Weird ovarian cyst- cancer?

Hi,

A few days ago gynecologist said, I have ovarian cyst. She said it propably isn't anything really bad, but she is sending me to the hospital, so I don't think it is "nothing".

The cyst has something solid inside. Tomorrow I will do ROMA test and I am really scared yesterday I checked only ca-125 and it is 8,5 (0-41,5)

My father's sister had uterus cancer

Can You, please, look at this scan of ultrasonography photo and suggest something? These little, white spots inside cyst aren't part of picture- this big one thing is.

I know it is hard to tell, but please, anything...

Should I be worried? 

 

Not sure what a ROMA test is. They can't tell anything certain from a scan about whether or not it is malignant. CA 125 should usually be under 35 but that's not conclusive either. They have to send you hospital to have it checked out regardless. It's hard but try not to worry hopefully the hospital can give you more answers x

I have solid bits in my ovarian cyst and it's been confirmed as an endometrioma and your ca 125 is in normal range.xxx

ROMA-The Risk of Ovarian Malignancy Algorithm- it is ca-125 + he4 + checking possibility of cancer...

11 days, I'm literally dying... 

Thank You, I'm sorry You have to deal with it...

I know it's stressful. My cyst was large and suspicious but turned out to be nothing. Good luck with your test and try not to google xx

Google is the worst!

My cyst is 5,3cm... 

Thank You

Oh, and sorry for my english- I'm from Eastern Europe, dealing with some mental problems and really can't focus.

I have cysts and fibroids. They have been keeping an eye on them for a couple of years now. My last Ca 125 was 27, up a little from the last time, but I am not particularly bothered. One of the Gynae team told me. yes, they do start to sit up and take notice if it reaches 35. But even then there can be false negatives from things such as Endometriosis (which I have had) and they don't start to be concerned until it is higher than 35.

My Grandmother had breast cancer. Am I worried - no. She also had throat and lung cancer after smoking like a chimney all her life. Because a close relative has a cancer, it doesn't mean you will get it.

I was 'red-flagged' by my doctor so that I saw someone quickly. That was a bit alarming but now I'm not so bothered. Please don't panic.

Thank You!

I really hate google- it always says only bad things.

I live in constant fear, because of thanatophobia and this is killing me.

I'm glad to "hear" some not bad news.

 

My first reading was 32 and my gyn said not worried even if it got to a 100 as so many other things can raise it ,my 2nd reading was 17 and then I had an mri which showed deep endometriosis so mine could have been a lot higher I think xx

I also have a fear of dying my thoughts are very irrational it's so upsetting every twinge every pain I think I'm dying xx

Same here... I just don't wanna die. Like never

I also have bipolar and/or schizotypal- doc is not sure.

I can deal with delusions, or moods, but fears are the worst. 

Marpow,

Each of us is different and unique.  Your Dr. is using the tests to determine a treatment plan for you.  It's always unsettling to not know what is going on and I could tell you not to panic but it is hard.

I will tell you I had a physical exam, x-rays, ultra sounds, CA 125 (off the charts), CTs, etc.  My doctor told me to move up the date for my daughters wedding and get my "affairs" in order.  Very dreaded words coming from a Dr.  However, I saw the surgeon the following week and with 98% certainty he told me I did NOT have cancer.  He explained, in detail, why each test assured him YAY! and I began to relax.  I was still nervous since I still needed surgery but I was feeling more calm.  A much better place to be in with pending surgery. 

Turned out I had huge cysts from endometriosis, without having prior symptoms, and issues with my colon and an artery with one of my kidneys.  TG I was good about getting my yearly checkups. 

Anyway, I've after initial recovery I have had no issues.  An initial scare and panic turned out to be a false alarm.  Never went back to that Dr.  My Surgeon was phenomenal!  Turns out I had had small indicators for over 10 years that my original Dr. never noticed (he should have) and only when I had cysts the size of kiddie size soccer balls did he react. 

Ultrasounds are very difficult to interpret to an untrained eye.  They always look ominous.  But there are many, many cysts with many different causes that are annoying and sometimes painful that are still not life threatening.

Your Dr. is doing tests to guide him to the treatment plan for your specific issues.  He is approaching it thoroughly so he has as much information as possible without just opening you up.  Sounds like a very good Doctor.  Deal with each piece of information they give you as part of the whole picture.  The cyst can be one of several different types, some have solid masses inside but are still not cancerous.  I know the information is not coming fast enough to ease your mind but once you are through this you will realize the panic you are feeling right now was normal but not helpful.  You can only deal with the facts as they are learned, the same as what your Dr. is doing. 

Stay strong!  Your Dr. is your health partner and is working hard for the best possible outcome for you so try to be calm.  Do things that give you pleasure and keep your spirits up.  All this is what you can do to help yourself.  Worrying does not help so feed your spirit and stay positive. :-)

 

Thank You. It is really helpful  

I'm taking benzodiazepines to calm down a little.

It's pretty hard to relax, but i will try.

Don't worry at this point at all.

First of all, your CA125 doesn't indicate anything. Is completely negative.

Having said though, a CA125 single value is never conclusive on its own.

It can be elevated (>35 or 41 U/ml, depends on test brand) also in benign situations like endometriosis or fibroids or simply be an individual healthy person with higher CA125 naturally, but can also be negative in ovarian cancer.

It is just one puzzle piece and at the moment, negative and good.

It usually is a value, that is monitored if it increased significantly over time when retested, if retesting was indicated in the first place. (depends on histological outcome)

Looked at your ultrasound (love it! Thank you!).

Nobody will be able to see,

if this was a 

haemorrhagic cyst (with just an old blod clot),

endometrioma (which is also blod clots),

corpus luteum with solid structure (as it also happens to form)

dermoid

or boarderline tumor

or even malignant growth

like endometrioid carcinoma

especially because we have no further info 

(wall thickness, ovarian tissue around, that looked normal. If yes, very likely benign. Doppler mapping ultrasound result.)

and also, because it is impossible to 100% diagnose what the solid is made of since so many different structures look the same in ultrasound.

It's an 'adnexal mass', it does need to be taken out....simply to know what it is.

A little story:

I had a 9cm cysts, gyn thought it to be a simple cyst (only black = liquid), with this size it gets removed so or so since it grew and did not burst (otherwise simple cysts are left alone if no symptoms, functioning ovaries do have cysts)

At hospital something non liquid was seen inside (the white bumps, solids and threads), was immediatly told, that it did not look benign like clot or benign tumor (dermoid) and if they could take my ovaries, uterus...etc out in one operation, if the quick slice test of ovary cyst sample during operation was positive from histology department. 

Working in cytology at that time I said 'nope, you take the cyst with the tumor out, then it get's a propper histological slicing, staining and assessment, really knowing what it is and if taken out completely or what the margins were and then we go from there with further treatment'. But, but it would be a second operation. Well, yes, so be it. If it was not macroscopically looking like invasive cancer eating the uterus already, I did not want to rely on a quick test during operation.

And what was it? A BENING tumor, a dermoid/teratoma.

Why I say that: 

There are indicators via blood test and ultrasound, if it was most likely benign or malignous, BUT it's still speculation.

It was the other way round for me, they prepared me for cancer and I stayed absolutely calm. Anyway it was going to come out so or so. Why should I freak out prior knowing what it was, being happy that it was found by accident, not that it was found. I was furious though how the message was broken to me without good reason.

So don't be frightend of anything prior knowing what is actually going on until a proper histology result comes in post surgery.

To have 'something white' in a cyst is pretty common and not weird.

If your gyn has seen normal tissue next to the cyst with solid inside, it is most likely benign growth. Also if she/he did assess the cyst wall thickness. Together with the CA125 picture she/he felt comfortable to put it rather into the benign speculation.

Which is good! But still only speculation, just...nothing at all to worry about now. It is state of the art to be sent to hospital for this and also I would just take it out.

Also consider: you got an ultrasound, yipee!

(in Austria we were entitled for an prophylactic ultrasound every year, in Australia there is nothing like that in place, one has to wait until a cyst twists or causes pain. Mine was found due to a prophylactic check up without symptoms. How about yours?)

So or so, you are in good hands, even if it was the worst outcome, you are there for treatment, help, not undiagnosed! 

The glass is always half full when something is found.

Again: to differentiate malignant from benign ovarian cysts and masses, HISTOLOGY is the reliable and only method.

Sorry to say, but no worries, you need to have the surgery (laparoscopy I guess) = removal done and wait for histology.

All all the best!

PS: it would be very interesting if you could update us later please if you feel like sharing, what it was histologically. I am very nosy and somehow opening questions is done so much more often than closing them with a result, that could all teach us another experience and learn from.

1. I'm so sorry... I'm glad your story had happy end.

2. Thank You very much.

I don't have any symptoms- it was prophylactic visit. Well- i have some problems with intestines, but have no idea, if cyst (or whatever it is) can cause them...

I read, that cancer can i'm also always tired, but i have anemia and hypothyroidism.

Today i will do this Risk of Ovarian Malignancy Algorithm, it is also another cancer marker- he4 (more sensitive in early stages) and it will check my possibility to have cancer.

I'm very anxious, so i'm terrified. 

After few hours i will have results (online).

I hope it will be fine...

I had stomach ultrasonography in may and everything there was ok.

I also had ultrasonography of lymph nodes on my neck ( a few bigger)- they are also ok. Urine test 3 months ago was fine.

Waiting is the worst  

So... I did only he4 marker I would be waiting 10 days for roma results and 24 I will be in hospital... 

I will share he4 results later.

 

I'm totally weird o.O 

Called my gynecologist to ask about this "hospital thing" and she said I will only have tests and my ultrasanography showed II grade- she didn't say what she means, but I found in the internet (of course), that it may be endometriosis.

So I'm a little less scared.

I would just have it taken out dear, a histology says what it was 100% with the side effect: that it was gone. I can hear through that you worry a bit much, so I rather would take it out, because you will always worry about it, if it grew, if the diagnose was right, there always will be check ups = no peace.