getting back!
Hello Christine,
Thanks a lot.
I understand all of what you refer to. Lighting can occasionally bother me as well, but a bit less every day.
As you say, the key words are "less and less." Nice to hear you are improving, however slowly! 😀
For those of you with Labs or VN, does it ever feel like you might get vertigo in those moments where you are suddenly very dizzy?
That said, we shouldn't be getting vertigo months after the acute phase, right?
I was ~really~ dizzy for an hour today and feared I might have a spell of vertigo.
Yes Iv had a few experiences of extreme dizziness and felt like I would spin out and get vertigo but never did. I believe the anxiety makes it worse too as ur almost expecting the vertigo. From my understanding u shouldn't get vertigo again after the initial episode. A friend of mine has had VN for 20 months and even tho she's had very dizzy days she's never had vertigo since that first attack.
I been getting spells of vertigo almost every day for 3 months. Docs have no idea why.
Ures sounds more like vestibular migraines, TMJ or menieres
How long do your spells normally last? As Melody says, maybe there's a headache component.
That's a relief to hear. Just wanted to confirm with someone else who has it. Absolutely. Anxiety can wreck us.
I feel it helps to focus on the breath when you have a strong dizzy spell.
Settles me down!
How's you friend? She getting better?