I began demonstrating symptoms of a vestibular disorder about 3 years ago. After months of no answers and progressively worsening symptoms, I found an ENT who pointed me to a vestibular rehab therapist. After weeks of VRT, I finally began to feel normal again. From then until now, I have had bouts of symptoms (usually triggered by exhaustion/stress), but have been able to sleep off these symptoms within 2/3 days. About a week ago, I began to have a serious flare up of symptoms - and this time I can tell that I will not be able to sleep these off. Here's a general timeline and list of my symptoms:
- At first, I started to feel like I was on a magic carpet ride whenever I closed my eyes.
- Around this time, I began feeling like my upper body was being gently pushed forward by a wave.
- After 3 days of these symptoms, I saw my therapist. She gave me exercises. For the past couple mornings, I have woken up feeling a little better and then getting worse and worse as the week progresses
- Today, I had the terribly familiar feeling of being pulled down to the ground by my lower back. It's really a horrible feeling.
I know that for many of us, VRT makes symptoms worse before they get better. My therapist is away on vacation for the next week, and I'm wondering if I should continue with the exercises she gave me. I just really really don't want them to get worse. Have any of you experienced a similar progression of symptoms? Would you keep up your therapy if your symptoms continued to get so much worse? I don't want to OVER over compensate. Any advice would be MUCH appreciated. It's hard to stay positive with vestibular issues, to say the least.
Après de nombreux posts sur ce site, je vis maintenant avec des symptômes similaires aux vôtres, mais principalement incapable de marcher en ligne droite, des évanouissements occasionnels (surtout quand ma petite amie passe) et le stress et la fatigue comme compagnons quotidiens ; mais je vais beaucoup mieux qu'il y a plus de deux ans. Une première crise il y a environ 18 mois, s'est complètement guérie après 3 mois. De retour en juin 2015, et revenue avec une vengeance à ma description ci-dessus. J'ai fait quelques progrès significatifs pour m'améliorer et marche quotidiennement dans les collines sur environ 10 à 18 kilomètres, ce qui aide définitivement, mais un peu dangereux dans les collines en raison de la proximité du trafic. Ma conviction ferme est que la plupart d'entre nous commençons par une sorte de virus, d'infection ou simplement des symptômes grippaux. Cela, j'ai étudié ad nauseam, mais j'ai maintenant la possibilité d'une (ose-je le dire ?) GUÉRISON. Je connaîtrai les résultats en septembre et je travaille avec un pharmacien très respecté du Queensland qui s'est intéressé à la cause il y a de nombreuses années. Mon pharmacien, qui est dans la quarantaine, possède et dirige plusieurs pharmacies de marque normale au Queensland et en Nouvelle-Galles du Sud et possède également une qualification en ce qu'ils appellent les prescriptions composées. Rien de plus jusqu'à ce que je commence à recevoir ce composé qui est conçu pour éliminer complètement mon corps de toute activité virale/virale ; je publierai mes résultats lorsque je reviendrai d'un mois de vacances en Malaisie à la poursuite de ma passion pour la course à longue distance. En attendant, continuez à faire de l'exercice Olivia, je ne sais pas pour votre régime spécifique, mais l'exercice en général, réduisez toute l'intake de sel et sachez que les symptômes vont diminuer. De grosses embrassades car elles ne font pas de mal non plus, Jonathon
Any hearing issues? Tinnitus or reduced hearing? I am asking regarding vestibular migraine or even atypical menieres.
I agree with other poster. Reduce sodium, and look up migraine diet. I've eliminated caffeine, red wine, all processed prepackaged food, citrus, nuts, aged cheese, soy, and chocolate. I felt this way, but I'm better now. I still have bad days, especially if I've cheated on diet or not slept well.
Research MAV on Internet to see if it fits. Especially if you have a personal or family history of migraine.
I'm really interested in your post...I live in northern NSW-
i struggle everyday - I believe excercising is the only way out and pushing forward. Swimming and water aerobics I find give me the most relief as well as yoga. I've done lots of VRT - I can't say if it was the help that got me walking straight most of the time. My problem isn't walking it's the out of body, disconnected, rocking, etc. I'm interested if your compound chemist does come up with help.
My thoughts are the more positive we can be the better life we can have.
i know I'm not getting out of my situation. (I had a surgery go wrong.)
with 100% vestibular loss and deaf on one side. I have VM and MdDS
I'm currently travelling around Europe . It's soooo difficult but I want my life back. I've had to spend a lot of time in hotel rooms but - there are moments where I can go out - I grab those moments and smile. - I have to admit I do have a very supportive husband.
It has taken until now to be positive, I cried for the first 6 months- unable to do anything- the crying became less and less - as acceptance starts to happen.
When I'm in a difficult situation (walking down a busy street) I isolate myself into a imaginary bubble, like no one can enter my space, this helps me to handle the world. Sounds crazy I know but I couldn't have believed anybody could have to live like this.
So sodium is a big contributer to the symptoms? I've been having vestibular imbalance too. I dont consume a lot of sodiun rich foods but occasionally maybe I'll eat some salted nuts. Maybe this explains why it flared up last week ( I was snacking on salted peanuts at work a lot). Do you find there any foods that help it as well?
Sodium CAN be a problem if the inner ear is involved- hydrops, meniere's, atypical meniere's. For MAV or migraine vertigo, I have not seen salt recommended to be avoided, just the typical migraine diet I've read online, which can be very restrictive. Many of the migraine dietary triggers are also no-no's for inner ear/meniere's as well- like caffeine, preservatives, msg, and for some, alcohol.
I haven't found foods that "help", but avoiding the "bad" foods help. I definitely have migraine and some degree of migraine related dizziness, but I also MAY have atypical Meniere's or cochlear hydrops. Limiting migraine triggers that I can helps, as does sodium in my case. It really depends on what is the source of your dizziness. You need a firm diagnosis first.
I was initially diagnosed with hydrops out on a low sodium duet and diuretic (tried 2 different kinds) for 5 months but it didn't help my main and basically only complaint; wooziness "dizziness" (no spinning) when I move like walking, working in the kitchen, doing house chores, and at work, etc. although I've gotten used to the grocery stores I think by sheer habituation! Need to get food, lol, I have no hearing loss or major tinnitus or eat fullness. Do you have eat fullness, hearing loss, loud roaring tinnitus? Are you taking a diuretic?
My doctor now thinks it's migraines with a dizzy and anxiety component. I should preface, I've had very fast vertigo spinning spells before that lasted anywhere from 10-30 minutes?? Not sure how long exactly. I think I've hit anxiety since I've felt this way fur almost a year.
I've had two Ecog tests to check fur inner ear fluid and the first one was abnormal so hence the initial hydrops disgnosus. I was having a hard the believing it plus the Ecog tracings were awful I have no idea how the audiologist coukd of read it objectively. So three months later I requested another one an it some out normal and the tracings were text book.
So needkess to say I feel ice wasted time getting the proper treatment
i was diagnosed with migraine with vertigo, which I believe was an accurate diagnosis. I had one sided facial pain/pressure, tearing of the eye and clogged nose (like a cluster headache, without the intense pain) and constant tinnitus in left ear (same side as headache)- these were attacks, not constant, then vertigo developed. I was treated with Propranolol as a migraine preventative and got better.
Then 6mos later, I had a profound sudden sensoneural hearing loss that returned in 72hrs with high dose prednisone. No vertigo at that time. VNG was normal except for some vague central findings. TWO mris are clear. I then would get dizzy attacks with no face/head pain, and loud high pitch tinnitus (it increases). Triggers are similar to migraine- weather, foods. I did try the diuretics, but didn't like them, so i basically went low sodium. I am doing pretty good except in the rainy season and when I cheat on diet. So that is why the MAYBE atypical meniere's diagnosis. I am to return to ENT at Stanford if i start getting the major vertigo, and they will inject my ear with steroids.
I have had issues very much like yours. I feel fine, then the bouncing and dipping and dizziness come back, and it feels like I have lost weeks of progress. This frequently happens when my therapist adds new exercises or changes how I do them. It seems like my body wants to fight me when I make any progress. When my symptoms get worse, my therapist has me stop for 1-2 days, then start back up with my exercises, but at a slower pace and shorter time, then gradually increase the exercises. She said my symptoms should not worsen for more than 15 minutes, and if they do get worse I need to slow down my exercises. I sometimes want to quit, but my therapist keeps saying if I got to a point where I was feeling good, I can get there again. There is nothing easy about retraining your brain and vestibular system. My therapist said it is usually a six week program, but I am on week 12, and still have a long way to go. Good luck and don't give up hope that there is a normal life in the future for us!
Bonjour à nouveau Olivia, et al. La question que je pose habituellement à tous les autres souffrants est : « Cela a-t-il commencé par un symptôme de type grippal ? » Beaucoup de ceux que j'ai remarqués disent qu'ils avaient un mal de sinus, une otite, la grippe, de mauvais maux de tête, une maladie de l'estomac, la liste est longue, mais c'est pourquoi mes dernières recherches me conduisent à penser qu'un virus profondement enraciné se cache en moi. Des antibiotiques ordinaires m'ont été donnés lorsque j'ai appelé l'ambulance il y a deux ans et demi (oui, les symptômes étaient si graves que je pensais que j'allais mourir) et après 3 jours aux urgences (merci aux professionnels attentionnés de l'hôpital de Geelong) je me suis senti mieux mais j'ai dû utiliser un déambulateur dans l'hôpital, à quel point c'était distressant et embarrassant pour ce coureur de fond ! Quoi qu'il en soit, comme je l'ai déjà conseillé Olivia, je vois mon médecin lundi matin pour lui demander de me prescrire un traitement qui s'attaque aux virus profonds ; à suivre et jusqu'alors, sachez que nous, les souffrants, vous soutenons spirituellement, vous n'êtes pas seul et, à moins que vous ne soyez renversé par une voiture comme j'ai failli l'être récemment, vous ne mourrez pas de cette condition atroce. Bisous, Jon
I was recently diagnosed with benign paroxysmal positional vertigo and can sympathize with everyone with this terrible feeling. I was very interested by 3jonAustralia's question in regards did it start with flu like symptoms? My answer is yes as i was quite ill with what i thought was a cold. Fever , feeling nauseous and just generally unwell. After a few days from diagnosis (trip to hospital at 3 in the morning thinking / fearing the worst ,first bout of severe vertigo) symptoms have started to relax but still feeling nauseous cant help but think that there is some relation between the two.
Merci Frank d'être un autre contributeur qui a commencé les symptômes liés au vertige, à l'audition et aux maux de tête en ayant un épisode de type grippal.
En tant que spécialiste des systèmes informatiques qui transforme tout ce qui est intéressant en données statistiques, j'ai été surpris il y a quelque temps de faire le lien entre les personnes souffrant de la plupart des problèmes sur ce site. C'est-à-dire que la première crise semblait être arrivée sans avertissement, mais a suivi une maladie antérieure. La mienne a été si dévastatrice que j'ai appelé une ambulance. Je me suis réveillé tôt un matin et j'ai pensé qu'il y avait une sorte de tremblement de terre car la pièce a soudainement bougé de manière dramatique. J'ai réussi à atteindre le sol et à ramper jusqu'à la salle de bain où j'ai passé les trois heures suivantes à vomir. J'ai ensuite rampé jusqu'à la porte d'entrée verrouillée et j'ai réussi à l'ouvrir ainsi que la porte de sécurité, je ne me souciais pas si quelqu'un entrait et me tuait à ce stade, je me sentais si mal que cela aurait presque été une bénédiction. L'ambulance est arrivée et une jeune paramédic a dit : « Oh oui, nous en avons eu beaucoup comme vous cette semaine, c'est le vertige ». Elle avait presque raison, mais cela ne couvrait vraiment que les symptômes, certainement pas la cause, et je crois que cela s'est produit une semaine plus tôt lorsque j'ai eu un grave épisode de grippe. Donc, assez de revivre cet événement, merci beaucoup, je me suis complètement rétabli après 3 mois et j'ai continué, ou du moins je le pensais. Un événement similaire (grippe et vertige vomissant) s'est reproduit 18 mois plus tard et c'était en juillet 2015 et j'ai encore des difficultés à marcher en ligne droite, eh bien ce n'est pas tout à fait exact, je ne peux tout simplement pas marcher en ligne droite, ce qui rend ma course à longue distance un peu plus spectaculaire tous les 10 mètres environ. Mais je ne me retourne plus pour voir si quelqu'un m'a vu :-). Comme mentionné, je vois mon médecin généraliste lundi (25/7/16) pour prescrire la liste de vitamines que mon pharmacien m'a donnée et je mettrai à jour mon message à ce moment-là et peut-être commencerai-je un nouveau POST qui conseillera simplement mes progrès et, espérons-le, un soulagement pour nous tous ; c'est ma prière fervente. Câlins à tous, Jonathon à Townsville, Far North Queensland, où le temps est toujours agréable.