What I do for my LP

Skin, nail and hair health
1

I appreciate the tips I have gotten from LP suffers.  I have vulva LP and anal LP and oral LP.  My dermatologist said not to bathe/ showers only.  She prescribed Clobetasol which I  use daily.  I cut up a t-shirt of my husband's into small squares and that is what I use to wipe (pat) myself or to apply the Clobetasol.  She wants me to go without panties whenever possible so since the weather is warm I wear skirts and no panties.  Cool! 

She prescribed Plaquenal in hopes it would cure all of the LP areas.  I had a HORRIBLE reaction to this medicine.  My face broke out in red welts.  Then I had smaller red welts all over me from my chest down to my feet.  I got several of the side effects they mention in the literature including muscle weakness, dizziness and swollen lips.  By that time I went to the emergency and was given a steroid shot.  The effects lasted about two weeks.

I seem to suffer more with my oral LP than any other areas.  I am going to start using coconut oil as some others have suggested. 

 

2

I have (what I've been told) is V-LP. I use triamcinolone topical cream when it starts to flare up. I can go days/weeks and not be bothered and other days all of a sudden it's soar/itchy. Sometimes I wonder if its towards my back side too because the itch at times is unbearable! I use the cream and over night is usually a lot better. I'm still trying to figure out exactly what this is and why and found this group. I've gotten some information but I think its still pretty uncommon or no one wants to talk about it. Good luck